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  1. SITC!! So good to hear from you....I have also...

    SITC!! So good to hear from you....I have also been 'absent' from WHL for a long while, so when I do check in, it's nice to see an old friend's post.

    So sorry you're having trouble finding...
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    My information is the same as others: Yes, it's...

    My information is the same as others: Yes, it's a chemo drug, but the dose used for lupus is much lower than the dose used for cancer patients. There are some of the same side effects (primarily...
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    Marla, so glad your MTX experience was mild! ...

    Marla, so glad your MTX experience was mild! With pills some folks get really, really sick and they opt for the injection to reduce that nasty side effect. I have three good friends who take it....
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    I'm on cellcept for other lupus symptoms - just...

    I'm on cellcept for other lupus symptoms - just 1,000mg. I've been on it for about 2 years, I think, with no side effects. I know higher doses have greater risk, but generally it's a pretty well...
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    Nice, thread, Rob...what a great idea! Sun...

    Nice, thread, Rob...what a great idea!

    Sun is shining, things are finally greening up, and I'm able to take a walk every morning...woo hoo!

    Jody
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    Hi, Marla! I, too, am a virtual stranger to WHL...

    Hi, Marla! I, too, am a virtual stranger to WHL these days. So, imagine my surprise when I logged in and saw your post! It's wonderful to know that you've finally found a doctor who will...
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    Oh, my, Cheryl....how hard for your brother and...

    Oh, my, Cheryl....how hard for your brother and his girlfriend. I pray that God will protect this child and his parents, and allow them to enjoy each other as a family. My prayers for you, too,...
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    Tasha, I'm sorry you've been 'blessed' with...

    Tasha, I'm sorry you've been 'blessed' with prednisone as a companion for a while. I've been on it (with the exception of a month or so) about 3 years. I started out at 40 mg, too. If you're not on a...
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    Sounds like such a nice day, Hatlady...good for...

    Sounds like such a nice day, Hatlady...good for you! We had a nice day, too....50+ degrees, which is pretty darned nice for N. Minnesota in mid-March. Drove up the shore of Lake Superior,...
  10. I had a positive ANA years before I was...

    I had a positive ANA years before I was diagnosed, but have never had positive results on some of the other usual lab markers. It was symptoms that finally led to a diagnosis. So, to repeat the...
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    Hey, Cheryl....so many here know what you mean...

    Hey, Cheryl....so many here know what you mean about feeling alone in a crowd. Nothing like a little chronic illness...and invisible one at that....to isolate you from those around you. I hope...
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    PIP, just doing a little 'browsing' and read...

    PIP, just doing a little 'browsing' and read about your challenges. So much for you to handle. It's so hard to feel your health limitations when you have such important things going on in your...
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    What an interesting thread...thanks, Bonus Mom! ...

    What an interesting thread...thanks, Bonus Mom! I don't post too often, but I do read posts from all of you and it's just amazing to learn about all the different backgrounds and interests. The...
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    Priceless....absolutely priceless..... Thanks...

    Priceless....absolutely priceless.....

    Thanks for the lift!
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    I receive these message from the Lupus...

    I receive these message from the Lupus Foundation, too. It gives us hope! My little local support group is working with the Minnesota branch of the Lupus Foundation to get the word out; to help...
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    Cheryl, I'm praying for your sister and her...

    Cheryl, I'm praying for your sister and her little Isabella...and for you, too. You and your family have had more than enough sadness these past couple of years. What everyone has said is true:...
  17. Sick n Tired, I'm was sad to read about your...

    Sick n Tired, I'm was sad to read about your struggles. I know you've been through a lot, and this is one more challenge you and your husband could've done without. Hugs and prayers to you. ...
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    Congrats, Admin!

    The WHL site looks fantastic...thanks for all of your work. I haven't looked around too much yet, but I like what I've seen. Lots to play with; much more up-to-date. Great job!

    Jody
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    Yes, I've had that, too. And my nose is a bit...

    Yes, I've had that, too. And my nose is a bit big.....a lot to get cold! The longer I have Raynauds, the more sensitive I get. I had a very interesting result last week in the sub-zero weather. ...
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    I have a peripheral neuropathy that has those...

    I have a peripheral neuropathy that has those same symptoms in my right thigh. I've had it for about 2 1/2 years now, and it's healed some, but probably never will completely. Mine WAS lupus...
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    Cheryl, glad the feeling came back! That is an...

    Cheryl, glad the feeling came back! That is an odd one, but then aren't all of the random symptoms 'odd?' I have a neuropathy in my right leg and for a long while I had almost no feeling from...
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    A very late, but heartfelt Happy New Year to you...

    A very late, but heartfelt Happy New Year to you all!

    Jody
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    Hey there, Hatlady! So nice to see your post. ...

    Hey there, Hatlady! So nice to see your post. I, too, have been only an infrequent visitor. Finding my balance again.....it's always a challenge. And my job (which is part time...ha!) is just...
  24. Thread: Hi all...

    by mnjodette
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    Hey, Larry! It was good to see your post. ...

    Hey, Larry! It was good to see your post. (I've been mostly absent, too...so I only catch random posts now and again.)

    Sorry you're still dealing with bonehead medical practitioners. ...
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    Onpointe, I know you'll make the right decisions...

    Onpointe, I know you'll make the right decisions for Gavin. He's lucky to have a Mom who is looking out for him. As you know only too well, that just isn't always the case.

    I'm doing OK -...
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