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  1. I finally went to the ER two days ago because I...

    I finally went to the ER two days ago because I was really weak, swollen, and couldn't even sit up by myself. I was peeing a lot, but it hurt so badly and there was def blood and some cloudy looking...
  2. Positive for Kidney Infection... early sign of Nephritis?

    A week ago I did a urinalysis at my doctor's office (not rheumy, pain management) and I tested positive for a kidney infection. I have had issues with my kidneys for a long time. Just pain around...
  3. So glad that you are ok! I know what you mean, I...

    So glad that you are ok! I know what you mean, I met an elderly woman in a support group for chronic pain and she was more worried about me than her. Some people really put things into perspective. ...
  4. Pensacola, Gulf Breeze, Fort Walton,and or Destin, FL areas?

    Does anyone live near here with Lupus? Love to join or start a group. Met an RN that told me there was a group that met in this area. I'm trying to get more info about the group. Thanks!
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    I have the sunburn feeling quite a bit as well....

    I have the sunburn feeling quite a bit as well. Mine has a lot to do with my skin too. It gets really red and starts looking and feeling like a sunburn. I use Lidocaine spray from the drugstore on...
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    Thanks for the link! Great article.

    Thanks for the link! Great article.
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    I'm late to this thread, but I just wanted to say...

    I'm late to this thread, but I just wanted to say that when I was on MTX, I lost some hair too. I went and bought some Nioxin shampoo (you can get it at any beauty supply store like Sally's or some...
  8. Oh come on, my husband loves the swollen and...

    Oh come on, my husband loves the swollen and discolored look! Yeah right.. but he does enjoy warming up his hands next to the fire of my knee-caps! Seriously if his hands are cold he will just put...
  9. Thanks for the responses! Hmm, yeah I've showed...

    Thanks for the responses! Hmm, yeah I've showed my rheumy when they weren't even this bad yet and he of course wanted to put me on MTX again. I'm kind of like yall though, is this the Lupus or is it...
  10. Red hot swollen knees, discoloration . . pic attached

    This happens to me all the time and it is so uncomfortable. Is this a Lupus symptom (God, what isn't, right?) It seems there is NOTHING I can do to prevent it, besides staying off of my feet. My...
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    There's so much you can do. Nonna is right about...

    There's so much you can do. Nonna is right about the hospital and also just be open to talking about it wherever you go. I find that people with Lupus or that are battling some sort of disease are...
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    I totally know what you mean!! I go to sleep at...

    I totally know what you mean!! I go to sleep at 11 because I have fought to stay up all day and finally the fighting pays off and I'm wide awake at 11. Then I take an Ambien.. barely works now, but...
  13. I definitely feel ya on the painful side. I...

    I definitely feel ya on the painful side. I don't see too much of a correlation of being in the sun (even when I'm not in the sun at all I get it) for me. That's what is so confusing for me. How...
  14. Tired of the red/hot/burning splotches! What are these? Google isn't helping me much.

    I may have posted or mentioned these before, but I get splotches on my skin (besides my butterfly rash) that burn and are hot to the touch. They pop up out of nowhere and I have found through trial...
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    Mrstjscott - I know what you mean. I have issues...

    Mrstjscott - I know what you mean. I have issues with that too. I've seen an opthamologist and nothing was there at all. So much gets on my nerves now like it never has before. Loud noises,...
  16. I've already had to warn my mother that I'm not...

    I've already had to warn my mother that I'm not going to be able to sit out there from 9 to 4 like we used to. Our fave thing was to put our chairs in the water so that when the waves came up they...
  17. Calling all Lupie-Loos! I need ur best tips for sun protection - upcoming beach trip

    Since these past couple years have been so hellacious for me, I wanted to on a vacation to the beach. So..thanks to my parents and hubby, I got my wish.. I'm going! BL (BL/AL = b4 Lupus/after Lupus)...
  18. Thread: Lupus means:

    by Islablue
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    haha. . I know.. you have to laugh about some of...

    haha. . I know.. you have to laugh about some of it or else you'll cry!
  19. I did consult with my lawyer and they filled all...

    I did consult with my lawyer and they filled all of it out with me then they faxed it back to SSDI. It's the ADL .. questionnaire from SSDI/adjuster. Basically how Lupus affects me day to day. I...
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    Yeah it does throw me for a loop mentally and...

    Yeah it does throw me for a loop mentally and physically. I can be going about my business happy as can be.. .feeling decent... not wonderful... just decent... then BAM I wake up and Lupus is...
  21. Thread: Lupus means:

    by Islablue
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    Lupus means... the silence in a conversation...

    Lupus means...
    the silence in a conversation when I tell someone why I don't work or have children
    giving up the dreams that I thought my life was going to include and coming up with new ones...
  22. Nat I agree with you! People need to really take...

    Nat I agree with you! People need to really take a look at things before not agreeing just b/c the gov dons something as being "bad". Alcohol IMO is ten times worse than MJ. I'd rather be on the...
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    I agree, there have been many times that men have...

    I agree, there have been many times that men have responded to my threads or a thread I was a part of on a feminine issue. That's quite impressive! Thanks for responding on other threads too. I'm...
  24. Nervous about filling out the questionnaire..

    Should I consult my lawyer before filling this out? It's the one that you fill out that states how Lupus affects your life. I'm nervous and I need to have it filled out before tomorrow afternoon. ...
  25. liz when you eat something with THC the effects...

    liz when you eat something with THC the effects are very different than the way it would affect you if it was smoked or vaporized. The main effect being nausea and vertigo. That was extremely...
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