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Type: Posts; User: MawMaw

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    Comes & goes

    Rheumy has not yet diagnosed Lupus. Palandromic Arthritis is arthritis that comes & goes. There is swelling of joints & surrounding muscles with pain, redness & warmth. Sometimes low grade fever....
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    Palandromic arthritis

    Still looking for diagnosis. not enough indicators met for diagnosis of lupus. rheumy now talking about palandromic arthritis. Like most of us I'm on plaquenil but he added predinzone for active...
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    Thanks everyone for your responses. I have not...

    Thanks everyone for your responses. I have not experienced any muscle spasms yet. My flares have consisted of odd tingling sensations, followed by rapid swelling and then muscle pain. Mostly occurs...
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    Muscle pain not joints

    I know lupus affects everyone differently. Anybody else out there with almost exclusively muscle pain. If the swelling spreads far enough to reach my joints they begin to hurt but that doesnt seem to...
  5. The fact that plaquenil has to be taken everyday...

    The fact that plaquenil has to be taken everyday is why I don't want to start it at this time. I may go 2 weeks or more without any symtoms to I hate to take all that medication during the in between...
  6. Still no diagnosis

    Finally made it to rheumy so he could see swelling in left hand. Did blood work AGAIN! Later same day right arm started swelling. But began half between wrist and elbow not at a joint, by next day...
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    I feel exactly the same about writing down every...

    I feel exactly the same about writing down every little thing. So far most of my pain is just kind of annoying. Sometimes bad enough to take meds. So feel silly writing down what seems so minor, but...
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    Thanks

    Thank you, Terri & Linda.
    I am new to all this & your info is very helpful.
    Laura
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    No, not yet. So far flares can be 3 to 4 weeks...

    No, not yet. So far flares can be 3 to 4 weeks apart so I haven't had inflammation since last post. Thanks for asking. How are you?
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    Dazed & confused

    Okay, I'm not a complainer. Have had aches & pains most of my life so just always thought that was normal & everyone felt that way. But still no diagnosis so kind of feel like I am in limbo. Should I...
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    Some Corrections

    Of course I meant high dsDNA. Also I didn't explain myself well about what the Dr. said. He was saying that I shouldn't have to worry about a lot of organ damage based on my age & the fact that I am...
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    Don't know anything yet.

    Having blood tests every 2 or 3 months. High ANA & high dsANA. Have periodic ramdom swelling & pain in hands & feet mostly. Haven't yet been able to get in to see Dr. before it goes away. So far he...
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