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  1. Replies
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    Hi Jo, Just reading through your post and thought...

    Hi Jo, Just reading through your post and thought I would give my two cents about the Raynauds. Calcium channel blockers can really make a difference so can Beta Blockers, however if you have...
  2. Thanks Marla!!

    Thanks Marla!!
  3. I will bring that up to my doctors, any and all...

    I will bring that up to my doctors, any and all ideas are welcome! I'm beginning to think I may just have to live with them, whatever they are.
  4. Update!! I have not been on in a long time!!

    Well some of you might remember me from such posts as " anyone ever been fired by there doctor?"
    Thought I would give an update to how I was doing with the syncopes (passing out, fainting). Well...
  5. Thread: Update on Rob

    by Colleenc
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    3,344

    Thinking of you!!! Hugs!!! Colleen

    Thinking of you!!!

    Hugs!!!
    Colleen
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    I have.... SLE, APS(which is causing me most of...

    I have.... SLE, APS(which is causing me most of my most serious), Inappropriate Sinus Tachycardia (another huge problem recently), Osteopenia, AVN of my jaw bone, vasculitis, Raynauds and this isn't...
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    Welcome Zoe, Just wanted to say hi!! You are in...

    Welcome Zoe,
    Just wanted to say hi!!
    You are in good hands at Sunnybrook!!! I live just outside of Peterborough, ON and my cardiologist, hematologist and rheumatologist are at Sunnybrook (because...
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    Hi Nonna, I have some muscle relaxers here that...

    Hi Nonna,
    I have some muscle relaxers here that I had for something else. When the cramps were really bad I was actually on them for the other problem. But I think I may try again. I had blood work...
  9. Thread: Flare Update

    by Colleenc
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    28
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    2,219

    Thinking of you!!! Colleen

    Thinking of you!!!

    Colleen
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    This is a post I wish we could click a "like"...

    This is a post I wish we could click a "like" button (like on facebook).

    So Click!! LOL

    Awesome tattoo idea!!

    C
  11. So went for my test today (tilt table), nothing...

    So went for my test today (tilt table), nothing came of it like the doc predicted!! So that's good and bad... I have my script for the beta blocker (bisopanol sp?) They have started me on the highest...
  12. I "used" to work 4 days a week, it actually not...

    I "used" to work 4 days a week, it actually not the work itself, but the drive. I'm not allowed to drive due to the syncopes. We live in a rural area and my commute is over an hour. Public transit is...
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    LOL!! Linda

    LOL!! Linda
  14. I work in a hospital. The leave is not the issue,...

    I work in a hospital. The leave is not the issue, they would give me as long as I need off (they are very aware of my sickness) The problem is I have used all my sick pay in 2 weeks. I need to have...
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    8 months WOW!! I really hope it doesn't take that...

    8 months WOW!! I really hope it doesn't take that long for me to get over. Actually I think I pretty well over that, I just need to get my arrythmia in my heart fixed and let my pelvis heal. As for...
  16. OH Terri!!! I have not been on in a while, I'm...

    OH Terri!!!
    I have not been on in a while, I'm so sorry to hear your not well!!! I hope you get your sezures under control soon!!!

    Hugs

    Colleen
  17. Sorry guys I have not been on in a while...

    Sorry guys I have not been on in a while (computer issues, lots of appts, blah blah blah) anyway I'm back!!

    I still feel like crap, My pelvis is sooo sore. I'm using my maximum dose of pain...
  18. OK sorry it took so long! Seen cardiologist and I...

    OK sorry it took so long! Seen cardiologist and I have inapproprite sinus tachycardia(which is not life threatining, just life altering), basically that means the sinus node in my heart is miss...
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    Are you on prednisone? When I'm on a high dose It...

    Are you on prednisone? When I'm on a high dose It falls out in clumps (which I find funny cause it grows like crazy everywhere else). It always seems to come back in after the dose is lowered. Just a...
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    Welcome twinmama!! I to am from Canada!! Just a...

    Welcome twinmama!!
    I to am from Canada!! Just a small town northeast of Toronto, outside of Peterborough called Keene!!
    I hope you find this board useful, I certainly did!!

    Colleen
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    Mari, I'm so sorry your feeling down, I know the...

    Mari, I'm so sorry your feeling down, I know the feeling of hearing words you don't want to hear come out of someone you trust. I have to thank you for writing this post, I have read through it...
  22. Just a quick update, I got a call from the...

    Just a quick update, I got a call from the cardiologist office, they moved my appt up after getting the results of the event recorder. I go this Tuesday!! Wooohoo... It's just in time these are...
  23. So update on my pelvis, Had a scan and ultrasound...

    So update on my pelvis, Had a scan and ultrasound yesterday, and the good news is that my pelvis is cracked not fully broken. So what that means is I won't need surgery to stabalize it. Thank...
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    I know way to funny, I think we maybe a lot...

    I know way to funny, I think we maybe a lot alike!!!

    (<:
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    I just re read the rest of this post and I'm sooo...

    I just re read the rest of this post and I'm sooo glad I'm not the only one to ever have glued my eye shut with superglue!!! I had to show my hubby your post, cause he thought I was the only crazy...
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