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  1. Thread: Glad to be back

    by vw
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    726

    Glad to be back

    I guess the site was down for a bit - missed all of you - I have had a bit of a tough summer - my mom passed but doing ok - she is always with me ... :) I was tested for Lyme through Igenex as I...
  2. Thread: Serious pain today

    by vw
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    1,347

    pain

    One thing I try to do when my hands are throbbing - run your hands under hot water for about 5 mins- it seems to do allot for me in terms of some form of relaxation and pain relief.. feel better kido
  3. Thread: grieving

    by vw
    Replies
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    2,757

    SO SORRY

    I am just so sorry to read about your loss. I lost my mom on mothers day this year- so I understand what you are going through- it is a pain that cannot be measured- my mom was my best friend in this...
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    Thanks- they have given me a DX of lupus -...

    Thanks- they have given me a DX of lupus - however I asked my rheumy to test me for lyme recently- she looked a bit confused but whatever - it came back equivacol ( is or isn't ) I guess ... Thanks...
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    Hey all.. Question ? Lupus or Lyme ?

    I've been in and out for past few weeks - But wanted to drop by and say hello - Hope everyone is feeling well - :) Question - this may sound a bit strange but ( has anyone been diagnosed with Lupus...
  6. Thread: feeling alone

    by vw
    Replies
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    3,426

    I feel your pain- there are days like today when...

    I feel your pain- there are days like today when I am in so much pain all I want to do is cry -and sometimes that what you need to do to let it out. Lupus is a very complex disease - it requires a...
  7. Thread: ER

    by vw
    Replies
    1
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    556

    ER

    Thanks for that- So I guess the ER routine is the norm with this LOL- meaning they just can't do much huh- My rheumy was out on Friday and I just couldn't take the pain anymore LOL.. But hey I know I...
  8. Thread: ER

    by vw
    Replies
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    736

    ER

    So, made a little trip to the er ... I posted about knumbness and pain on my left side of my body- got a bit freaked out when my hand locked up and I couldn't move it... They gave me same old song...
  9. Thread: Knumbness and dizzy

    by vw
    Replies
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    1,166

    I get the ringing too... Let me know what you...

    I get the ringing too... Let me know what you find out - I will do the same... Thanks Karen !!!

    vw
  10. Welcome... from me as well.. all I can say is...

    Welcome... from me as well.. all I can say is that everyone here is so supportive and caring. I to am adjusting to all this as well - since the summer - but feeling not so well since about a year or...
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    don't feel to bad I am still a little gupy :) ...

    don't feel to bad I am still a little gupy :) :) :)
  12. Thread: Knumbness and dizzy

    by vw
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    1,166

    Thanks for the advice - I think I will take up...

    Thanks for the advice - I think I will take up the yoga thing for sure ... As far as talking to my docs- well they already told me neuropathy - not much then can do other then B-12... I just get a...
  13. Thread: Knumbness and dizzy

    by vw
    Replies
    6
    Views
    1,166

    Knumbness and dizzy

    I have these days that I am knumb pins and needles and I feel dizzy and can't concentrate- I had an mri all was ok - does this sound like anything on the side of norm >:????

    vw
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    Words to live by... Each day is a sunrise waiting...

    Words to live by... Each day is a sunrise waiting to light your path to glory ... just a me quote !
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    I feel you. It comes on like a truck like someone...

    I feel you. It comes on like a truck like someone slammed the breaks on your life and your just like blah... Just keep your head up the main thing is making sure you are taking the right meds and...
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    as far as the costrochindritis ( spelling always...

    as far as the costrochindritis ( spelling always an issue :) ... anyway heads up I have been dealing with this for about a year and a half - yea it sucks but heating pad - aleve- and muscle...
  17. Thread: FL and Cold !!!

    by vw
    Replies
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    1,024

    hey hatlady: Thanks for the heads up - yes I...

    hey hatlady:

    Thanks for the heads up - yes I have been breaking out the sweaters and socks and all that good stuff... Yes lots of tea too... This is my first year really feeling all this - :) so...
  18. Thread: FL and Cold !!!

    by vw
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    You- to I pray the cold does not keep us out of...

    You- to I pray the cold does not keep us out of the game for to long !!!! happy New Year!
  19. Thread: FL and Cold !!!

    by vw
    Replies
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    1,024

    FL and Cold !!!

    I do love the cold - live in FL so it lasts about two mths a year- However any advice on how to minimize overall stiffness? I mean it has really kicked up... hours after being in the cold and I still...
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    Just wanted to let you know I am new to lupus and...

    Just wanted to let you know I am new to lupus and to this site as well - You sound like a very stronge person and this is a great place to get answers and the advice you may be looking for - My...
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    I have had a pain on the left side-through the...

    I have had a pain on the left side-through the sternum ribcage and all the way through my back - unfortunatly mine is constant... They had given me a dianosis of chostrocondirtis as well- If you get...
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    Please know your mom - is in my prayers. Keep us...

    Please know your mom - is in my prayers. Keep us all up to date on how she is doing and know that we are all here !
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    They suggested ibuprofin in conjunction with...

    They suggested ibuprofin in conjunction with additional meds - It's strange though- this all started after I had a viral infection - everthing started after that - including the lupus dianosis- But...
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    Thanks so much for the words of wisdom from all...

    Thanks so much for the words of wisdom from all of you - I will take all the advice I can get !!!! And try to give some back at the same time ..Thanks for all the shoulders to cry on -
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    Joakris, thanks so much for your words.. I wanted...

    Joakris, thanks so much for your words.. I wanted to cry just reading it.. Knowing that I am not alone in this means so much in itself. I started seeing a therapist not to long ago with regard to the...
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