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Type: Posts; User: Sdelia3

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  1. Thread: Trapped

    by Sdelia3
    Replies
    4
    Views
    371

    Trapped

    I was told this would all get easier . It's actually the opposite . It's only becoming more real. This is my life now .. Trapped by medication that makes me insane / nauseous on a daily basis. My...
  2. Thread: Celcept

    by Sdelia3
    Replies
    11
    Views
    1,132

    Celcept

    Im ok with the daily dose of meds but Come on, those huge pills on an empty stomach? thanks to whoever came up with that one!!
    Like clockwork every day at the same time, i'm ready to hurl. I have an...
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    2 people at once

    to be 22 and 87 at the same time is something I'm still trying to cope with
    When everyones out, I'm on my couch
    my head wants to be there so badly, my body just says no.
    having to say "I can't, i...
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    974

    tapering down the prednisone for me was extremely...

    tapering down the prednisone for me was extremely emotional! When i was taking 80 milligrams i was an OCD ball of energy who had warm muffins and coffee ready and waiting for my family at 5 a.m., i...
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    442

    does it ever stop?

    i see the rheumatologist about every three weeks for blood work
    my past few results have been pretty good, all the numbers have been in a normal range aside from the dsDNA, which is only 5 points...
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    Prednisone? more like Puberty

    Is anyone else going a little crazy from prednisone? i feel like I'm 15 again. nonstop breaking out, awkward hair ( from losing half of it) , crazy mood swings. Gee Wiz
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    7
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    1,003

    Thank you! my doctor made sure she ran the h...

    Thank you! my doctor made sure she ran the h pylori test because i was getting sick every morning and could barely eat anything - was nice to lose some weight but i missed my carbohydrates!! I'm...
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    my blood work says between zero and nine is a...

    my blood work says between zero and nine is a normal range to be in
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    good news in bad news

    since iv been sick my lifestyle turned healthy
    stopped smoking - drinking - working 12 hour shifts on 2 hours of sleep
    my organs may be under attack but my head is much more clear than it has ever...
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    3
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    511

    head up - prednisone ready

    I was diagnosed in February and at the time thought my life was over. I was just about to turn 21 and fly out to california to visit my older brother. Lupus hit, i spent my birthday on the couch...
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