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    Here's a little reading

    Here are a couple threads that talk about Cellcept and peoples experience with it.

    http://www.wehavelupus.com/message-board-forum/viewtopic.php?t=2513&highlight=cellcept
    ...
  2. Thread: nephritis V

    by ganesha
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    Welcome

    Sorry to hear about your new progression into Lupus Nephritis, but at least you are now seeking info and looking to take care of yourself.
    The blood pressure medication is supposed to reduce the...
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    Be weary

    I would be weary of a nephrologist that prescribed reasonably high levels of prednisone without mentioning calcium supplements. Mine has me on calcium twice a day and a fosamax presciription. He...
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    Howdy

    I am in Colorado. I am 35 and have Lupus Nephritis. On lots of medications right now including prednisone, cellcept, coumadin, bactrim, enalapril, and aciphex. Feel free to ask anything else....
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    I get massage fairly regularly and I have never...

    I get massage fairly regularly and I have never thought it to trigger any type of flare in me, but I do know that when I dont drink enough water for the next day or so I feel pretty crappy. Massage...
  6. Thread: Mycelex?

    by ganesha
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    Milagro

    I will be sending you a message, so make sure you check them.
    Brent
  7. Thread: Mycelex?

    by ganesha
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    Thanks

    Thank you so much for the reply. I eat yogurt everyday already to combat the antibiotics and to get calcium, so I am doing that already, and I will get toothpaste with tea tree. I filled my mycelex...
  8. Thread: Mycelex?

    by ganesha
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    Mycelex?

    Today at my nephrologist appointment he prescribed Mycelex (Clotrimazole) to prevent thrush due to the cellcept (1000mg/day) and Prednisone (60mg/day). I did a search here and did not even get any...
  9. Thread: Website Slogan

    by ganesha
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    Great

    I think that is perfect!
  10. I personally use medical marijuana to help me...

    I personally use medical marijuana to help me sleep, as it is a natural solution in the face of all the synthetic drugs that I am now on. I just started prednisone (60mg a day) and am realizing the...
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    littlered, I think they were likely referring to...

    littlered,
    I think they were likely referring to your creatinine level. Creatinine is a measure of kidney function with most peoples ideal number being around .6 or so I think. I run a little...
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    Yes my mind is much more at ease:) Thanks My...

    Yes my mind is much more at ease:) Thanks

    My nephrologist is Dr. Singh with Western Neph. I really like him. I still dont like my rheumy, but Singh is great. He mentioned that Cellcept would...
  13. Thread: Ambrotose?

    by ganesha
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    mnjodette, Here is a link where Susie gave me a...

    mnjodette,
    Here is a link where Susie gave me a good response about glyconutrients:

    http://www.wehavelupus.com/message-board-forum/viewtopic.php?p=5491&highlight=#5491

    I have not actually...
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    Thnx

    Mary,
    I was thinking that those stages didnt seem to be what my Dr was talking about, so thank you for that clarification. I think you are on the right track, and I will revisit that information...
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    Yikes

    That seems a bit different from the impression I got. Since my kidney function is good and we caught it early, I felt a little safe, but the above says that things are more serious. Thanks so much...
  16. Thread: Accupuncture

    by ganesha
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    Thanks for that clarification. That makes a big...

    Thanks for that clarification. That makes a big difference. I have used the lovenox at times to get my levels to the right realm quicker, but it is not a constant thing. Accupuncture comes up in...
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    Got results of Kidney Biopsy

    Today I talked briefly with my nephrologist on the phone to discuss my biopsy results. It was as I expected and he said I showed signs of Stage 3 and stage 5 nephritis. He said that the stages are...
  18. Thread: Accupuncture

    by ganesha
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    Trying to overcome needle phobia

    I have heard so many good things about accupuncture with Lupus, but my great fear has kept me from trying it thus far. I am paralyzed, so I have other pain and discomfort that I think it would also...
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    I think it is a great idea. I know I have gotten...

    I think it is a great idea. I know I have gotten dozens of presents that were never seen again after christmas except to throw them away or take to the thrift store.
    One suggestion is to think of...
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    Good luck kimb. I had a DVT last Dec, and have...

    Good luck kimb.
    I had a DVT last Dec, and have been on Coumadin since. I am actually in a wheelchair (t11/12 spinal cord injury), so I already have risk factors there, so I can understand your...
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    I know this thread is older, but here goes:)

    Nicole,
    I can relate somewhat, as I have been paralyzed and using a wheelchair for almost 7 years. I was also diagnosed last year with Lupus and likely nephritis. I am fortunately fairly strong...
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    I have found that alcohol really adversely...

    I have found that alcohol really adversely affects me, and I feel crappy right awaydue to my lupus. But I remember when I was first paralyzed from a car accident (no Lupus at this time), and when I...
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    Being legal a godsend

    ej,
    I am fortunate to live in a state that has added an amendment to our state constitution to allow for medical marijuana (MMJ). I have been a marijuana user for many years and hate the demonizing...
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    Rouge, Could you please let us know what...

    Rouge,
    Could you please let us know what remedies you are taking. I am searching for a way to stay off of pharmaceuticals and am always open to new ideas. I hope you find something that works for...
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    I work Mon-Wed, so any other day than those would...

    I work Mon-Wed, so any other day than those would work for me. Hope the meeting goes well and I look forward to meeting everyone.
    Brent
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