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Type: Posts; User: SoleSinger

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  1. Replies
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    I think I am going to be the only one to say...

    I think I am going to be the only one to say this... I love Prednisone! I hate the side effects at a high dose (80mgs) but, every time I have been on a high dose, my blood work has gotten...
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    I had low blood pressure because of the BP meds...

    I had low blood pressure because of the BP meds they had me on for my kidneys. And once it got down there (60/30 at lowest) even after they took me off the BP meds. They put me on Midodirne which...
  3. Thread: Hair Loss?

    by SoleSinger
    Replies
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    1,729

    No... That's how mine comes out, too... I'm only...

    No... That's how mine comes out, too... I'm only 26... And I KNOW it's Lupus because before I got sick I bearly lost ANY hair... You're supposed to lose like 100 strands a day normally... Which...
  4. Thread: CellCept

    by SoleSinger
    Replies
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    9,131

    I'm on 3,000 mg of CellCept a day... I have never...

    I'm on 3,000 mg of CellCept a day... I have never noticed it making me pee more... Hmmm Weird.
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    I'm on Klor-Con They are big, but they are nicer...

    I'm on Klor-Con They are big, but they are nicer to your stomach than the big white ones are... They are BRIGHT yellow!
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    Hi guys! Thanks!! I have been folowing your...

    Hi guys! Thanks!! I have been folowing your advice as well as guzzling orange juice and tea!

    My fever has been up and down all weekend, of COURSE I couldn't get an appointment even scheduled until...
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    Mine was 108 when I was diagnosed... now it's...

    Mine was 108 when I was diagnosed... now it's like 69 or something... Normal is between 0 and 20 So YAY! I'm glad your husband's results are looking better!!!
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    What CAN a Lupus patient take?

    Hey folks!

    I have been hit with my first cold-like thing since being diagnosed with Lupus. Before Lupus, as soon as I felt this coming on I would have run out and consumed every molecule of...
  9. I think I'd ask when someone else would be on...

    I think I'd ask when someone else would be on duty..... :?
  10. Do you know that the only drugs that are truly...

    Do you know that the only drugs that are truly approved as lupus drugs are prednisone and asprin? I found that out a seminar the CLF put on not long ago! Crazy, isn't it?
  11. Thread: Trazadone?

    by SoleSinger
    Replies
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    2,912

    That could be the meds drying out your eyes......

    That could be the meds drying out your eyes... Try some saline eye drops and the biotene line! My eyes and throat have been really dry since taking Trazodone and prozac... Those really help
  12. Thread: Trazadone?

    by SoleSinger
    Replies
    15
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    2,912

    Trazodone has been great for me! It doesn't do...

    Trazodone has been great for me! It doesn't do anything for pain or depression which my doctor said it should, but it helps me sleep like no other! And I don't wake up feeling groggy or anything! I...
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    Oh NO! I didn't take it that way at all! Sorry if...

    Oh NO! I didn't take it that way at all! Sorry if I sounded curt or offended or anything. I just meant to say that for me, that's been ruled out... Sorry...
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    5,860

    yup they can. It usually comes with dizziness...

    yup they can. It usually comes with dizziness too. But in my experience, that hasn't always been the case... Good Luck! I hope you find some answers!!!
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    well the thing is, I am so sensitive to any of...

    well the thing is, I am so sensitive to any of that stuff it's crazy! they had me on such a small dose of lasix and lisinopril (taking away the other bp med and diuretic completely) and I was...
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    Do you have a BP monitor? Because too low BP can...

    Do you have a BP monitor? Because too low BP can give you that kind of an effect too...
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    Yeah, I've had a terrible time with my BP they...

    Yeah, I've had a terrible time with my BP they had to take me off all the BP meds and diuretics because it was causing such problem with my BP... But once I was off of them my BP wouldn't stablize it...
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    I'm on CellCept Plaquinil and Pred... Also for my...

    I'm on CellCept Plaquinil and Pred... Also for my kidneys the put me on Cozaar and Lisinopril (BP meds) Because apparently they keep the protein in your blood.... They have taken me off of them...
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    Brent, I also have stage 5 Lupus nephritis and...

    Brent,

    I also have stage 5 Lupus nephritis and how it was explained to me was that stage 1 is less severe than stage 4 BUT stage 5 isn't necessarily more severe than stage 4. It can range in...
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    Oh my god... I'm so sorry!!!! :(:(:(

    Oh my god... I'm so sorry!!!! :(:(:(
  21. I'm on trazodone, and haven't gained any weight...

    I'm on trazodone, and haven't gained any weight since I have been on it... I like it a lot actually...
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    Yeah, my potassium is always out of whack!

    Yeah, my potassium is always out of whack!
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    As long as you feel up to it, go for it!! But...

    As long as you feel up to it, go for it!! But don't push too hard... If you find you can't do the whole thing, stop... Do it, but be smart about it!
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    Hope it helps! so many people I know seem to get...

    Hope it helps! so many people I know seem to get it after I show them that!
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    Arvada Colorado

    We meet every other Wednesday at 7:00 pm and occasionally on Saturdays at the cheshire cat off 58th and wadsworth...

    www,myspace.com/lupussupportarvada
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