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Type: Posts; User: LAP717

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    Indoors Suburn???

    OK, I work from home now so I can avoid the flourescent lights. Thank goodness for an amazing boss and company!

    But today I didn't close my blinds in my home office for the afternoon, as it was a...
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    (((( Hugs )))) I only wish there was something I...

    (((( Hugs )))) I only wish there was something I could say to make any of it better.
    Except that we all know how you feel.
  3. Thread: Ocular Migranes

    by LAP717
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    Ocular Migranes

    Odd... rheumy sent me to have eyes checked, due to odd visual issues (rippling effect, sometimes a minor little headache). Eye doc said I have ocular migranes, even though I have had the same visual...
  4. Thanks ladies. I am in tears reading your...

    Thanks ladies. I am in tears reading your responses right now.

    I actually feel like the anticipation or concern about feeling this way limits what I am willing to do on occasion. I am not...
  5. Confirm I Am Crazy, or Help Me Undertand Please

    OK, I think most of us hit a period at some time where we begin to question our own sanity with Lupus. Or at least I hope so, because I am there.

    I can deal with the aches and pains. I can deal...
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    Wine... It Helped, But How?

    Hi all. I was having a really bad day after going into a bright flourescent environment today for 30 minutes. I felt so bad that I had to lay down for a couple of hours, and at dinner simply didn't...
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    Giggle... sound like we could be Lupus twins!

    Giggle... sound like we could be Lupus twins!
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    YES, YES, YES, YES to the UV reactions. My whole...

    YES, YES, YES, YES to the UV reactions. My whole face feels "hot" or flush, I get almost waves of dizziness, my legs and arms get hot and sometimes feel like they won't function. Feverish, for a lack...
  9. Hello! It is good to meet you. While I can't say...

    Hello! It is good to meet you. While I can't say my experience has been as colorful as yours, I can still offer a virtual hug.
  10. Thread: Hello!

    by LAP717
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    Welcome! It is good to meet you.

    Welcome! It is good to meet you.
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    Thank you everyone. I will ask at my next...

    Thank you everyone. I will ask at my next appointment.
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    Muscles, Skin.... Who Knows!

    I am sorry to be so full of questions recently, but thank you for being here to support me.

    My quads and biceps are tired today. Or feel weak. Or hot, perhaps. Like I have been exercising, but I...
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    Thank you everyone! I just need to realize it is...

    Thank you everyone! I just need to realize it is OK to take a step back. Something is better than nothing. I will also re-engage my elliptical. I bet we will become friends again.
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    Exercise Question

    Hello! I was a 'boot camp' kind of a gal with exercise; the harder, the better. But for the last 6 months, my legs just feel too weak for the hardcore stuff. But I miss it desperately.

    Without...
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    (((Hugs..... lean all your body weight onto me. I...

    (((Hugs..... lean all your body weight onto me. I can hold us both up right now)))

    It sucks. Simply enough.

    There is no diagnosis with the word Lupus that makes us run around and yell "yeah......
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    ((((hugs))))

    ((((hugs))))
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    I can only offer hugs... and hugs... and hugs!

    I can only offer hugs... and hugs... and hugs!
  18. Thread: Hi, from Wendy

    by LAP717
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    Hi and welcome! I am somewhat new too, and am so...

    Hi and welcome! I am somewhat new too, and am so thankful for the site!
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    I have low Vit D too, and hope it is the reason...

    I have low Vit D too, and hope it is the reason for my 'shakiness' and vibrations. I am on week 4 of 50,000 once a week, then on to 1,000 per day. Fingers crossed!
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    Fluorescent Lights and The Body

    Hi all. I know many of us have issues with fluorscent lights. In my new office, I can't control my lights. I find after about 6 hours (with SPF 70, sweater, hat, sunglasses) it takes its toll on me....
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    Hi everyone! I am in Carrollton... let me know if...

    Hi everyone! I am in Carrollton... let me know if you ever get together.
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    Hi there! You will be glad to know it is just as...

    Hi there! You will be glad to know it is just as difficult for women to be diagnosed :-)

    And welcome. We all seem to have different journeys, but it is wonderful to have a place for support.

    I...
  23. Thread: Hello!

    by LAP717
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    Hello and welcome! I am also somewhat new...

    Hello and welcome! I am also somewhat new (diagnosed Thanksgiving, 2009), so am still learning. However, doc suggests I have been having flares for 15 years. Good to know there is a reason, aside...
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    Feel better soon!!!

    Feel better soon!!!
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    P.S. Meant to also note that I am starting 50,000...

    P.S. Meant to also note that I am starting 50,000 Vit D for 8 weeks; was found last week to be Vit D deficient at 22.7 (range should be 32-100). Could that contribute?
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