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    So frustrated

    So how come you can have practically every symptom of lupus, meet more than 4 of the criteria, but since you have negative ANA there is no possible way you have lupus.

    I've been to 2 rheumys. ...
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    Update on rheumy visits

    Well I finally saw the rheumatologist, actually 2 different ones! The first one I went to last week. She kept cutting me off mid-sentence when I was going over my symptoms, didn't listen to me, and...
  3. Thread: Memory Loss

    by wendya432
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    Oh yes, I have dry erase boards all over the...

    Oh yes, I have dry erase boards all over the house. Along with one of those really small spiral topped notebooks and a pen everywhere I spend a lot of time (bedside table, side table of the couch,...
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    I agree with you. I went to my first rheumy...

    I agree with you. I went to my first rheumy visit last week and she told me to exercise and not sit on the couch, and that I don't have RA. Well no kidding, no one every thought I did!! She was so...
  5. Thread: Bumps

    by wendya432
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    Bumps

    Does anyone else get bumps all over? I'm not sure if this is a Lupus thing, from the sun, or what. But I have these little bumps all over me. I guess they are kind of like blisters, but not...
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    omg Rob, I will have to upload pics of our...

    omg Rob, I will have to upload pics of our kittens. One is grey with a white diamond on his chest, and the other black and white! lol
  7. I don't think Derrie was saying acupuncture would...

    I don't think Derrie was saying acupuncture would cure Lupus. Just that we all suffer from pain, and wondering if a certain method had helped anyone else manage their pain. I highly doubt she needs...
  8. Thread: Update

    by wendya432
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    Update

    Just a quick update on me.
    I've had another episode of the TN, this time even worse. GP said it is probably TN but to bring it up with the rheumy and they might want to send me to someone else. ...
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    awww! Poor little kitty! We just adopted 2...

    awww! Poor little kitty! We just adopted 2 kittens from the same litter that were going to go to the shelter if they didn't find a home. They are about 11 weeks now, we got them when they were 8...
  10. Thread: TN?

    by wendya432
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    TN?

    Isn't it great when our AI issues get to have friends to tag along? I would just hate for them to be lonely. I think I get to add another acronym to my growing list of issues! Looks like I have...
  11. I hope your CT goes well! I'm having pain in...

    I hope your CT goes well! I'm having pain in that area right now, too, actually. I have a feeling mine is a kidney stone, but it worries me that it's in the appendix area. I'm up in pain right now...
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    Hi Sallie, I'm new here, but I will say, this is...

    Hi Sallie, I'm new here, but I will say, this is the board to be at! Such nice helpful people here. :)
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    Happy birthday!!

    Happy birthday!!
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    great news!

    great news!
  15. Thread: Hard day

    by wendya432
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    Thank you a million times everyone! It is so...

    Thank you a million times everyone! It is so great to know I'm not alone, and that I just have to get through this rough patch.

    Thank you for the link, Steve! I think I will print it and give a...
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    I don't have any advice, just am right there with...

    I don't have any advice, just am right there with you. I hate hate hate that I am taking vicodin just to get through the day. But without it, I just can't function. I know it's helpful and I'm not...
  17. Thread: Hard day

    by wendya432
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    Hard day

    I hope it's ok if I vent a little here. I'm just so tired of feeling so bad, and just not having anyone "get it". I overdid it today. Well, probably yesterday, too. Lots of stress, and too much...
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    Ashley, that is very interesting. 5 years ago I...

    Ashley, that is very interesting. 5 years ago I had my son, at term, after a few months of preterm labor that luckily responded to treatment. A few days after I had him I had to go back to the...
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    Yeah, it wasn't pleasant at all!!! But, I guess...

    Yeah, it wasn't pleasant at all!!! But, I guess at least they know for sure. My feet are worse than my hands, and it's definitely Raynaud's. He said it's most likely secondary to a soft tissue...
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    Well I'm back for my consult. Had to put my...

    Well I'm back for my consult. Had to put my hands in ice this time and now I'm waiting to see the dr again. I don't think it's going well but we will see.
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    I think the worst part was that I was caught off...

    I think the worst part was that I was caught off guard! Last night my entire legs were aching. Luckily today I'm back to normal, whatever normal means these days!!!

    Marla, I go back on the...
  22. My muscles are just... exhausted. Some days I...

    My muscles are just... exhausted. Some days I can't even hold up my hair-dryer long enough to dry what's left of my hair. I'm thinking of getting a seat to put in the shower because some days I got...
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    OMG!! Raynaud's testing!

    I was totally unprepared for having to put my feet in ice water. That hurt worse than anything has hurt me in a LONG time. And I have 12 kidney stones right now and had my epidural wear off in the...
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    You know, I just went to the Endo and with just a...

    You know, I just went to the Endo and with just a low T4 and my symptoms he put me on synthroid and is running labs for Hashimoto's. He didn't even need any prodding from me. Just listened to my...
  25. I did myself in on Friday. Spent the morning in...

    I did myself in on Friday. Spent the morning in the Dr's office and could feel the lights making me sick, despite the sunblock. Then went to a friend's and spent most of the day outside playing...
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