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  1. Thread: Trapped

    by Saysusie
    Replies
    2
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    49

    I am not sure why your were told that this would...

    I am not sure why your were told that this would get easier. This is a chronic disease that could be with us, in one form or another, for the rest of our lives. To suggest that this will be easy is...
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    If she has it in her mind that making this trip...

    If she has it in her mind that making this trip to participate in the trials might cure her, there is very little that you can do to change her mind or to stop her. The only thing that I can suggest...
  3. I agree with Nonna . make your doctor aware of...

    I agree with Nonna . make your doctor aware of the issues you've been having with his staff. The chances are pretty good that he does not know about these issues and once he becomes aware, he will...
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    Thank You Nonna! Happy Easter to you as well and...

    Thank You Nonna! Happy Easter to you as well and I am wishing each and everyone of you to have a blessed and loving day!

    Peace and Blessings
    Namaste
    Saysusie
  5. Replies
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    115

    I had the same issues quite some time ago and was...

    I had the same issues quite some time ago and was also told to wear a wristband. However, I had to wear mine day and night!
    Please do speak with your doctor and let us know how you are doing.
    ...
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    IS there any sign of a rash on your eyelids? If...

    IS there any sign of a rash on your eyelids? If so, this may be a discoidal rash that is causing you eyelids to be swollen. I agree, speak with your doctor soon and please let us know how you are...
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    That is wonderful news Nonna..I hope that you...

    That is wonderful news Nonna..I hope that you continue to get better and that it never occurs again. I am so glad that you caught it so quickly and treatment thus far is working! Warm hugs!
    ...
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    145

    I'm glad to hear that it was better this time. ...

    I'm glad to hear that it was better this time. Best of luck with your esthetician!
    Warm Hugs

    Peace and Blessings
    Namaste
    Saysusie
  9. Thread: so frustrated

    by Saysusie
    Replies
    10
    Views
    145

    I was about to suggest the same thing! Perhaps...

    I was about to suggest the same thing! Perhaps it is time for you to see a rheumatologist and make sure that it is one who is familiar with Lupus and its treatments. Also make sure that he/she...
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    I had major issues of this type years ago when my...

    I had major issues of this type years ago when my Lupus was severe. I used Neosporin in those areas and also pure aloe vera gel. They actually helped quite a bit!
    I am sorry that you are having...
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    Hi aimtoothpaste (love that -lol); In...

    Hi aimtoothpaste (love that -lol);

    In answer to your question, YES there is such a thing as Mild Lupus. I, at this point in my life, have been downgraded to Mild Lupus (however, I have a...
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    Hello and Welcome to our family Andrea14. I am...

    Hello and Welcome to our family Andrea14. I am so sorry that this had to be such a painful lesson for you. However, it is one that we are all familiar with and many of us have suffered in the same...
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    Unfortunately, this happens more times than we...

    Unfortunately, this happens more times than we can recount. You are absolutely right; often with your meds, some of your symptoms may go away and your lab tests will attest to that. For informed...
  14. Thread: Greetings.

    by Saysusie
    Replies
    1
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    59

    Hi Mslibra72; Welcome to our family. You have...

    Hi Mslibra72;
    Welcome to our family. You have come to the right place to be amongst people who understand and who are here to help you in any way that we can. This site is filled with the most...
  15. I get massages quite often. I usually do a...

    I get massages quite often. I usually do a combination: deep tissue in my shoulders and neck areas and soft tissue throughout the rest of my body. My therapist also spends a lot of time on my...
  16. Thread: Life Update!

    by Saysusie
    Replies
    5
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    108

    Welcome back Ashley and many, many...

    Welcome back Ashley and many, many congratulations!! This is quite an achievement and you should be very proud of yourself...we are! I am also happy to hear that you are involved in the theater and...
  17. This is not surprising at all! Peace and...

    This is not surprising at all!

    Peace and Blessings
    Namaste
    Saysusie
  18. Replies
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    How beautiful!! The way Karma picked you. It...

    How beautiful!! The way Karma picked you. It sounds as if it were a bond and that the two of you were meant to be together! I am happy for you both.

    Peace and Blessings
    Namaste
    Saysusie
  19. Thread: I'm new here

    by Saysusie
    Replies
    2
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    74

    Hello and Welcome to our family; Steve has...

    Hello and Welcome to our family;
    Steve has given you some great advice and steered you in the right direction to find information. I just wanted to make sure that I also welcomed you to WHL. If...
  20. Thread: Allergy Shots

    by Saysusie
    Replies
    3
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    78

    I am glad to hear that you are feeling better...

    I am glad to hear that you are feeling better already. I hope that it continues.

    Peace and Blessings
    Namaste
    Saysusie
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    Thank you for the good news and the beautiful...

    Thank you for the good news and the beautiful reminder that we must always have hope, never give up, and always speak up about what we are dealing with! Thank you again.

    Peace and Blessings...
  22. Replies
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    Please read our thread on "You know you have...

    Please read our thread on "You know you have lupus fog if" and you will find lots and lots of stories about how we forget things, do crazy things, miss important things, etc.
    Your friend should be...
  23. Thank you so much for that information which, I...

    Thank you so much for that information which, I am sure, so many are unaware of!

    Peace and Blessings
    Namaste
    Saysusis
  24. Thread: Zoo Time

    by Saysusie
    Replies
    10
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    154

    I am glad that you had a nice time with your...

    I am glad that you had a nice time with your daughter and grandchild. Yes, indeed, sometimes the after effects are well worth it! LOL

    Peace and Blessings
    Namaste
    Saysusie
  25. Thread: Lupie newbie

    by Saysusie
    Replies
    3
    Views
    80

    First of all...STEVE, THAT WAS SO BEAUTIFULLY...

    First of all...STEVE, THAT WAS SO BEAUTIFULLY EXPLAINED AND POIGNANT! Thank You So Much for providing that insight into a male's perspective.

    Secondly - Sharon, welcome to our family where...
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