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  1. Replies
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    yes the only way I have found so far is the diet....

    yes the only way I have found so far is the diet.
    by reducing the bad things we eat ....
    the stomach has time to reduce the inflammation.
    and we are then able to tolerate a little bit of the bad...
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    hi bee, and welcome. I am also a male with...

    hi bee,
    and welcome.

    I am also a male with lupus.
    and I also have inflamed stomach.

    I get severe ibs
    this is caused by inflammation only.
    for me .... a diet called low fodmap works well.
  3. this is great research .... being done by a great...

    this is great research .... being done by a great country .. mine :)

    hopefully it will be taken to the next step ... and someone will help unlock the required medication.

    it is good to see that...
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    hi Joshua , and welcome. sorry you are having...

    hi Joshua ,
    and welcome.

    sorry you are having all these difficulties ....
    but glad you have found us.

    pleaser look around, add your comments where you feel happy ....
    and ask questions as...
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    hi paula, and welcome. unfortunately no-one...

    hi paula,
    and welcome.

    unfortunately no-one on this site is a doctor ....
    but we can help you to understand some of your notes.
    we are unable to diagnose, and our opinion is only that,... an...
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    chris, many of us have described the way...

    chris,
    many of us have described the way plaquenil works ....
    we all seem to agree that you do not notice it is working ...
    but one day you suddenly realise that you don't hurt like you used to....
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    hi redwolf, there are a few other Australians...

    hi redwolf,

    there are a few other Australians on here.
    there is also some from Qld.

    unfortunately there is no shortcut to diagnosing.
    the more tests that are done ....
    the more that they can...
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    hi chikititalinda, many of us do at some time...

    hi chikititalinda,

    many of us do at some time find out that our mental state has been effected by lupus.
    and the worry is only natural ...
    we fear it will degenerate.

    I have been to many...
  9. hi and welcome, unfortunately it is common for...

    hi and welcome,

    unfortunately it is common for people with lupus to also have other ailments as well.
    fibromyalgia is probably one of the most common.

    many people with lupus have also...
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    hi chris, and welcome. I am ex Australian...

    hi chris,
    and welcome.

    I am ex Australian airforce.

    many of us are lucky to get a good balance in our medication.
    when this happens .... life can go on almost as normal.

    we have problems...
  11. Thread: New experience

    by steve.b
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    yes I have ..... it is weird and unexplainable....

    yes I have .....
    it is weird and unexplainable.

    I don't get it anymore ...
    but I did quite a few times in the past.
    it suddenly stopped, as quickly as it started.

    I do not think it is lupus...
  12. Thread: Supplements

    by steve.b
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    I take vit d, folic acid and fish oils. I...

    I take vit d, folic acid and fish oils.

    I found magnesium is good for fatigue .....
    but bad for my ibs

    I have also found fish oil is good for the joints ......
    but bad for weight gain, so I...
  13. Thread: Supplements

    by steve.b
    Replies
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    210

    I have looked into what supplements actually work...

    I have looked into what supplements actually work and why .....

    Calcium is often not absorbed very well .... many people need it, but if it is not taken properly .. it leaves the body unabsorbed....
  14. I live about 70km south of Armadale .... so...

    I live about 70km south of Armadale ....
    so sorry too far away to know what drs are like.
    may I suggest contacting Murdoch medical centre ....
    they list all of the specialists ....
    then you can...
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    hi and welcome, I am self taught also .......

    hi and welcome,

    I am self taught also ....
    but this site is one of my big resources.

    the search feature is a very good item to use.
    also there is "stickies" at the top of each section.
    they...
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    heron, I have never joined an aqua aerobics...

    heron,
    I have never joined an aqua aerobics class,
    all of the ones in my pool are too fast paced for me.

    I go on my own.
    I went onto youtube,
    and watched how to do it .....
    then I made up...
  17. hi cathy, many of us here unfortunately also...

    hi cathy,
    many of us here unfortunately also have multiple auto immune disorder, so you are not alone in this.
    also there are other of similar age to yourself, that are regulars on here.

    please...
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    I am glad to hear the flare is over :)

    I am glad to hear the flare is over :)
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    hi heron, I have found swimming difficult for...

    hi heron,

    I have found swimming difficult for me .....
    so I do aqua aerobics.
    not the fast stuff done to music.
    but the slow type that is about movement.

    for me it is very beneficial.
    I...
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    hi mel and welcome. as you can imagine ... I...

    hi mel and welcome.
    as you can imagine ...
    I visit Mandurah regularly.
    most of my specialist appointments are in there.

    if you ever need support contact me, we can meet or chat.
    you do you...
  21. Thread: Introduction

    by steve.b
    Replies
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    hi chhaya, and welcome. this is a world wide...

    hi chhaya,
    and welcome.

    this is a world wide site .... there are people on here from many other countries too.
    I am glad you were able to find us.

    please tell us a little more about yourself.
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    sorry I am not sure. but I do know that lupus...

    sorry I am not sure.

    but I do know that lupus can affect any organ ....
    so it is possible.
    many of us have different emotions due to lupus.
    I personally needed to take depression medication to...
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    hi sara, and welcome. I do not have timid...

    hi sara,
    and welcome.

    I do not have timid lupus, but I know there are others on here who do.
    also there are some quite good runners who are members here as well.

    but I did want to say hi and...
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    hugs ..... I hope you can sort out your...

    hugs .....

    I hope you can sort out your problems.
    I too am seeing people about neurological issues.
    and I have been in a flare since my knee replacement 6 months ago.
    I have inflammation that...
  25. Thread: new member

    by steve.b
    Replies
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    118

    hi meme, and welcome. there are quite a few...

    hi meme,

    and welcome.
    there are quite a few of us "middle aged" who have recently been diagnosed.
    I was almost 50 when eventually diagnosed.
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