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    Good to know! I'd not have considered soy sauce,...

    Good to know!
    I'd not have considered soy sauce, either. I eat a lot of Asian Cuisine, too--thinking I was avoiding high risk, high inflammation foods. Who knew?
    Thanks for the list,
    Kristin
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    From what my rhemy said, every person's "range"...

    From what my rhemy said, every person's "range" is different, and what that means as per symptoms is different... but the higher the number, the more active the Lupus is in you... So while you...
  3. Thread: ana test

    by chichibug
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    From what I understand, the higher the number,...

    From what I understand, the higher the number, the more active the Lupus is... but compare your numbers only to your numbers--other people have different ranges than you. (Hence why some people can...
  4. Thread: ana test

    by chichibug
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    Your test sound right to me (but I am certainly...

    Your test sound right to me (but I am certainly not an expert at this... I hardly pay attention to my blood test results).

    My ana changes all the time (depending on the flare timing) but mine is...
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    I have vasculitis, too--and it was diagnosed with...

    I have vasculitis, too--and it was diagnosed with physical examination (bleeding under the skin, petachia, etc) along with some blood tests (not sure what he ran)...
    Mine is only "contained" with...
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    One more thing: Combining your University...

    One more thing:
    Combining your University Insurance and the insurance from your husband's work might result in you having no copays or deductibles.
    Check it out... When I had two insurances, it...
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    Fanficbug-- I'm glad you have good (relatively)...

    Fanficbug--
    I'm glad you have good (relatively) with the University. My daughters go to a California State University and they have GREAT coverage--all the way to teeth whitening and massage...
  8. Thread: hi

    by chichibug
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    welcome, Legacyfive, Plaquenil has changed my...

    welcome, Legacyfive,
    Plaquenil has changed my life tremendously. I have been taking it for years, and once--only once--I thought "this stuff isn't working" (I had gotten so used to feeling better,...
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    Hi Delibean, Welcome to the group--I am pretty...

    Hi Delibean,

    Welcome to the group--I am pretty new here, too, and have found a lot of support and information here.

    I too have SLE, and autoimmune vasculitis. I have unrelated heart issues...
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    Good Morning, Are you in CA? California has...

    Good Morning,
    Are you in CA? California has MediCal, which would cover most (if not all) of your costs. Talk to your local hospital about it--I used to work at a hospital here and we had people...
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    Hi!!! Welcome to the board :) I'm glad you're...

    Hi!!!
    Welcome to the board :) I'm glad you're here.
    I hope you find some comfort in knowing you're not alone and that there are "different" ways of dealing with the fun stuff that goes with Lupus....
  12. Hi Mlarie! I am 39, mom of 2 nearly grown...

    Hi Mlarie!

    I am 39, mom of 2 nearly grown daughters. (19 and almost 18 ) I am married to a great guy who I adore, and who takes great care of me. I am a lucky woman!

    I, like you, tend to not...
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    An update: I skipped the sauna for a day and...

    An update: I skipped the sauna for a day and boy--my knuckles swelled up, my muscles hurt, and I remembered how bad I felt before... ack.
    Then the next day, I had a major cardiac event--meaning my...
  14. Thread: thank you

    by chichibug
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    If you can figure that out, let me know ;)...

    If you can figure that out, let me know ;)
    Seriously, though--I have found that by getting good uninterrupted sleep does help (but it takes awhile to "help"--the sleep has to be consistently good...
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    Hi Karen, It's good that you found a salon with...

    Hi Karen,
    It's good that you found a salon with the Far-Infrared. I don't know about "programmes" for sauna use, except that regular use is advised. I will look into it--I did read somewhere that...
  16. Thread: UTI'S

    by chichibug
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    I started getting them over and over again just...

    I started getting them over and over again just before I had my first big flare--for about year before. After Lupus (SLE) was official, I had them (and still have them) repeatedly, but not as strong...
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    I used to feel fine between flares, but now even...

    I used to feel fine between flares, but now even if I'm not in a flare, I'm tired and sore. On a rare day, I feel "better" but never up to where I was.

    --Kristin
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    Hi Rosanna, Welcome to the board. I am...

    Hi Rosanna,
    Welcome to the board. I am relatively new here, too--and there is so much support and information, I'm sure you'll get a lot from being here, too.

    I wish I had some help for you......
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    A lot of people have talked about hormones and...

    A lot of people have talked about hormones and flares being connected. I haven't been able to track anything, as I had a hysterectomy when I was 28. (I had heavy periods, endometriosis, and...
  20. I'd say you need a good rheumatolgist--and soon....

    I'd say you need a good rheumatolgist--and soon.

    I'm sorry you're feeling so badly. I know how you feel though... my doctors avoided a diagnosis for various reasons (insurance, life insurance,...
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    I had symptoms when I was a young teenager. I...

    I had symptoms when I was a young teenager. I "dealt" with them (telling myself for years that I was lazy or weak...) and had many miscarriages, and then two traumatic childbirths (resulting in...
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    That's not too bad-- 3 weeks. I'm glad you're...

    That's not too bad-- 3 weeks.
    I'm glad you're feeling better!
    --Kristin
  23. Thread: BAD NEWS...

    by chichibug
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    Hasanati, I went through a flare that did the...

    Hasanati,
    I went through a flare that did the exact same thing to me. My heart muscle failed, my ejection fraction was in the dirt... I was passing out just by sitting up. They took my license. ...
  24. Thread: woe is me...

    by chichibug
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    (((((((((((((((((((((((((((((Hasanati)))))))))))))...

    (((((((((((((((((((((((((((((Hasanati)))))))))))))))))))))))))))))))

    Others here know the ins-and-outs of SSI/Disability, etc.... I don't know anything about it (except that they WANT to give it...
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    My heart doctors won't allow me to work, but when...

    My heart doctors won't allow me to work, but when I am feeling feisty (and that's whenever I'm not flaring too badly NOT to feel feisty), I am always saying I'm going to go "find a job"... and I...
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