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  1. Thread: Back again

    by Jltoland
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    4
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    141

    Back again

    And wow. It's been a while.

    I got a new rheumatologist the same time I found a nodule in my neck. I mentioned it to my GP, who ordered an ultrasound and found a 1cm mass. He then referred me to...
  2. Thread: Finally home!

    by Jltoland
    Replies
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    263

    Finally home!

    Well, I'm finally back home for an extended amount of time. I went to England to see my husband's family for the first time since we got married. OMG. What a trip. We went from London to Liverpool to...
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    This is the stigma that follows people in pain...

    This is the stigma that follows people in pain from chronic illnesses. I've been told "Oh, lose some weight and you'll be in less pain." or "You don't need pain meds. You just have fibromyalgia and...
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    I have really bad smelling gas when I have dairy....

    I have really bad smelling gas when I have dairy. Soy milk is even worse because my body can't process it at all.

    I would ask your doctor if gas is a side effect of dialysis.
  5. Trying complicated maths here. Started on iron pills.

    So I'm on vacation in lovely Southport, England and my rheumatologist calls. My second set of blood tests have come back showing anemia. I was slightly aware of this because the last time I had...
  6. I go to a fab pain management doctor. Not only...

    I go to a fab pain management doctor. Not only does he truly subscribe to the whole idea where pain management is to improve your quality of life, his PA has lupus as well. She gets what we go...
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    8 months now. :( it did nothing. Steroids helped...

    8 months now. :( it did nothing. Steroids helped but plaquenil did nothing.
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    Yeah, we're looking for a foster family first...

    Yeah, we're looking for a foster family first because that is what is best for the little guy.

    I hope he makes it too. He's such a little munchkin. I have two cats now. I'll have to post pics...
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    OMG, we might be getting a new kitten

    So I was at the pain management doctor and the staff had found a four day old kitten outside their office. my head nearly exploded from the cute. The PA is trying to find a foster situation with a...
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    I'm on plaquenil and MTX at the same time. Ugh....

    I'm on plaquenil and MTX at the same time. Ugh. Considering plaquenil did nothing for me, I want to throw it at the doctor.
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    This is such good information. Luckily (knock on...

    This is such good information. Luckily (knock on wood) I have a very healthy liver. Other than an allergic reaction to tetracycline which raised my liver enzymes, I've had gorgeous blood work, other...
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    Making the move to MTX

    So I saw my rheummy today and she was surprisingly personable. Normally she blows every little sy,proms as something that is not her problem to treat. She prescribed MTX since plaquenil has not made...
  13. Thread: hello

    by Jltoland
    Replies
    8
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    482

    Welcome! :)

    Welcome! :)
  14. Ooh. Good idea. I'll see if I can get an inhaler...

    Ooh. Good idea. I'll see if I can get an inhaler from the doctor. It is really hard to breathe. :(
  15. Isaac... and adventures in storm chasing.

    I live in Orlando and right now we are just waiting for Isaac to pass. But my lungs feel so scratchy, like I'm getting pleurisy again. ugh! Does anyone else find their lupus symptoms act up during a...
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    I did have remission until November of last year....

    I did have remission until November of last year. So it's possible and I hope it will happen again for me. Until then, I just try to do my best.
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    Thank you so much for the lovely welcome! Any...

    Thank you so much for the lovely welcome! Any excuse to share my fur babies makes me happy! :)

    Since my diagnosis, my dad has been searching for the "cure" and it's sort of driving me nuts. It's...
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    If you find out, let me know. I've had it too. It...

    If you find out, let me know. I've had it too. It feels like I sat down on a spike.
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    I hear ya! Thyroid, prednisone, plaquenil,...

    I hear ya! Thyroid, prednisone, plaquenil, Nucynta, phenergan, klonopin but I take my vitamins as gummis so these are my treats :D
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    Hi! New to the WHL boards.

    Hi, my name is Josie. I was just diagnosed with lupus in June. It was sort of a shock because my rheumatologist had been insisting I had CREST even though I had no symptoms. In fact I had LASIK...
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