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  1. Thread: Sensitive skin

    by Jaynie
    Replies
    13
    Views
    839

    Hi Susie, Thanks, that's exactly what I needed...

    Hi Susie,
    Thanks, that's exactly what I needed to know. Crossing my fingers that the Azathioprine will start to work and that I'll find energy from somewhere!
    Wishing you well,
    Jaynie
  2. Thread: Sensitive skin

    by Jaynie
    Replies
    13
    Views
    839

    Hi Saysusie. You are so full of info! You're...

    Hi Saysusie.

    You are so full of info! You're like an infinite resource! Thanks so much!

    I don't think it's any kind of lesions. I think it's nerve pain and I have told my specialist, but he...
  3. Thread: Sensitive skin

    by Jaynie
    Replies
    13
    Views
    839

    Hi again. Currently I am going through a bad...

    Hi again.

    Currently I am going through a bad skin pain phase. I don't know if that's linked to having started Azathioprine? It's bad though. It's on the usual sensitive areas: thighs, tops of...
  4. Replies
    3
    Views
    267

    Hi! I definitely suffer in the evening: aches,...

    Hi!
    I definitely suffer in the evening: aches, pains, sore skin, flu symptoms so maybe it is the lupie rash. I do feel rough in the evenings! I usually feel my cheeks stinging when I'm out and...
  5. Replies
    3
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    267

    Healthy Glow Phenomenon!

    Hi fellows!

    Ok, so I made the phenomenon thing up...I don't think it really exists but...
    Every evening I develop a beautiful healthy glow in my cheeks. Seriously, you would NOT know how...
  6. Thread: Sensitive skin

    by Jaynie
    Replies
    13
    Views
    839

    Yes! I get sore skin. The Dr doesn't seem to...

    Yes! I get sore skin. The Dr doesn't seem to understand though. I reckon it's nerve pain because it feels like a graze or burn even though it looks completely normal.
    I prefer something tighter so...
  7. Replies
    5
    Views
    470

    Hi Susie! You make Azathioprine sound soooooooo...

    Hi Susie!
    You make Azathioprine sound soooooooo much fun :0p hehe!
    So far I've not felt any side effects except for complete exhaustion, but then that could just be a bad lupie week! Crossed...
  8. Replies
    5
    Views
    470

    Hi �� Thanks for your reply. That sounds very...

    Hi ��

    Thanks for your reply. That sounds very sensible.
    A couple of years ago I mentioned Echinacea to my specialist and asked him whether it should be avoided because of its effect on the...
  9. Replies
    5
    Views
    470

    Aloe Vera juice worth a try?

    Hey Lupie peeps!
    I hope you are all doing ok.

    Just wondering if anyone has tried and had any results from Aloe Vera juice? Someone has recommended it to me, but not someone with Lupus so I'm...
  10. Replies
    15
    Views
    1,842

    Hi! I had my appointment Friday. I am cutting...

    Hi!

    I had my appointment Friday. I am cutting down the Mycophenolate by 500mg and going up to 8mg of prednisolone to support me whilst I do it. Then in two weeks I will drop another 500mg of...
  11. Replies
    15
    Views
    1,842

    Hi again! I really appreciate your comments. ...

    Hi again!

    I really appreciate your comments. It seems ridiculous that I only just realised what this pain is caused by after so many years! Luckily it's only been a few years since this specific...
  12. Replies
    15
    Views
    1,842

    Hi! Heron, I don't think I have shingles, I was...

    Hi!
    Heron, I don't think I have shingles, I was trying to describe my pain, sorry for any confusion.
    Steve, I take paracetamol as required. I some times take it three times a day. Is that ok? I...
  13. Replies
    15
    Views
    1,842

    Sorry for the brief statement! My tablet was...

    Sorry for the brief statement! My tablet was running out of oomph!
    It's hard to describe pain isn't it! I've never had shingles but I'm guessing it's nerve pain, so similar. It's not all over at...
  14. Replies
    15
    Views
    1,842

    Thanks It's like a twang. Like a painful shiver...

    Thanks
    It's like a twang. Like a painful shiver in some joints, skin, like when you gave flu and your skin is sensitive, or shingles maybe?
  15. Replies
    15
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    1,842

    Can I ask what you take for the nerve pain Steve?

    Can I ask what you take for the nerve pain Steve?
  16. Replies
    15
    Views
    1,842

    Nerve pain. Fibromyalgia too?

    Hi peeps!
    It's been a while since I visited.
    I'm pretty much at the end of my tether to be honest. So they diagnosed me with lupus with kidney involvement. This is all old news. I'm not a...
  17. Replies
    9
    Views
    1,385

    Thank you. The support I get here is always...

    Thank you.
    The support I get here is always really helpful and encouraging.
    It's invaluable to have somewhere to go when my head is exploding!

    Jx
  18. Replies
    9
    Views
    1,385

    Hi peeps. Still yucky, beginning to think it's...

    Hi peeps.
    Still yucky, beginning to think it's not going to work. I'm on 1000mg twice a day. My infection rate is pretty good...other than this stupid stupid tooth infection which I'm barely...
  19. Replies
    2
    Views
    783

    Hi. Sorry to hear all the drugs you can't have!...

    Hi.
    Sorry to hear all the drugs you can't have!
    I started Cellcept in December and my specialist warned me that it causes nightmares. I've certainly suffered with that but having been on...
  20. Thread: Errand Girl

    by Jaynie
    Replies
    7
    Views
    656

    I think we all need to learn to say no without...

    I think we all need to learn to say no without carrying around the guilt that comes with it. I think maybe it is us that allows ourselves to feel guilty, rather than others making us do so.
    Mica, we...
  21. Thread: Errand Girl

    by Jaynie
    Replies
    7
    Views
    656

    I understand. I really REALLY understand! Thing...

    I understand. I really REALLY understand! Thing is...who is going to take care of you if YOU don't? Who will thank you for being all used up and having nothing left for yourself?
    I have 5 kids, so...
  22. Thread: Errand Girl

    by Jaynie
    Replies
    7
    Views
    656

    We've just posted very similar threads! I'm ok...

    We've just posted very similar threads!
    I'm ok about telling people I can't do things for them, but I struggle with not wanting to do things that other people like to do. I still want friends, my...
  23. Replies
    2
    Views
    464

    Good ways to say "no thank you"??

    Hi everyone!
    I don't know about you, but since I have been ill...actually, that's forever, so maybe I should say 'because I'm ill...' I find it difficult to opt out of the fun things people to...
  24. Saysusie, Thanks for your reply! Is there a...

    Saysusie,
    Thanks for your reply! Is there a particular antibiotic to avoid? I already have to avoid ibuprofen and voltarol.

    Jx
  25. Advice please! Mycophenolate, tooth extraction and antibiotics?

    Hi peeps!
    I need a tooth extraction! It's making me so poorly because I'm on mycophenolate and my body can't fight the infections from where it's rubbing my gum.
    I have a consult tomorrow morning...
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