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  1. Thread: Hope

    by Nonna
    Replies
    8
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    1,361

    I'm at a bad time right now and found this...

    I'm at a bad time right now and found this thread. I can and hope and pray to get pass this. My symptoms are for so many different causes, low calcium, neuropathy and Lord knows what else. I just...
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    I truly agree with Steve on this one. My cat...

    I truly agree with Steve on this one. My cat always comes to me and crawls up on my shoulder so that I have to stop what I'm doing a focus on her. When she decides I'm ok she gets down and curls up...
  3. Thread: Seizures

    by Nonna
    Replies
    4
    Views
    242

    Do you see a neurologist at all? You may have to...

    Do you see a neurologist at all? You may have to give up driving no matter what. Think not only of yourself but of others. There may come a time when you have a seizure with no warning. I get no...
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    Regulating body temperature

    Does anyone have problems keeping warm? I came home from church, was comfortable for about a half hour then got really cold. I can not warm up. Took my temperature thinking I had a fever. It was...
  5. Thread: New experience

    by Nonna
    Replies
    11
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    544

    Perlina, I am going through tests with a new...

    Perlina, I am going through tests with a new neurologist. He said it was related to seizures, but can not understand why it is sporadic. Will keep everyone updated
  6. Herron is not alone in the situation, I too am...

    Herron is not alone in the situation, I too am now divorced due to my illness. It wasn't my fault that I couldn't fix my health, but he seemed to think I should be able to live the life he wanted me...
  7. Thread: Hope

    by Nonna
    Replies
    8
    Views
    1,361

    Hope is the basis of feeling good and a positive...

    Hope is the basis of feeling good and a positive outlook. Hoping for a better day tomorrow is how you get through the bad days.
  8. Replies
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    I have balance issues and fall a lot. I also...

    I have balance issues and fall a lot. I also have spasms that come close to seizures. Today I found out that the vessels in my brain are having problems. As usual everything is treatable, no...
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    Well, I have neurological issues, but they...

    Well, I have neurological issues, but they haven't decided to put a name to it. Basically they'd just rather treat the symptoms. So good luck, either way, your life will change, but as Lupies, we...
  10. Thread: New experience

    by Nonna
    Replies
    11
    Views
    544

    Real weird isn't. Thought it was either lupus or...

    Real weird isn't. Thought it was either lupus or neurological
  11. Thread: New experience

    by Nonna
    Replies
    11
    Views
    544

    New experience

    I'm smelling cigarette smoke where none could possibly be. I don't know if it's imagination or what. Has anyone ever experienced this?
  12. Replies
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    I'm doing better, test results are favorable. ...

    I'm doing better, test results are favorable. Did I ever mention that physical therapy and massages work wonders? I have gotten back in the habit of walking a mile as many times a week as I can. ...
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    Heron, While in Florida I went to the pool every...

    Heron,
    While in Florida I went to the pool every day. I tread water slowly making a circle around the deep end of the pool, staying right by the edge in case I had to grab on. I lost 30 lbs in 3...
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    Sticky: You know you have brain fog when........... Your...

    You know you have brain fog when...........
    Your credit card was in your hand, you put it away but can't remember where. You call and cancel it. Then your granddaughter finds it in the toilet.
    ...
  15. Replies
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    791

    Stress, Fatigue and Lupus

    As we all know stress is bad for us, my mother fell February 13th. I had to spend the nights with her at the hospital, as she had dementia. mother passed March 5th. I found that my exhaustion and...
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    Hugs luv, hope things continue to pull together...

    Hugs luv, hope things continue to pull together for you
  17. Thread: I am lost.

    by Nonna
    Replies
    251
    Views
    36,363

    I wish I knew what to say to you, I just lost my...

    I wish I knew what to say to you, I just lost my mother this month. Nursing her was so hard on me that all I want to do is sleep. I can't even feel my emotions, then they hit me all at once in a...
  18. I also use a cane at times. Everyone keeps...

    I also use a cane at times. Everyone keeps telling me I should use one that has a platform on the bottom. The platform has four short legs and stablizes it to be safer. I would trust that it might...
  19. Thread: I am lost.

    by Nonna
    Replies
    251
    Views
    36,363

    Susie said it so well, just know you are not...

    Susie said it so well, just know you are not alone. We are here, we need you, you are important to us.

    Hugs, Love,Good Thoughts and prayers
    Toni
  20. There are different reasons for low mineral...

    There are different reasons for low mineral counts in your blood. Check with your Dr. My low counts are due to medical conditions not the plaquinel.
    Good Luck and let us know.
  21. Thread: Bells Palsy

    by Nonna
    Replies
    17
    Views
    3,655

    I had Bell's Palsy last April, the symptoms,...

    I had Bell's Palsy last April, the symptoms, druppy face and numbness were gone in a week. They gave me pred and an anti viral. They said each person varies in symptom and length of illness. Hope...
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    Hope you had a good Christmas, happy New Year!

    Hope you had a good Christmas, happy New Year!
  23. Thread: Happy New Year

    by Nonna
    Replies
    1
    Views
    508

    Happy New Year

    May we all have a Happy Pain free New a Year, may our future hold good things for us. May they find the cause, so they can find find the cure
  24. Replies
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    1,379

    Prayer and feeling overwhelmed

    Today I'm overwhelmed, trying to coordinate my new life with responsibilities of my old one. They don't seem to be mixing. And I'm so tired and overwhelmed at the moment. Mother's mental state is...
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    Dumb question for someone who should know

    Has anyone had or heard of lupus attacking hearing, like the inner ear?
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