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Type: Posts; User: chrstngrl

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    Susie - When I read your reply, I was really...

    Susie -

    When I read your reply, I was really surprised. Then I was, once again, extremely thankful for your willingness to share what you know. I dug around on the internet and I had a V-8...
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    Hello all - has anyone had any luck with...

    Hello all - has anyone had any luck with medication, or with the pain subsiding? I've been struggling with pain/tenderness in my ears as well. A couple of times over the last couple of years, I've...
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    jaidini - I think we are exactly on the same page...

    jaidini - I think we are exactly on the same page with the spelling thing. I'm also fairly young - 38. This is what makes me worry. I don't even want to consider how 70 will be. It seems wrong to...
  4. blue - was your MRI with contrast or without...

    blue - was your MRI with contrast or without contrast? I've had both, and the one with contrast showed more than the first (w/o) did.

    You said that you had a really bad headache when this...
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    jaidini - I would definitely tell your neuro...

    jaidini - I would definitely tell your neuro about all of the things you mentioned. Those things are just not right. I would make sure you let your doc know that you are very concerned about this...
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    I had a neuro that saw me in the hospital...

    I had a neuro that saw me in the hospital (complicated migraine/stroke?)so I stayed with her for follow up. After about 5 months, I went to see her to say that I was concerned because the...
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    Angela - Did you end up getting a good answer...

    Angela -
    Did you end up getting a good answer from your Dr.s? I had a similar experience earlier this year, and am still working with the neuro to figure out an answer.
    Have you had any similar...
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    Hi there! My sister is lactose intolerant, so...

    Hi there! My sister is lactose intolerant, so drank a lot of soy milk. Her Dr. told her that she was having perimenopause because of the soy. Some connection to hormones.
    I think lupus can be...
  9. Thread: CNS lupus?

    by chrstngrl
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    Marianna - How did this all turn out? Was...

    Marianna -

    How did this all turn out? Was your med team able to come up with a real diagnosis for you? How is your vision? I hope things are ok with you. Please let us know how you are...
  10. Thread: TIA's?

    by chrstngrl
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    Deester - I have had a TIA and a stroke,...

    Deester -

    I have had a TIA and a stroke, which they officially are calling a "complicated migraine" but I still have lingering symptoms, 7 months later. So I've done quite a bit of research and...
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    coltsfan - Definitely write them all down. It...

    coltsfan -
    Definitely write them all down. It will be overwhelming, I'd bet. Maybe to organize things a bit, you could highlight any items that are either the most bothersome to you, or that seem...
  12. Starrval - Holy Guacamole! Have you ever had...

    Starrval -
    Holy Guacamole! Have you ever had anything like the tingling/numbness on the one side of your face before? Are you prone to migraines?

    I had a similar thing happen to me in April....
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    The tea is a GREAT idea! I live in an area with...

    The tea is a GREAT idea! I live in an area with a large asian population, and a lot of co-workers refuse to drink chamomile during the day because it makes them sleepy. Along with the warm coziness...
  14. Starrval - I hope you got your results today, and...

    Starrval - I hope you got your results today, and I hope someone was able to tell you something real about what they might indicate. Any luck?

    I know what you mean about feeling like you are...
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    CALaj26 - Your frustration is tangible. And...

    CALaj26 -

    Your frustration is tangible. And so very understandable. It really is a grieving process, accepting this lupus change, isn't it? I wonder what it is that you miss most about the...
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    brrrr...

    My right hand gets cold when I use the mouse too much also, or when I sleep on my right side.

    I have only recently (within last 6 months) had trouble with cold feet. I have ALWAYS been hot -...
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    sleep...interrupted

    Hey coltsfan :)

    I have a lot of trouble with my hips and sleeping also. The pillow is the thing that helps most for me.

    I think Oluwa's idea of taking sleeping pills is also really...
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    Well, I am very glad to report that I handled...

    Well, I am very glad to report that I handled myself assertively with my Dr. and although I didn't get everything I wanted, I walked away with a referral to a new neurologist, and a lab sheet to...
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    Wow...

    Sounds like maybe they don't know what type of infection yet, so they are going to give you two antibiotics to cover the most likely territory until they can figure it out with more specific labs.
    ...
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    worry vs. concern, etc.

    Deester -
    What is with these Dr. people telling us that things are abnormal, but not to worry? How about a bit more information for us so we can decide for ourselves whether or not to worry?
    ...
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    Wow! Thank you :)

    Oh my goodness. I am sooo encouraged by all of you. Thank you. I did have my best friend come over and review my medical file with me this past weekend (decided to take things into my own hands)...
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    Need help being assertive with Dr.

    Hello. I don't have a diagnosis, but am fairly sure that SLE is where we will end up. At this point, my Dr. and neurologist seem to not be concerned, which makes me even more concerned. Mainly,...
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