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  1. Replies
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    HI there - VERY glad you are starting...

    HI there -
    VERY glad you are starting Plaquenil...I have been on it for a few years...no side effects for me and it does help me. It does take QUITE a while to start working, and its a drug you...
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    Oh gosh Jina I missed this post - so sorry! I...

    Oh gosh Jina
    I missed this post - so sorry! I started on 150mg and have no problems. I started with 2 - 50mg in morning and 1 - 50mg at night. I was just upped, however to 200mg total (2 in AM, 2...
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    OK, Britt - This is what Daniel Wallace has to...

    OK, Britt - This is what Daniel Wallace has to say in his book The Lupus Book: (though I have found SOME info in this book a little outdated - opinions on this disease changes like the weather as we...
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    Hey Britt - Just wanted to say I understand...

    Hey Britt -
    Just wanted to say I understand your frustration with the going back and forth with Dx. Marla is right though that essentially they are treated the same - plaquenil, prednisone and...
  5. Thread: Hi

    by laurid8967
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    Hello Fraz and welcome to WHL - I am sorry to...

    Hello Fraz and welcome to WHL -
    I am sorry to hear of your mothers struggles with this disease....There is no cure for lupus - we can only take medications to keep the disease under control and to...
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    Teresa - I just want you to know that I am...

    Teresa -
    I just want you to know that I am praying for you, and that I hope your situation at home improves. It is completely understandable that you are frustrated!! Its hard enough to be sick...
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    Hi there - I just wanted to note that you will...

    Hi there -
    I just wanted to note that you will find that almost all of the ppl here with lupus had to wait YEARS for a diagnosis and that there are a ton of ppl here still suffering from this...
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    Mountaindreamer- I just want to say that you...

    Mountaindreamer-

    I just want to say that you always have such a positive and encouraging outlook on things. Its always nice to read and it inspires me as well..thank you :)....Of course, you are...
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    Hey Ladies - Just wanted to share what Im going...

    Hey Ladies -
    Just wanted to share what Im going through now - I am on 30mg daily pred (hoping to taper soon...please GOD). In any case, Sunday night I had the WORST cramps I can remember(my periods...
  10. Hey Nightshifter - The doctor you saw...

    Hey Nightshifter -
    The doctor you saw misinformed you - fibromyalgia does NOT cause an elevated CRP (this is the second time on this forum in the past week that a doc has said that!!) Fibro is...
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    Hi there Scub - Yes Imuran is considered a...

    Hi there Scub -
    Yes Imuran is considered a "chemo", or a DMARD (disease modifying drug). The chemo given for lupus is often times oral, and thus sometimes called "gentle chemo" (now thats an...
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    Same here! At first there was vindication after...

    Same here! At first there was vindication after years of being sick with no answers. Then I was UN-diagnosed (frustration, depression, hopeless) - then RE-diagnosed(unbelief, fear of getting...
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    Hi there - OK, Im glad the last post was that...

    Hi there -
    OK, Im glad the last post was that the doc wanted to see you. It does seem that your symptoms asre increasing as you taper - which is happening to me at this time as well, and has masny...
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    Hey there Scub - Just wanted to let you know Im...

    Hey there Scub -
    Just wanted to let you know Im hoping you will be feeling better soon and congrats on the weight loss!! I am also unable to taper down off of my prednisone right now. I am...
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    Thank you Marla - The CNS lupus is tresated the...

    Thank you Marla -
    The CNS lupus is tresated the same - immunosuppresants and prednisone (and plaqunil of course). The Imuran has not started working YET (it will...IM BANKING ON IT..lol), buit...
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    Hey everyone - Just wnated to give an update on...

    Hey everyone -
    Just wnated to give an update on my appt with neuro on Friday. Well, I was really impressed as they sat with me for about 45 minutes and went over each and every test. In addition,...
  17. I thought I had read the entire thread here...

    I thought I had read the entire thread here before today, and I apparently didnt!! Saysusie and Angel have given you great information (as they usually do) and mine was a bit redundant!!
    Take care...
  18. Hi Slada - Wanted to welcome you and let you...

    Hi Slada -
    Wanted to welcome you and let you know I hope answers are your soon. I have had very high CRPs throughout my disease, and my Sed rate (ESR) can go very high, then back to normal. These...
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    Hi there - First off, I would like to say...

    Hi there -
    First off, I would like to say welcome back...you are amoung friends here who TRULY understand both the disease of lupus (and other AI diseases0 and the stress and frustration of trying...
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    Hahhahahahaaaa! I will do that....the second one...

    Hahhahahahaaaa! I will do that....the second one I mean!!!
    Thanks for the much needed laugh!!
    Lauri
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    Hi Jeanette - Just wanted to say Im hoping your...

    Hi Jeanette -
    Just wanted to say Im hoping your test results are good and that you are feeling well soon. I SO admire your courage and enthusiasm despite your being sick right now...such an...
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    Kim I just wanted to say that I admire your...

    Kim
    I just wanted to say that I admire your perserverence with regards to your family - especially while sick with this disease. I am praying your family is given a better locsation/enviroment...
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    Marla - Im SO happy to hear you have a good PT...

    Marla -
    Im SO happy to hear you have a good PT and that he is willing to even go WITH you!! I think of all the egomaniacs in the medical profession, surgeons (followed by a VERy close second in...
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    Hi all - Marla thank you for your reply and...

    Hi all -
    Marla thank you for your reply and continual support...it means alot.
    Saysusie - thank you so much for the reply. The info was very helpfu (as usual!). I had appt today with my regular...
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    Myasthenia Gravis TOO???

    Hi everyone -
    Hope this post finds everyone feeling well. I have not updated on this flare for a while - and wondering if anyone has any knowledge about this.
    As I have posted before, I went into...
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