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  1. Well, my daughter isn't getting better . Her CK...

    Well, my daughter isn't getting better . Her CK is now up to 4055. Pred. is still at 25mg. and Imuran 100mg. Plaquenil is 200mg. Mon-Fri, 400mg Sat and Sun. Now not only is she losing clumps upon...
  2. Thread: what is this?

    by mommymc
    Replies
    7
    Views
    1,365

    Ancutza: Hello and welcome ! From what I know,...

    Ancutza:
    Hello and welcome ! From what I know, Lupus has many different symptoms for different people. It is called the disease of 1000 faces because everyone is different. Not everyone...
  3. Replies
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    2,330

    Bianca: You are a very well spoken youn lady...

    Bianca:
    You are a very well spoken youn lady with a very kind heart. I so appreciate your kindness in sending me the book, "Lupus Answers". I just read two new ones that were at the Lupus...
  4. Replies
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    2,330

    Bianca: Reading your message brought me to...

    Bianca:
    Reading your message brought me to tears. I am a mother whose child has Lupus. My 13 year old daughter has Lupus, severe myositis, and arthritis. She was dx in June 2005. She had some of...
  5. SoleSinger, thanks for the concern. My daughter...

    SoleSinger, thanks for the concern. My daughter is feeling better and being wy more social and active. Then, the phone call this afternoon. Rheumatology nurse from the Children's Hospital called...
  6. Finally found something my daughter is interested...

    Finally found something my daughter is interested in. She actually brought the idea to me. There is a Friday night club at her former elementary school put on by her 2 former teachers from last...
  7. Replies
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    2,591

    Wow, I didn't know about Michael Jackson or Seal,...

    Wow, I didn't know about Michael Jackson or Seal, but I did hear that James Gardner's daughter has lupus.
  8. Thread: too young !!!!

    by mommymc
    Replies
    6
    Views
    1,627

    Hon, I understand how you feel! My daughter was...

    Hon, I understand how you feel! My daughter was diagnose on june 1 of this year with SLE. She turned 13 on july 1.
    My daughter has had a tough blow thrown at her, and it isn't fair that young...
  9. My 13 year old suffers from SLE. She is on...

    My 13 year old suffers from SLE. She is on prednisone along with many other drugs. This is how it was explained to me.
    Prednisone is a very effected drug in controlling lupus. Side effects are...
  10. Thread: HEADACHE!!!

    by mommymc
    Replies
    16
    Views
    4,387

    biker chic: I am from Canada as well, I don't...

    biker chic:
    I am from Canada as well, I don't know what province you are in but try going on www.lupuscanada.org.
    Their toll free number is 1.800.661.1468

    I hope this is a help for you.
    Keep us...
  11. Replies
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    1,087

    My 13 year old daughter was put on Plaquenil at...

    My 13 year old daughter was put on Plaquenil at the first day she was diagnosed with Lupus. She is still on 200mg/daily. After about 4 weeks or so, the pain was drastically reduced for her. I know...
  12. Replies
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    6,664

    Etanercept (Enbrel) This is a fusion protein....

    Etanercept (Enbrel)
    This is a fusion protein. This is a TNF-alpha receptor fused onto human IgG. It acts by inhibiting TNF-alpha activity.

    It is used for rheumatoid arthritis,juvenile...
  13. Thanks for the encouragement. It is just so many...

    Thanks for the encouragement. It is just so many things happening it seems in such a short period in time. Both my children have the same sperm donor. He left when my daughter was almost 16...
  14. Thread: Vitamin D

    by mommymc
    Replies
    4
    Views
    1,368

    I would ask the Dr., but my daughter takes 1...

    I would ask the Dr., but my daughter takes 1 multi vitamin that contains 400mg. of vitamin D. If you read the list of vitamins on the label, you can just but a generic brand. We actually buy the...
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    Wow !!! You give me hope, kkgadro!! Athough I...

    Wow !!! You give me hope, kkgadro!! Athough I hate hearing about anyone being dignosed, at any age with Lupus, I love hearing about people who have (I hate to sound rudeor offend here, sorry) lived...
  16. Saysusie: Thanks for sending some information my...

    Saysusie:
    Thanks for sending some information my way. Lab work came back today, and my daughters' CK have gone WAY UP ! From 2433 to 3273 !(normal being 185 or less)! Her platelet count took...
  17. Thanks for taking the time to reply. We were...

    Thanks for taking the time to reply. We were just at the hospital today for our monthly visit with the Rheumatologist, nutritionist and physiotherapist as well as lab work. The Dr.'s have put the...
  18. Replies
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    1,129

    In the rain today, we had our 1st. Walk For Lupus...

    In the rain today, we had our 1st. Walk For Lupus in the neighbourhood. There are only 9 members in our chapter, and we had over 100 people out walking our 1km, 2km, or 4km walk. My family and I...
  19. Thread: ID Bracelet?

    by mommymc
    Replies
    2
    Views
    1,261

    The medical team for my daughter suggested that...

    The medical team for my daughter suggested that we get a Medical Alert Bracelet as opposed to a penant on a chain. God forbid something should happen such as a car accident or something that you can...
  20. erinnlee: First, you are so kind!!! I sincerly...

    erinnlee:
    First, you are so kind!!! I sincerly appreciate the offer of the bands. I actually have one purple, from the States, an orange one from Children's Hospital, here in Canada that...
  21. TracyDawn: Thank you for posting a reply, it...

    TracyDawn:
    Thank you for posting a reply, it means a lot to me right now!! It made me cry to hear that you are in the midst of a lot of things happening with your son. My positive thoughts and...
  22. Thread: Aching Legs

    by mommymc
    Replies
    6
    Views
    2,376

    Mitch: I feel that your Dr.'s are doing the...

    Mitch:
    I feel that your Dr.'s are doing the right thing. The CK is to check the muscle enzymes. My 13 year old's CK is very high again, at 2433. She is going to her PT on Thursday afternoon. But...
  23. Thread: Aching Legs

    by mommymc
    Replies
    6
    Views
    2,376

    kathyp: I am so sorry that you are in pain. My...

    kathyp:
    I am so sorry that you are in pain. My 13 year old daughter has SLE with severe arthritis and polymyositis. Have you been tested for either? That could be a reason why you are so sore. ...
  24. Dr. just added 100 mg. of Imuran for my 13year old !!

    I got a call from Children's Hospital on Thursday. The rheumatologists and the medical team have added 50mg. daily of IMURAN to my 13 year old daughter's drug repatoir. I cried the entire day. She...
  25. kelsmom: Thank you for your prayers, I do...

    kelsmom:
    Thank you for your prayers, I do aprreciate it!! My daughter has been trying very hard the last 2 days trying to fit in by doing things that her peers are doing. She is very tired(going to...
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