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Type: Posts; User: banderosa

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  1. I also LOVE sushi, I eat it at least twice a...

    I also LOVE sushi, I eat it at least twice a week, I don't have problems.
    But I usually have flares after eating Chinese food. The flares as I understood are not from the food itself, but from the...
  2. When I was first tested for Lupus doctors told me...

    When I was first tested for Lupus doctors told me I am borderline positive, because my ANA result was 1:80.
    So I guess, Lady Gaga has the same result.
  3. Thread: nerve pain?

    by banderosa
    Replies
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    1,701

    I don't want to scare you, but are you sure it is...

    I don't want to scare you, but are you sure it is nerve pain?
    If it isn't, it could be a blood clot in your leg. The sneazing making it worse,makes me think that. But I hope I am wrong.
  4. Replies
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    oh, yes that is my experience. I had an...

    oh, yes
    that is my experience. I had an unfortunate accident with pesticides. You can read about it here. http://autoimmunity.webs.com/lupussufferer.htm
  5. Replies
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    1,744

    Wine definitely makes symptoms worse for me,...

    Wine definitely makes symptoms worse for me, including joint pain. I don't know how and don't undurstand why but I feel much worse immediately after a glass of wine, and its bad effect lasts at least...
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    Vit D deficiency turned out to be not half, but...

    Vit D deficiency turned out to be not half, but 90 % of my issues. Almost all of my "lupus" symptoms went away after taking 7000 UI vit D3 daily for 3 months. But this dosage needs to be prescribed...
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    4,131

    I never stopped taking meds since my diagnosis....

    I never stopped taking meds since my diagnosis. My doc says I should take Plaquenil for life. I tried to stop it, but in a few days the pain returned so I am still taking it and skipping 2-3 days...
  8. Replies
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    1,208

    Hi Karenboss, I have the same problem, not...

    Hi Karenboss,

    I have the same problem, not with one finger, but with all 10 of them. I think it is neuropathy. Doctors don't say anything. All neurological tests were fine. Doctors said, maybe it...
  9. Replies
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    Found the ointment's name

    I found the ointment's name. It is NOT the nitroglycerine ointment that doctors usually prescribe for Raynaud's.
    The ointment is called Troxevasin. It is made in Europe though, so I am pretty sure...
  10. Replies
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    My Raynauds got better, so I think its severity...

    My Raynauds got better, so I think its severity changes with flares.
    Mine was getting worse, and then improved a lot with an ointment for treating Raynauds.
    I am going to try to find its name...
  11. Replies
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    I have this vibrating feeling too. I was very Vit...

    I have this vibrating feeling too. I was very Vit D deficient. After the D level got normal, I am not vibrating anymore.
    I am convinced 100 % that it is related.
  12. I am the opposite case. I have colds and viruses...

    I am the opposite case. I have colds and viruses all the time. They cause flares and the vicious cycle never ends.
    Doctors say that I have "severe immune deficiency" because of lupus.
    My white...
  13. Good that you are testing all the other vitamins...

    Good that you are testing all the other vitamins too.
    Why don't you test the D also just in case? When I did the blood test I was already taking D3 2000 IU daily. I was still very defficient and I...
  14. I was having this vibration sensation for about...

    I was having this vibration sensation for about 4-8 months, I don't remember exactly how many but it seemed like a long time. It was mostly my legs, at first from time to time, then all the time. It...
  15. Oh, God. Am I the only one, who is not seeing...

    Oh, God. Am I the only one, who is not seeing anything positive yet?
    I am so glad that you have positive results. Maybe some day I will feel this way too.
  16. My doctor prescribed me Vit D2 50000 IU once a...

    My doctor prescribed me Vit D2 50000 IU once a week. I was scared to take such a big dosage all at once, especially after I read the side effects. We discussed it and we ended up agreeing that I am...
  17. How did you find about your Vit D defficiency?...

    How did you find about your Vit D defficiency? Did you have simptoms? Did they improve after taking the suuplements?
  18. My Fibromialgia pain turned out to be the result of Vit D defficiency

    I can't believe, that I am right again, I can't believe that I suspected first what is wrong with me, before the doctor did! Are all of them so clueless or is it only the doctors that I am seeing?. I...
  19. Replies
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    Hey, I also think I developped fibromialgia pain...

    Hey, I also think I developped fibromialgia pain the last several months. It was getting worse and worse. Let me tell you what helped me unexpectedly, and I pray that the pain doesn't return. A...
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    Welcome, rss2! I just wrote a pretty long reply,...

    Welcome, rss2! I just wrote a pretty long reply, but didn't let me post it, because it had the site of the California Lupus Foundation of America. Their headquarters are based in Burlingame, where I...
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    It is a lot. I bought a book about lupus. It's a...

    It is a lot. I bought a book about lupus. It's a textbook for medical students/rheumatologists. What says is that the dosage for Plaquenil is 5-7 mg/kg per day. I noticed 1 pill a day is not enough...
  22. Thread: Lupuraid

    by banderosa
    Replies
    2
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    2,514

    I'm taking Lupuraid for almost a year now. I'm...

    I'm taking Lupuraid for almost a year now. I'm still not sure it's working, but I feel more ill when I stop it and my fever decreases and I am more energetic when I take it. Still not convinced that...
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    Thank you for your reply, Oluwa. It did clear a...

    Thank you for your reply, Oluwa.
    It did clear a little bit the situation with the fever. That's my most bothersome symptom at the moment. I'm just very exhausted because it lasts for many months. I...
  24. Thread: CA members

    by banderosa
    Replies
    17
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    9,059

    Hi I just registered here. I had my first bad...

    Hi
    I just registered here. I had my first bad flare one year ago and right after that, moved to Burlingame, California which is 25 miles south of San Francisco. I have very srong sun sensitivity....
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    Hi from (too) sunny California

    Hi,
    I just found this nice forum today. It's pretty useful.
    It took the doctors about 5 years since my first symptoms started, to be diagnosed, and 1 year after my really bad flare one year ago....
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