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Type: Posts; User: lornak

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  1. Replies
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    I just wanted to say thanks to all that posted. ...

    I just wanted to say thanks to all that posted. I do feel better about what the Dr. said to me and I will be waiting to tell me son till I get much worse.

    When it rains it pours------came home...
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    dying faster than I should....

    that is what the DR told me at my last visit. I have damaged lungs, blood coming from my kidneys, my ADLs are very bad and my meds are not working. I have NO INSURANCE!!!

    the question is.....do...
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    yep, it runs in my family.

    yep, it runs in my family.
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    Lupus and MD.....is it possible?

    is it possible to have lupus and MD? I have been feeling alot different lately (muscle wise). alot of trouble with hips, legs and arms. I cant even lift a cup of coffee with out pain in my arm...
  5. Thread: Cellcept?

    by lornak
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    2,484

    I have been on cellcept for 3 years. I take 3000...

    I have been on cellcept for 3 years. I take 3000 mg a day. I really dont have any side effects. I do however take prilosec (sp) everyday since I am on so many pills. the dr should start you off...
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    well today is Sunday and I am still on the "only...

    well today is Sunday and I am still on the "only two" deal. that is still good but my worst times are in the morning with the coffee and after supper. I am good the rest of the day. I just have to...
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    well guys, yesterday was not totally smoke...

    well guys,

    yesterday was not totally smoke free, but I only had two. I think that is great for me. I usually smoke 1-2 packs a day.

    so far today I have not had any. gonna try again for...
  8. Thread: Pain Meds

    by lornak
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    well mom, I can tell you that I had/have the...

    well mom,

    I can tell you that I had/have the same issue and I was moved to Ultram. it works on the mind (not really the source of the the pain) and seemed to work for me. it is not considered a...
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    trying to quit smoking

    I have been cutting back on my smoking since all the new issues have been coming up and lets face it, the money is also a big factor. my quit date is August first, but I am wondering about...
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    Lauri, that only happened to me one time and...

    Lauri,

    that only happened to me one time and from then on, when the bottle states one refill remaining, I call right then. even if I just got the script filled. then I am ready and never run out...
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    okay... the true meaning on irony..... I am...

    okay... the true meaning on irony.....
    I am taking these pills because of loss of vision.
    I am taking muscle relaxers for the spasms in my shoulders and back.
    mix the two and I can barely see...
  12. Thread: No sleep

    by lornak
    Replies
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    Oluwa, I just think that it is really funny...

    Oluwa,

    I just think that it is really funny that the list of side effects that should be reported to your dr "fast" are the same things that I have with out the pills and they are not fixting...
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    well I hear what everyone is saying and I have to...

    well I hear what everyone is saying and I have to say that I agree. but there is a catch... because I have this "plug" in my heart, I am not aloud to have an MRI. I had a CT scan and it came back...
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    Kathy, yes I have Lupus and have been dx for...

    Kathy,

    yes I have Lupus and have been dx for about 6 years now. the issue is that new things keep popping up and the dr keep adding things to the list.

    Lupus
    Seizures
    Clotting disorder
    now...
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    went to a new dr again.......

    now I have to vent a bit. I am sure that this guy is really good at what he does but if I get one more dr that contradicts what the other drs say, you will be reading about me in the news papers ...
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    Lauri, Ihad the same thing with my throat with...

    Lauri,

    Ihad the same thing with my throat with the last flare. it was terrible :cry: I could barely swallow and I could feel everything going down my throat all the way to my stomach. the DR...
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    thank goodness---I thought that I was the only...

    thank goodness---I thought that I was the only one or something was really wrong. I cant stand the heat anymore. even if I go out to take the cloths off the line I feel like a vampire :? my skin...
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    I have to admit that I too love to garden but I...

    I have to admit that I too love to garden but I am a bit crazy I guess. I was in the garden today at 6:30am. yep--I keep weird hours but I do get things done. I found that it is the only way that...
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    Rere.. I have an allergy to plaq. and my dr....

    Rere..

    I have an allergy to plaq. and my dr. moved me to cellcept and low dose of pred for about the last year. it has helped, I think, but every now and then I still gets the flares, but that is...
  20. I am on cellcept becuase I have an allergy to...

    I am on cellcept becuase I have an allergy to plaquenill--yeah go figure---I have to be the one in a million--whats new??? lol

    I have been on cellcept and low does of pred. for almost a year. I...
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    sits.... there are a few things that I have...

    sits....

    there are a few things that I have learned in the last few months...

    1) a dr. calling your house during the day is not always bad, after 9pm at night---BAD :lol:

    2) if a dr...
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    when I had all the lines attached my hubby called...

    when I had all the lines attached my hubby called me "his little uni-bomber". I wanted to go to airport and see if I could book a flight to Iran..lol

    well physically sick...might as well be...
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    I too have the same anti-bodies and then some. I...

    I too have the same anti-bodies and then some. I was also worried about my children when I was told about Lupus and that was the first thing I asked about. both the Rheumy and the neuro told me...
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    thanks so much for both replies. here is what is...

    thanks so much for both replies. here is what is happening...

    about 2 months ago I had heart surgery to close a hole in my heart because of the clotting issues I have. after the surgery, I was...
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    SLE and seizures

    anyone out there have these seizures? I have been going thru something for the last two months and I have some questions....

    the seizures seemed to subside with the taper does of prednisone that...
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