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  1. Replies
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    I just typed a HUGE reply and pushed the wrong...

    I just typed a HUGE reply and pushed the wrong button.....UGH....ok.....give me a second....

    Mommyof1,

    I have these same symptoms as you listed above....
    a few weeks ago I had a terrible...
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    Linda. Hello to you too. I have been home from...

    Linda. Hello to you too. I have been home from the hospital now for a week and am FINALLY improving!!! My latest blood test shows that my blood counts have improved :) So happy that the cellcept is...
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    Because SPF clothing is so pricy..I found that...

    Because SPF clothing is so pricy..I found that "RIT Dye" makes a SPF wash you add to your laundry and it makes your everyday clothes SPF. Best part is...it's only 2$ a box!!! I just read online that...
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    Linda....We are coping the best we can. My son...

    Linda....We are coping the best we can. My son and I moved back from FL to my parents house in IN almost a year ago. It is a lot of stress with my mother taking care of me when I am sick, AND taking...
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    Hi good dog...I just typed a whole thing but lost...

    Hi good dog...I just typed a whole thing but lost it!!! SHoot.
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    Good dog... I am home from the hospital now. My...

    Good dog...
    I am home from the hospital now. My allergic reaction went down...no one knows wht caused it...but i think it was the potassium infusions. I am still experiencing flair symptoms..pain,...
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    Thank you for the reply. It does make sense.. I...

    Thank you for the reply. It does make sense.. I am working on just trying to relax and let the Drs do their job...it's just been a long few weeks of ups and downs and trying to figure it out and i'm...
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    Sezior and CNS

    HI guys.
    So I had a what can be called a mega flair, just over two weeks ago and I ended up having a seizure. I am still in the hospital. I have now added Keppra and Cellcept to my menu of meds...
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    THis is not vasculitis..it is a definate allergic...

    THis is not vasculitis..it is a definate allergic reaction. my lips face eyes etc are swollen along with hives. I am afraid to take anything for it because i do not know what has caused this issue....
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    still figuring out what is wrong. still at...

    still figuring out what is wrong. still at hospital. I will keep u all posted. Had another MRI today..they say its cerebritis (SP) (the brain swelling) but now I am having all sorts of self...
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    OMG so when I thught it couldnt get worse..I am...

    OMG so when I thught it couldnt get worse..I am once again in the hospital. I was having that terrible migraine so went back to a different local ER and guess what...I had a sezior!!! the lupus...
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    THey just sent me home and said to get some rest....

    THey just sent me home and said to get some rest. I am trying to make a Drs apt to have them check my abdomin. Like a CT or an ultra sound or anything. I feel as though it shouldnt be assumed as to...
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    I wanted to add that my mom has been the biggest...

    I wanted to add that my mom has been the biggest help and my biggest advocate through all of this crazyness. I am so blessed and happy to have her by my side and listen to me when I swear that...
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    OMG get this...Last night I was struck suddenly...

    OMG get this...Last night I was struck suddenly with a TERRIBLE migraine. I tried to wait it out and relax, but I KNEW that this was different. Plus after being hospitilised last week I didnt want to...
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    I havnt ever had my stool tested, but continually...

    I havnt ever had my stool tested, but continually their is a small amount of blood in my urine. I feel like I pay pretty good attention to what's coming out so I think I'd notice the "coffee ground"...
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    GoodDog, I am a terrible record keeper!! I am...

    GoodDog,

    I am a terrible record keeper!! I am a right brained artistic mess..lol So the filing and spread sheet sounds like torture to me!! I do have a binder that has some records from the past,...
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    GoodDog, I refuse to except the fact that their...

    GoodDog,
    I refuse to except the fact that their is no known cause for my blood loss...I really really feel like ignoring this issue, or at least down playing is only going to hurt me more in the...
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    GoodDog, I am glad to hear your iron infusion...

    GoodDog,
    I am glad to hear your iron infusion went well, I hope that it works for you!!! You said that you will go back every monday..how long will you have to continue to do this I wonder.
    No Dr...
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    Blood Transfusions

    Howdy ya'll
    I just spent the last few nights in the hospital but am home now :).....It always starts out the the same way for me and then it's a quick downhill spiral. I start with a fever...it last...
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    CellCept..its my turn.

    Hello friends.
    I have been Dx with SLE for almost a year. I have been taking upwards of 10 mg of pred (and sometimes way more), and 200 mg plaq a day for almost a year. With little results,and...
  21. Thread: Vasculitis

    by Sarah2010
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    Jmail, Was it painful for you in the areas that...

    Jmail,
    Was it painful for you in the areas that had broken blood vessels? My hands and feet hurt SOOOO bad!!!!

    Serand4,
    I have been using bag balm for my external cracking etc. and that has been...
  22. Thread: Vasculitis

    by Sarah2010
    Replies
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    1,875

    Thanks for the tips gang. I have an apt n the...

    Thanks for the tips gang. I have an apt n the 24th. So we will see what the good ole Rhumy has to say.
    Peace and well wishes to all.
    XO
    -Sarah
  23. Thread: Vasculitis

    by Sarah2010
    Replies
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    1,875

    Vasculitis

    Hello my fellow lupies!
    So I am experiencing vasculitis..which is the inflamation and destruction of blood vessels. I of course have the daily joint pain, but my main complaint is my hands and feet....
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    Hi Everyone. I havnt had any trouble with my...

    Hi Everyone.

    I havnt had any trouble with my plaq. affecting my eyes...BUT.....
    When I was hospitalized for a huge flair, the pumped me full of steroids and as a result of that, my blood sugar...
  25. Hey Isa, Have you tried to use a neti pot? My...

    Hey Isa,

    Have you tried to use a neti pot? My Dr. recommended it when I was getting sinus infections, and since I started using it religiously 3-4 times a week for the past 2 months, I have been...
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