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  1. Gretchen, what part of Tennessee are you in? I'm...

    Gretchen, what part of Tennessee are you in? I'm in Kentucky, but I go to Vanderbilt (Nashville) to see several doctors there. It sounds like you need a thorough workup with a doctor who will take...
  2. Thread: woe is me...

    by MARYCAIN
    Replies
    4
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    1,027

    Bless you, Hasanati, you've been so busy helping...

    Bless you, Hasanati, you've been so busy helping other people, but now you need to take some time for yourself. There are prescription assistance programs available for people with no insurance, to...
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    Sara, it is always safest to reduce your steroid...

    Sara, it is always safest to reduce your steroid dose under your doctor's guidance. I know it must be frustrating when your appointment is so far away. Can you get in touch with the doctor who...
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    Hi, Deanna, and welcome. Sorry to take so long in...

    Hi, Deanna, and welcome. Sorry to take so long in welcoming you, but now that the kids are out of school for the summer, things are a little crazy at my house. :) It's frightening when you are first...
  5. Thread: ANA results

    by MARYCAIN
    Replies
    14
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    3,493

    Marla, you should definitely check with your...

    Marla, you should definitely check with your primary care doctor or your rheumie and be seen. Shortness of breath should always be evaluated by a doctor to make sure it is nothing serious. And if...
  6. You should be able to have the test for...

    You should be able to have the test for anticardiolipin antibodies and antiphospholipid antibodies whether you are in a flare or not. I have both of them, and the levels stay pretty constant whether...
  7. "It's obvious to me that if one suspects that...

    "It's obvious to me that if one suspects that they have lupus, they most likely do have lupus. Doctors will delay making a diagnosis or will misdiagnose. "

    Starryne - if you have gotten that...
  8. When I first started the cytoxan, I was in pretty...

    When I first started the cytoxan, I was in pretty serious multi-organ disease, off work and on dialysis, and I've gone from that to being back to work three and half days a week. It didn't happen...
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    I'm glad it wasn't the plaquenil, but I hope you...

    I'm glad it wasn't the plaquenil, but I hope you are able to find some answers soon. It sounds like seeing a neurologist or an optho-neurologist might be the next step. Please keep us posted on how...
  10. Thread: Bone pain

    by MARYCAIN
    Replies
    5
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    1,276

    Tanya, bone pain can be a side effect of some of...

    Tanya, bone pain can be a side effect of some of the meds, including prednisone. It can also happen with the lupus, or with osteoporosis. But anytime you have bone pain that seems to be focused in...
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    Jody, congratulations on the fund raising! Sorry...

    Jody, congratulations on the fund raising! Sorry you didn't get to walk more, but maybe next year you will. But the fund-raising is whar's so important and I'm glad you did so well with it. We are...
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    Congratulations! That is such good news. ...

    Congratulations! That is such good news. Getting back to a job you love is such a good feeling. You will be in my prayers. :)
  13. Ditto on the tomato soup and grilled cheese -...

    Ditto on the tomato soup and grilled cheese - that was one of my favorite childhood meals. But the tomato soup had to be Campbells back then, none of the other tomato soups would do.

    Kathy, I'm...
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    http://i136.photobucket.com/albums/q168/marycain_p...

    http://i136.photobucket.com/albums/q168/marycain_photo/nocookie.jpg
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    http://i136.photobucket.com/albums/q168/marycain_p...

    http://i136.photobucket.com/albums/q168/marycain_photo/nocookie.jpg
  16. I wish our mockingbirds sang in the afternoon -...

    I wish our mockingbirds sang in the afternoon - their favorite time to serenade us is around 2:00 a.m.! I'm so glad you are happy in the new home.
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    Kathy, the last time I tried to rescue something...

    Kathy, the last time I tried to rescue something from a garbage can, it turned out to be a skunk and I got thoroughly sprayed for my trouble! I'm glad your rescue story has a happier ending. :) I...
  18. Oh, Kathy, bless your heart - I was so hoping...

    Oh, Kathy, bless your heart - I was so hoping things had taken a turn for the better with your daughter. Do you have family or friends who could take her in for a while, preferably somewhere where...
  19. First, go ahead and take a deep breath, then have...

    First, go ahead and take a deep breath, then have a good scream or a cry and let some of the stress out. You are overwhelmed, and with reason, but as Teriod said, this much stress will make your...
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    Skin discoloration is a possible side effect of...

    Skin discoloration is a possible side effect of plaquenil. It can also cause discoloration of your fingernails. Usually it is not serious, but you should let your doctor know about it as soon as...
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    You may be starting to build up a tolerance to...

    You may be starting to build up a tolerance to the pain meds - it can happen, especially with narcotics.

    All the kids are home today - with gas so high, we didn't sign them up for day camp this...
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    Sary, if you use ordinary American table salt for...

    Sary, if you use ordinary American table salt for cooking or anything else, it is supplemented with iodine - so you shouldn't need iodine supplements if you use at least a fourth teaspoon of iodized...
  23. Thread: Orencia

    by MARYCAIN
    Replies
    2
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    1,047

    Hi, Camy - I'm not as familiar with the RA drugs...

    Hi, Camy - I'm not as familiar with the RA drugs as they are not commonly prescribed for lupus. Orencia works by blocking the activation of T-cells, which are a component of the immune system. In...
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    Sary, I think you have to find a healthy balance...

    Sary, I think you have to find a healthy balance between being informed about your illness, and scaring yourself to death by learning about every possible symptom and complication of lupus. And much...
  25. Thread: Alopecia

    by MARYCAIN
    Replies
    5
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    1,010

    Pumpkin, it's really important to protect your...

    Pumpkin, it's really important to protect your hair and your scalp as much as possible - a good quality shampoo with UV protectant, and wearing a hat anytime you are outside, will help protect your...
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