Search:

Type: Posts; User: ladybugs mommy

Search: Search took 0.01 seconds.

  1. Replies
    3
    Views
    620

    hi steve b. you (and saysusie) always have kind...

    hi steve b.
    you (and saysusie) always have kind words for me and i so appreciate that. please know that i may not comment often but i am here and think of everyone often. it's hard for me to type, i...
  2. Replies
    3
    Views
    620

    Lamictal (lamotrigine) anyone??

    hi there everyone! hope all is well..

    i'm wondering if any of you are on, or have been on Lamictal (lamotrigine)? i'm currently on it for seizure control and was on it together with depakote...
  3. thanks everyone. my experience has been that not...

    thanks everyone. my experience has been that not that many (in the lupus community) seem to know about PP, so i really wanted to let people know about it, thinking that maybe it can help others. i do...
  4. PLASMAPHARESIS is somethng to think about...

    hi everyone!

    i've been away for a long while, but am so glad to be back. last year was just horrible healthwise, and LUPUS almost took me out. my seizures were out of control, it was shutting down...
  5. Replies
    17
    Views
    1,441

    hi everyone! it's been a LOOONG while since i've...

    hi everyone!
    it's been a LOOONG while since i've checked in. i've been pretty sick this last year and a half - (i used to visit/participate quite abit under ang192, but had to get new sign in i...
  6. Replies
    15
    Views
    9,635

    hi amanda, i have something similar, but it's not...

    hi amanda, i have something similar, but it's not just my heels, my ankles hurt too. it's crazy, and it doesn't seem to have anything to do with how much i'm standing. lately, it's been moving up my...
  7. Replies
    12
    Views
    1,307

    hi there honniebun i know and understand ...

    hi there honniebun
    i know and understand EXACTLY. just like you, i am passionate about horses, and used to do everything you did. i had not been able to ride at all because my lupus has progressed...
  8. Replies
    4
    Views
    856

    i live in the east bay of the san francisco bay...

    i live in the east bay of the san francisco bay area and while there's a 'local' LFA chapter, it's not near by by any means. they active, have monthly events, but they're not convenient to where a...
  9. Replies
    5
    Views
    865

    we are postponing the plasmapharesis for now and...

    we are postponing the plasmapharesis for now and doing cytoxan/rituxan cycles. just finished first cycle and back for more on the 22nd/23rd. depending on how this goes will determine if we do the...
  10. hey marla thanks! those are some great ideas and...

    hey marla thanks! those are some great ideas and a great place for me to start. i'm getting busy, have started the paperwork required by the state and IRS, have contacted several community spaces...
  11. hey ladies! thanks for the info, and confirmation...

    hey ladies! thanks for the info, and confirmation that this is something that's needed.

    well marla, no, there's nothing really like what i have envisioned. there's the LFNC (lupus foundation of...
  12. thinking of starting a local non profit for sle

    hey everybody!

    hope you're all having a flare free day, week.

    i'm wondering about what types of services, programs, outreach, activities, and support regarding lupus that are available to you...
  13. sending big hugs! yes, i have cns sle and it's...

    sending big hugs!

    yes, i have cns sle and it's not fun, but it gets better. i just had an MRI yesterday and the doctor there missed my port by a country mile so the contrast die when under my...
  14. Replies
    5
    Views
    865

    well, thanks anyway! we're still not sure if i'm...

    well, thanks anyway! we're still not sure if i'm gonna do it or not. my neuro and pulmo, along with dear hubby, really want me to do it. my rheumie thinks i should have another round of...
  15. Replies
    5
    Views
    865

    plasmapharesis anyone...?

    hi there everybody!

    have any of you done plasmapharesis? if so, what were your experiences?

    my neuro wants me to do it, along with a round or two of cytoxan/rituxan and says i'll have to be in...
  16. Thread: Rituxan

    by ladybugs mommy
    Replies
    4
    Views
    1,113

    i've had several rounds of rituxan and it went...

    i've had several rounds of rituxan and it went just fine. i've done both rituxan and cytoxan back to back for several weeks at a time and i much prefer the rituxan. i'd even choose rituxan over...
Results 1 to 16 of 16