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  1. Replies
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    Sticky: It has been some time since I have posted here....

    It has been some time since I have posted here. So many things have changed with my disease that they are not sure what they are going to call it. I was interested to see the comments on the sulfa...
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    Hey Sher! It's hard to say what causes it...

    Hey Sher!
    It's hard to say what causes it exactly. I know when I was on a higher dose, I could eat all day and never feel full. I also retained a lot of water, I looked puffy all over...or it...
  3. Hi Debbie, You and your family are in my...

    Hi Debbie,
    You and your family are in my prayers! Try to only concern yourself with what you can change. We are all praying for you!!

    M
  4. Thread: Hello! =)

    by MLockwood
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    1,393

    Hi Shannon, Welcome to WHL!!! Sorry you need...

    Hi Shannon,
    Welcome to WHL!!! Sorry you need to be here, but you have found a great group of supporters!! I just started that same medication and it can take up to 2 months before you notice...
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    I have learned so much from everyone here! As...

    I have learned so much from everyone here! As someone who comes and goes, I am not cheating on WHL, I just don't always get on this site. Probably due to denial! Although I have not been...
  6. Thread: Plaq

    by MLockwood
    Replies
    16
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    1,706

    Hi Andrea, I started the same medication about...

    Hi Andrea,
    I started the same medication about 8 weeks ago or so. I have started to see some improvment in my energy level and some days my level of pain. It did affect my stomach a bit thought....
  7. Thread: Uctd

    by MLockwood
    Replies
    5
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    1,162

    Thanks for the information. I have only been to...

    Thanks for the information. I have only been to see my Rhuemy twice, I will obtain a 2nd opinion if things are not getting better by my next visit. Her suggestion at that point was to start a med...
  8. Thread: Uctd

    by MLockwood
    Replies
    5
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    1,162

    Uctd

    I went back for my 3 month visit yesterday and the Rheumy diagnosed me with undiffereniated connective tissue disorder? I have done some research, but it really feels like they are really not sure...
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    I am confused

    Is it normal with this disease to feel really crappy for a few days, then feel great for a few days...then it starts all over. I am so confused....
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    1,988

    Hi there again! There are so many things you...

    Hi there again! There are so many things you can try. I have some facial hair as well and I use a product from a beauty supply shop. It's Gigi facial hair removal. I am not sure how it will work...
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    Hi Angel, I have experienced this as well. I...

    Hi Angel,
    I have experienced this as well. I have never known why they are that way. Mine are very thin at the tips and peel. Could be one of those symptoms that we didn't realize was a side...
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    Debbie, You are never alone on this site. I...

    Debbie,
    You are never alone on this site. I know I feel the same way when I read posts too. I think Lupus is like a box of chocolates......when you wake up you never know what you're gonna get!!...
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    I have found that in some cases, they really are...

    I have found that in some cases, they really are 'practicing" medicine........It's like a hairdresser or a gyno......you just keep looking till you find one YOU are comfortable with....
  14. Thread: Loopie!

    by MLockwood
    Replies
    15
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    1,242

    Hi Tamy! Welcome to this site!! Although I am...

    Hi Tamy!
    Welcome to this site!! Although I am so sad that others are going through some of the same stuff as myself, it comforts me to know I am not alone. I am not nearly as well versed as...
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    Hi Amber, Welcome to this website! You and I...

    Hi Amber,
    Welcome to this website! You and I have the same thing going except I am 33 rather than 23! My ANA test is positive but my RA tests were negative and my doc has not diagnosed me with...
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    I am not on any medication at this time. Well,...

    I am not on any medication at this time. Well, except Aleve for my joint pain in my hands....so it's not the prednisone..who knows. maybe we'll catch it on it's next visit....:wacko:
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    What is wrong with me!

    I got my love letter from the Rheumy today. Basically my test was inconclusive. I had pneumonia back in July and she doesn't know if the joint pain was caused by the pneumonia, or I got the joint...
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    Awh Jane, Sorry to hear about your experience....

    Awh Jane,
    Sorry to hear about your experience. Great job sticking up for what you knew was right for you and your body. I am not sure I would have the guts to speak up to a doctor. Maybe you can...
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    Oluwa! Ok, I will get those ranges put up. ...

    Oluwa!
    Ok, I will get those ranges put up. No she did not wean me off the prednisone, I weaned myself off it based on what I read and what others I knew had experienced. I am not big on taking...
  20. Thread: Finally !!!

    by MLockwood
    Replies
    10
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    1,157

    Welcome Rose! I am new to this site as well. I...

    Welcome Rose! I am new to this site as well. I am finding a lot of comfort in numbers and the folks here have so much knowledge. Feel free to reach out to me anytime! I am not good with the facts...
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    I am currently on Piroxicam (sp) and Tylenol. I...

    I am currently on Piroxicam (sp) and Tylenol. I am due for more tylenol and will take that. Thanks for your help!! I will call right away.
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    Hi Kathy, Hopefully you'll get some answers...

    Hi Kathy,
    Hopefully you'll get some answers soon. I will keep you in my thoughts!
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    Somebody help!

    Today is not a great day. My prednisone was done on Tuesday and the very next morning I woke up and could feel the pain and stiffness coming back into my shoulders, hands, wrists, and fingers. I...
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    I was able to bounce out of bed again today!!! ...

    I was able to bounce out of bed again today!!! Minimal pain, not too tired...almost went to the gym...almost!!!!
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    Thanks everyone!!! I am feeling good again today...

    Thanks everyone!!! I am feeling good again today so that is bonus! Just really tired, but I can live with that!!

    I will get my lab results posted. I am not sure how to even read them, but I...
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