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  1. Wow, Cindi, you went from an 18 to an 8. That...

    Wow, Cindi, you went from an 18 to an 8. That took a lot of hard work and determination. Better yet, you got off of BP and diabetic medicine. That is so encouraging.

    I see you used the Aitken's...
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    Thanks for the suggestion not to overdo. I tend...

    Thanks for the suggestion not to overdo. I tend to swing from nothing to doing everything and back again. I am still trying to learn the art of pacing myself. I think I am a slow learner.
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    Hi Leeann, it sounds like your doctors have got...

    Hi Leeann, it sounds like your doctors have got you into the revolving door. I told my rheumy that I felt like that was what was happening to me. So he promptly sent me to another specialist and back...
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    Doctors decide what they are going to focus on...

    Doctors decide what they are going to focus on (or not) in the 1st couple of minutes. It is important to prioritize.

    I have problems with communicating with doctors too. With autoimmune disease,...
  5. My goal today is to take a walk outside. The sun...

    My goal today is to take a walk outside. The sun is out and it is in the 60's. I have been cooped up for a week and need to start getting my strength back.

    I just came back from my walk and it was...
  6. Thread: PICC Line

    by elizabeth
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    Sounds like an awful lot to have at one time. I...

    Sounds like an awful lot to have at one time. I hope the meds help you get better.

    Soft hugs, Elizabeth
  7. Thread: PICC Line

    by elizabeth
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    It may limit your arm movement a little, just...

    It may limit your arm movement a little, just because you want to protect it. I would choose my non-dominant arm for placement. Otherwise, you can move the arm freely.

    Does it hurt? I have never...
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    That sounds like a great weekend. Nothing like...

    That sounds like a great weekend. Nothing like live music to cheer you up. Enjoy!
  9. Thread: PICC Line

    by elizabeth
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    I have never had a PICC line, but I have taken...

    I have never had a PICC line, but I have taken care of a lot of them. The major thing is to maintain the cleanliness to prevent infection. The nurses should teach you how to care for it.

    Are you...
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    Wow! I am finally free of the headache. I guess...

    Wow! I am finally free of the headache. I guess the blood patch worked. Thanks for listening to me whine through it.

    I don't think I'll do any more lumbar punctures.
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    Sorry to hear you are not sleeping well. I tend...

    Sorry to hear you are not sleeping well. I tend to sleep in stages a lot of the time. Pain makes getting a good night's rest almost impossible. I do use a prescription med to sleep, otherwise I...
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    I had the blood patch today. No instant relief....

    I had the blood patch today. No instant relief. I've been laying flat again all day and drinking a lot of fluids. The doctor said it works for 90% of people and I should see relief by tomorrow.
    ...
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    I just called my doctor to see if it was ok to...

    I just called my doctor to see if it was ok to try and outlast the headache and nausea from the lumbar puncture. She said no, it meant I had a spinal leak and I need to get a blood patch to stop it. ...
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    How are you doing, WantItGone? I had similar...

    How are you doing, WantItGone? I had similar problems and it turned out to be my gallbladder. There are so many things it could be. I hope you get an answer soon.
  15. I have buzzing/tingling down my left leg. It...

    I have buzzing/tingling down my left leg. It comes and goes. It doesn't hurt and that makes it less of a concern for me. I also have major areas of numbness too.
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    I have word finding problems too. My husband's...

    I have word finding problems too. My husband's mother died of Alzheimer's a few years ago. She would always say "you know" for words she couldn't think of. Now, I am doing the same thing.

    People...
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    Thanks smokerscat and moutaindreamer. It is going...

    Thanks smokerscat and moutaindreamer. It is going on 5PM here and I am finally feeling an easing up of the headache and nausea. I am still using meds for both, but at least they are helping now.

    I...
  18. Thread: Update!

    by elizabeth
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    Hi, smokerscat, I am sorry to hear you are in so...

    Hi, smokerscat, I am sorry to hear you are in so much pain. I hope the flare eases up pretty soon. I hope you have a good support system to get you through the worst of it.

    I honestly did not...
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    Hi everyone. Thank you all for the responses and...

    Hi everyone. Thank you all for the responses and concern show. I had the LP yesterday and it went ok, but I got the headache associated with the procedure. I have been laying flat and drinking lots...
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    Suspected Lupus

    I have been diagnosed with RA for a few years, but now it seems more is going on. My ANA is 1/320 and the doctor is talking about lupus.

    Is that level of ANA likely to be lupus? I am actually...
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