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Type: Posts; User: jennyjo

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    Lupus remission...

    Hi all, Can anyone say how long a remission can last? Anyone achieved a long remission?

    :cute:
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    KimKum, Yes, I developed symptoms approx at 8...

    KimKum,
    Yes, I developed symptoms approx at 8 mths preggo.. but they really kicked in postpartum ,, about 3 mnths postpartum. Funny thing is that my first pregnancy and postpartum was fine. Weird...
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    Hi Tim,, check your inbox.. I sent you an...

    Hi Tim,,
    check your inbox.. I sent you an personal message.. welcome =)
  4. Thread: Onset

    by jennyjo
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    Onset

    Can lack of eating and sleeping cause lupus? I was really rundown after the birth of my baby and thats when lupus symptoms started to begin with. Any ideas? Thx!
  5. Thread: Regrets?

    by jennyjo
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    Regrets?

    Do any of you have regrets about what may have brought on your lupus? Like do you look back at the possible trigger which caused it and wish you had done things differently? I was very stressed and...
  6. Thread: Diet

    by jennyjo
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    Diet

    Hi ya'll ! I wanted to share with you a book which has made a HUGE difference in the way I feel in relation to the lupus. The book is called "The Lupus Recovery Diet" I have incorporated many of the...
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    Postpartum lupus?

    I would like to hear from other women who were first diagnosed with lupus during or soon after their pregnancy. I started showing symptoms about 3 1/2 months postpartum, second pregnancy. What...
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    Plaquenil caused me to loose a little weight.. I...

    Plaquenil caused me to loose a little weight.. I think it is because it caused me to have looser bowels then usual and I found that I went to the bathroom more then before I went on it.
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    Debbie, Best wishes to you and your sister.. we...

    Debbie,
    Best wishes to you and your sister.. we will be hoping for your calmness.. take care of you! We will be thinking of you ;0
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    Hi Sandy, I am sorry you are entering through...

    Hi Sandy,
    I am sorry you are entering through this rough patch,... it will get easier and smoother.. I promise. Just as most rough times do! Pamper yourself and take care of YOU as much as you...
  11. Hooray!!! Congrats..

    Hooray!!! Congrats..
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    HI, Have you tried Plaquenil? That is supposed...

    HI,
    Have you tried Plaquenil? That is supposed to help with fatigue.. If you have lupus, I wouldn't recommend caffeine, so perhaps try moderate exercise.. maybe taking a walk or going to the gym...
  13. Thread: I'm sad

    by jennyjo
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    I'm sad

    So the reality of Lupus continues to sink in my head and makes me very angry. I just cannot figure out why me? Nobody understands how hard of a reality this is for me. I started showing symptoms 2...
  14. Thread: Vitamins?

    by jennyjo
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    I take Womens One a Day.. I know they also sell...

    I take Womens One a Day.. I know they also sell Omega 3 suplmt,.
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    Anyone from Nevada or California?

    Just looking for anyone with lupus from Nevada or California...:cute:
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    Ugh.. maybe try and call your doc first thing tom...

    Ugh.. maybe try and call your doc first thing tom when they open and let them know what is going on with you.. in the meantime try to rest as much as you can... hope it gets better xx
  17. Great info Rickety! Thanks for sharing. You...

    Great info Rickety!
    Thanks for sharing. You have earned a MD in my book..! Great to be your own advocate. I guess in the longrun we all have to fight for our own causes..
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    Hi Maryjane.. Sorry for your frustration.. I am...

    Hi Maryjane..
    Sorry for your frustration.. I am sure you are exhausted:wideeyed:.. Yeah it would be nice if docs could figure out fibro vs lupus. I was told by one rheumy that I had abnormal labs,...
  19. Thread: Inevitable?

    by jennyjo
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    Inevitable?

    I have read all the possible health situations which can happen and am just starting to think that living a full life span with lupus is really not reality? Correct me if I am wrong. It just seems...
  20. Thread: Dealing

    by jennyjo
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    Dealing

    How do you all deal with having SLE? Do you think about it all the time and wonder what's happening inside of your bodies? How do you shake being scared?
  21. Thread: Sunshine..

    by jennyjo
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    Sunshine..

    Do many of you get depressed that you are unable to do things out in the sun? Boating, skiing, swimming, gardening? Are there ways around any of it? Did not being able to do these things cause you a...
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    Hi Sandy, Hope you feel much better soon.. lots...

    Hi Sandy,
    Hope you feel much better soon.. lots of rest!
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    Re: waiting results?

    How do you all stay sane while awaiting any test results? Does it freak you out?
  24. Postive things which have resulted in your SLE diagnosis

    Happy Sunday everyone,
    I thought it would be interesting for all of us to think about any positive attributes that the "Lupie" has made in our lives. I thought it would be encouraging for others to...
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    I hope you feel better soon.. stay on your meds...

    I hope you feel better soon.. stay on your meds and get plenty of rest ;0 We will all be thinking of you and wishing you a speedy recovery, love..
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