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    i've been on cellcept (2500 mg/day) for 15...

    i've been on cellcept (2500 mg/day) for 15 months.. but i expect my rheumatologist to start reducing the dossage the next time i see her.. it took about 6 months to work, but since then my symptoms...
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    i just had the same thing about 2 months ago......

    i just had the same thing about 2 months ago... it was shingles... it's been 8 weeks and i'm still not over it
  3. i echo chriss's comments... i've told family and...

    i echo chriss's comments... i've told family and friends that i have lupus, but i don't really talk about it much.. basically, i don't think people want to hear about my problems and once you start...
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    i've done the waxing thing, although sometimes my...

    i've done the waxing thing, although sometimes my skin is too sensitive for that (i.e., the skin comes off WITH the wax)... also have done "threading" (more common in the middle east and india)......
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    dude! really sorry to hear about the TN attack.....

    dude! really sorry to hear about the TN attack.. i can only imagine the fear you must be living with... sending positive thoughts your way..

    if it's any consolation, my former father in law is a...
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    basically, sinus tachycardia is when your heart...

    basically, sinus tachycardia is when your heart beats too fast for a given level of exertion... for instance, i have to get up in the night several times to pee.. and with the minimum amount of...
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    ok.. so i officially have "sinus tachycardia",...

    ok.. so i officially have "sinus tachycardia", but apparently it's not severe enough to treat.. cause unknown... gave a blood sample to test for thyroid function... results in a few days...
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    me, too... crazy dreams.. and very vivid......

    me, too... crazy dreams.. and very vivid... sometimes i wake up and think, my god that was the weird... i should start writing this stuff down..
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    thanks for the kind words... going to the...

    thanks for the kind words... going to the rheumatologist tomorrow so maybe i'll get some indication then..

    the silver lining here is that i've stopped taking prednisone... was on a very low dose...
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    Does anyone have Graves?

    well just when my lupus symptoms were starting to improve, i started experiencing some new symptoms...dry cough, ticklish feeling in throat, weight loss, frequent trips to the bathroom, irritated...
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    i don't have the butterfly rash and so far (knock...

    i don't have the butterfly rash and so far (knock on wood) have never had any skin involvement... just joints, eyes, Raynaud's...
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    actually yes... just had my blood tested a couple...

    actually yes... just had my blood tested a couple of months ago.. everything was normal except the ds DNA antibodies... still quite elevated at 25 (down from 75 a few months ago)
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    hi.. my eyes have gotten a little better,...

    hi.. my eyes have gotten a little better, thanks.. they still have alot of redness, but it's not extremely noticable now.. in the meantime, i've developed a chronic cough and can hear my heart...
  14. can i ask what were your first symptoms??

    can i ask what were your first symptoms??
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    Poll: i lost weight.. both before prednisone and...

    i lost weight.. both before prednisone and after.. lost 7 or 8 pounds before I finally stablized at about 120lb (i'm 5ft 7in and a tad on the skinny side now.. this would have been a dream for me at...
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    Enbrel for SLE?

    my rheumy is considering switching me from my current cocktail of cellcept, prednisone, plaquenil, and mobic... to enbrel... primarily because my eyes (episcleritis) is not responding...

    is...
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    i have been on cellcept since February and just...

    i have been on cellcept since February and just refilled with the generic cellcept about 3 weeks ago... as far as I can tell, it's working just like the brand name did..
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    i try to eat a non-inflammatory diet and it seems...

    i try to eat a non-inflammatory diet and it seems to help.. bought a book called "the inflammation free diet plant" as a guide.. there is also a website that lists the inflammatory index of various...
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    On the Today show this morning, Deepak Chopra,...

    On the Today show this morning, Deepak Chopra, medical doctor, author, and friend of Michael Jackson was interviewed. He mentioned that Michael had vitiligo, an autoimmune disease, as well as lupus....
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    I'm the first in my family to be diagnosed with...

    I'm the first in my family to be diagnosed with lupus. But autoimmune diseases seem to run in my father's side of the family.. I had a great uncle with RA and an aunt with scleroderma. And I have a...
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    Belimumab

    Is anyone here involved with the Phase 3 trials of Belimumab.. the new lupus drug being texted by Glaxo?
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    Not sure if this is significant, but the day I...

    Not sure if this is significant, but the day I started taking prednisone for lupus was the first day of my last menstual period. It was in January this year, and I have not had a period since.

    I...
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    i also have lupus hot flashes, but i'm 52 and...

    i also have lupus hot flashes, but i'm 52 and have menopausal hot flashes, too.. the menopausal hot flashes are less frequent but more intense...

    so i go hot, cold, hot, cold, REALLY HOT, cold,...
  24. what r the symptoms of kidney involvement?

    will you get lower back pain or painful urination or any symptoms if lupus attacks your kidneys?
  25. Lucy in the sky with diamonds

    http://new.music.yahoo.com/beatles/news/real-lucy-in-the-sky-with-diamonds-gravely-ill--61989942

    Also in the UK... and has lupus...
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