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    That was a beautiful story and thank you so much...

    That was a beautiful story and thank you so much for sharing it with us. Reminds me of something that I read..When God hears our plans, he laughs and then blesses us with his!

    Congratulations of...
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    I see that you have not had a response to your...

    I see that you have not had a response to your question. As such, I would suggest that you discuss your dosage with your doctor. Please let us know what you and your doctor decide.

    Peace and...
  3. Unfortunately, we are not doctors and cannot...

    Unfortunately, we are not doctors and cannot speak to what your issues might be, could have been, or could possibly be. You are being seen by an oncologist and a rheumatologist..those are the best...
  4. Thread: fibro

    by Saysusie
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    52

    OMG!! she said that she doesn't treat Fibro???? ...

    OMG!! she said that she doesn't treat Fibro???? unbelievable as that falls directly under her expertise given the fact that you have Lupus. Why would she treat one but not the other when the...
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    Did you go to the doctor or ER? If so, what was...

    Did you go to the doctor or ER? If so, what was he prognosis and what treatment was prescribed? Most importantly, how are you doing?

    Peace and Blessings
    Namaste
    Saysusie
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    Sticky: Lab Tests To Diagnose Lupus

    Laboratory testsBlood and urine tests may include:

    Complete blood count. This test measures the number of red blood cells, white blood cells and platelets as well as the amount of hemoglobin, a...
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    This is from the Lupus Foundation's Website. I...

    This is from the Lupus Foundation's Website. I hope that it is helpful to you.
    Laboratory testsBlood and urine tests may include:

    Complete blood count. This test measures the number of red...
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    I'm not sure how your doctor feels that Plaquenil...

    I'm not sure how your doctor feels that Plaquenil was at the root of your infections? Plaquenil does not suppress the immune system. Even if, for some reason, the drug made you prone to infections,...
  9. Thread: lyme disease

    by Saysusie
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    Your round of antibiotics should be over by now. ...

    Your round of antibiotics should be over by now. How are you feeling?

    Peace and Blessings
    Namaste
    Saysusie
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    Be careful with the Claritin D..it made my...

    Be careful with the Claritin D..it made my sister's hair fall out *yikes*

    Peace and Blessings
    Namaste
    Sayusie
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    Our County Faire is here also. But, there is no...

    Our County Faire is here also. But, there is no one appearing that I'm interested in seeing. :-(

    Peace and Blessings
    Namaste
    Saysusie
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    Hello and Welcome Jeannette: I'm sorry to hear...

    Hello and Welcome Jeannette:
    I'm sorry to hear that he Plaquenil has caused some damage to your eyes. However, I'm glad that some of the damage can be reversed. Has your doctor spoken with you...
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    Hello, Thank You, and Welcome Samantha :-) ...

    Hello, Thank You, and Welcome Samantha :-)

    Peace and Blessings
    Namaste
    Saysusie
  14. Hello and welcome to our WHL family. Like many...

    Hello and welcome to our WHL family. Like many of us here, your symptoms go back many years and were surrounded by unanswered questions and a lack of a clear and concise diagnosis. Unfortunately,...
  15. Thread: Saying Hello

    by Saysusie
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    Hello Debra; Welcome to our WHL family. I am...

    Hello Debra;
    Welcome to our WHL family. I am glad that you are here. Please make yourself at home and join in on any conversation that you like. We are here to help in any way that we can.
    ...
  16. Hello and welcome to our family. Like many of...

    Hello and welcome to our family. Like many of us, you have been able to identify many of your previous symptoms, even from childhood, as probably being caused by Lupus. Once I was diagnosed, I...
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    A timeless article then and still very relevant...

    A timeless article then and still very relevant now! Thanks again Steve :-)

    Peace and Blessings
    Namaste
    Saysusie
  18. Also, once the Plaquenil does start working and...

    Also, once the Plaquenil does start working and you begin to see and feel its effects, most say that it works very well for them on a number of symptoms. If you find that it does not do the same for...
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    Hello RIDETHEBEST; Welcome to our family! I...

    Hello RIDETHEBEST;
    Welcome to our family! I am so sorry for your losses which, I am sure, are nearly unbearable. I lost my daughter (the inspiration for this site) to Lupus, so I understand - in...
  20. Thread: Hi All

    by Saysusie
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    Hello and Welcome to our family; I am sorry to...

    Hello and Welcome to our family;
    I am sorry to hear that you are dealing with so much. But it sounds as if you have a good plan for managing what you can manage. Many of us have had to...
  21. Thread: Hi everyone!

    by Saysusie
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    Hello and Welcome MsGivingTree: It is...

    Hello and Welcome MsGivingTree:
    It is wonderful that, amidst all of the autoimmune issues that you have, you have found an activity that brings you joy while, at the same time, saves the lives of...
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    Remember, this chemo medication is at a dose...

    Remember, this chemo medication is at a dose much, much lower than that used for cancer patients or for organ transplant patients. So, while you may experience some side effects, they will not be...
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    Hip Hip Hoooray!!!! I am so happy for you and,...

    Hip Hip Hoooray!!!! I am so happy for you and, yes, your ex-boss deserves this kick in the teeth!! YIPPPEEE

    Peace and Blessings
    Namaste
    Saysusie
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    Hello Megan; Welcome to our family. I am...

    Hello Megan;
    Welcome to our family. I am sorry to hear that you have this disease, but so glad to hear that you have a doctor who is primarily concerned with treating your symptoms and helping...
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    Lupies and Summer Precautions!

    Hello Family;
    Every summer, I post a thread about how we must protect ourselves during the summer months. Well, it is that time again and I must reiterate that we must be VERY CAREFUL during...
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