Search:

Type: Posts; User: SugarSnit

Search: Search took 0.01 seconds.

  1. Replies
    13
    Views
    3,281

    My neurologist told me that THOUGH some times my...

    My neurologist told me that THOUGH some times my anti-seizure medication can cause birth defects it is rare and it is worth the risk to avoid the seizure causing harm... *hugs* I am SO SORRY that...
  2. Replies
    13
    Views
    3,281

    I guess it would help me to know how long you've...

    I guess it would help me to know how long you've been seeing each doc and how old you are... I had to go to THREE rheumys before I got good care... and then I had to go to 3 neurologists too... and...
  3. Replies
    13
    Views
    3,281

    Hey- I have Lupus SLE but it has hit the lining...

    Hey- I have Lupus SLE but it has hit the lining of my brain and caused me to have seizures. I do not have "epilepsy" per se, but you have to be treated for seizure disorder in the same way that you...
  4. Replies
    6
    Views
    1,287

    Yes! I get these all the time! I never used to...

    Yes! I get these all the time! I never used to know they were a symptom of anything until I read more about them. I still don't REALLY know what it means. I do know that now that I'm in treatment I...
  5. Thread: Thyroid

    by SugarSnit
    Replies
    8
    Views
    1,156

    Thank you so much Nonna! I'll see my endo...

    Thank you so much Nonna! I'll see my endo tomorrow and see how it goes. It makes sense that one AI can go hand in hand with others. *hugs* on your thyroid and glad you seem to have it controlled...
  6. Thread: Thyroid

    by SugarSnit
    Replies
    8
    Views
    1,156

    Thyroid

    Anyone out there suffering from thyroid issues? Mine was fine and then Friday I got a call from my doctor who told me it looks like I now have a new thyroid disease... like lupus has begun hitting...
  7. Thread: Cellcept

    by SugarSnit
    Replies
    8
    Views
    2,423

    I'm still just starting cellcept so I'll let you...

    I'm still just starting cellcept so I'll let you know what I find out about it. *hugs* hang in there.

    Plaquenil was also really rough for me... But I've been battling constipation... I'd...
  8. Replies
    3
    Views
    1,175

    Savella is considered a GREAT medication for...

    Savella is considered a GREAT medication for fibro AND if you have lupus, savella also has good tolerance for fatigue and pain. I can see your doc being conservative until more testing is done. One...
  9. Thread: disability

    by SugarSnit
    Replies
    8
    Views
    3,840

    Hey Faith and Angel Oliver, good luck with...

    Hey Faith and Angel Oliver,

    good luck with your hearings!

    My hearing was uneventful and the judge ruled in my favor. I didn't do anything but let my atty handle everything.

    I'm still...
  10. Replies
    8
    Views
    3,188

    Thank you so much Angel Oliver. *hugs* I...

    Thank you so much Angel Oliver.

    *hugs*

    I try hard to use humor and de-stressing venues. Last night I realized that NO ONE of my "healthy" non-lupie friends was going to "get it." And it was...
  11. Replies
    8
    Views
    3,188

    Thanks. I slept on it and realize that at this...

    Thanks. I slept on it and realize that at this point I might just need to ask for more help. I'm really sick and my neurological cns is getting hit - so I'm having a hard time dealing with my own...
  12. Replies
    8
    Views
    3,188

    A Little Venting

    None of my healthy friends understand. Please - I'm only venting here - it's negativity - and you don't need to read... ugh. Just need to get this out.

    I made less in ONE YEAR than my ex makes...
  13. Replies
    25
    Views
    5,127

    I've only been on the drug for a month - so let...

    I've only been on the drug for a month - so let me get back with you after a few more and let you know how its affecting me. Hope that things are ok-- but I'd still go to the doctor... it might NOT...
  14. Big hugs all around. I deal with lupus that...

    Big hugs all around.

    I deal with lupus that has hit my CNS... I have lots of neurological issues such as seizures and visual implications etc. I dont have much to add that others have imput...
  15. Thread: New lupie

    by SugarSnit
    Replies
    5
    Views
    918

    Hi Batya, I'm new here as well! We can cheer...

    Hi Batya,

    I'm new here as well! We can cheer each other on and learn the community together.
    Welcome!
    -Melissa
  16. Thread: New Member

    by SugarSnit
    Replies
    3
    Views
    1,058

    Hello Thornagold, I'm a new member myself but...

    Hello Thornagold,

    I'm a new member myself but have found this to be a welcoming and warm place!

    Love and light!
    Melissa
  17. Replies
    6
    Views
    1,096

    Thanks for posting your background. I've been...

    Thanks for posting your background. I've been pouring through here and in other places looking for iv /liquid cytoxan and how it went. I'm sorry you're still dealing with it -- but I'm glad you're...
  18. Anyone have advice or information on liquid cytoxan?

    Hello-

    reading over some of your posts on other medications has been SO helpful. I'm very grateful to have found this site! I see that a few of you have had good experiences with cytoxan. Do...
  19. Replies
    15
    Views
    4,623

    Thank you all for discussing this. My doctor is...

    Thank you all for discussing this. My doctor is starting me on cytoxan, which is not the same, but is similar. I've been somewhat concerned- but after reading this - and doing other research and...
  20. Replies
    5
    Views
    866

    I am of no help here but am also interested as...

    I am of no help here but am also interested as I'm awaiting a similar treatment starting in march. Brand new to the boards but not to being sick. Chin up and much love and light!

    Love and Light!...
  21. Replies
    5
    Views
    880

    Hello- New Lupie On the Block

    Hello everyone. I've been reading this for a while and thought I'd introduce myself. I'm learning about lupus as I go. I've been diagnosed with sle but it's also hit my cns so I have lots of...
Results 1 to 21 of 21