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Type: Posts; User: Leaniebean

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  1. headaches, migraines, and headaches.....

    In the past I have suffered from migraines and they were GOD awful..... they died down for a very long time and here lately they have reared their ugly little head. I can usually take some excedrin...
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    hi Jamie and welcome to the board, I haven't been...

    hi Jamie and welcome to the board, I haven't been on in a while... ( thanks to the healthcare reform ) my job is requiring so much more from me than I can give. I believe it is causing my flare up...
  3. Wow I am sorry to hear that it is so tough out...

    Wow I am sorry to hear that it is so tough out here. Have you heard anything from the project assistance. And not one is accepting new patients? Where are you located at? A pcp can start your...
  4. Good luck with that and hopefully the plaquenil...

    Good luck with that and hopefully the plaquenil benefits you some. It may take a few weeks before you start to feel the effects
  5. Laughing at the Walmart experience. I JUST did...

    Laughing at the Walmart experience. I JUST did that during my lunch break lol it took a little whe for me to figure it out. Yes it seems like the fatigue never goes away it has gotten a lot better...
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    Yes you know when I knew it was a possibility I...

    Yes you know when I knew it was a possibility I took the idea of SLE very hard but now that I have the official diagnosis I am not as scared. I have actually embraced it and am relieved to know so...
  7. I was fortunate enough to be able to purchase an...

    I was fortunate enough to be able to purchase an individual policy before I realized what was going on. Unfortunately my plan sucks I have a high deductible plan. I am a healthcare reform agent...
  8. Not being medically trained I am not sure. It...

    Not being medically trained I am not sure. It sounds to me as though possible variants or in some cases it could very well be you're dropping because of possible lupus activity. It's so hard to tell...
  9. Well from what I know that test belongs to the...

    Well from what I know that test belongs to the complement family CH50 and when those test are low they are indicators for SLE and issues with kidneys etc. your Rheumy should not have ruled you out as...
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    Lol that is a great idea better yet EXCELLENT...

    Lol that is a great idea better yet EXCELLENT idea I will lean on that to convey my point
  11. Thread: Hi & Help

    by Leaniebean
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    It just magically grew back. I can't explain it...

    It just magically grew back. I can't explain it because it doesn't make sense. This time last year my hair was thin and barely in my chin area. Now my hair is thick and almost to the middle of my...
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    Sticky: I really believe so because my migraines where...

    I really believe so because my migraines where beyond horrible. Once they started treating me last year my migraines went away. I haven't had my medicine in a month and I have had horrible migraines...
  13. Thread: new here

    by Leaniebean
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    Yeah I here ya.... But on a positive note...

    Yeah I here ya.... But on a positive note sometimes my flare fatigue is the best sleep I have ever had
  14. I have many of those symptoms while the others I...

    I have many of those symptoms while the others I have never heard of being related to SLE. The sensitive digestive track makes a lot of sense to me though. Are they looking at any other AI disease?...
  15. Thread: Hi & Help

    by Leaniebean
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    I believe that I had lupus before my pregnancy. I...

    I believe that I had lupus before my pregnancy. I had rashes, lesion, fatigue horrible migraines and hair loss. Well after I had my daughter things became worst with weight loss, bone pain, limb...
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    Oh YEAH lol

    Oh YEAH lol
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    I hope your pcp is a good doctor and runs the...

    I hope your pcp is a good doctor and runs the much needed test they should request an ANA panel first lol and if they do see if you can get a C4/ C3 complement ran as well so you don't have to keep...
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    Hey no I ment that my previous dr was the one u...

    Hey no I ment that my previous dr was the one u didn't like. I didn't like the fact that he only ran an Ana panel (which was high; 1:640 he ran a C4 compliment it was low and a cmp) and left it at...
  19. Thread: Any advice

    by Leaniebean
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    I am trying to do that and not over react. How...

    I am trying to do that and not over react. How old was your daughter when you found out she had it? I am scared that I passed it to her during pregnancy I've been showing signs of it since I was 17
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    Hey Maisie I just read your post. How did you...

    Hey Maisie I just read your post. How did you feel when they told you they believe you have had lupus since 1985? Did memories of random rashes and hives and pains flood your brain? I wish you the...
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    I will keep you posted and thank you so much for...

    I will keep you posted and thank you so much for your advice. I was very confused about his statement. I am monitoring the pain versus stressing over it. It doesn't seem to be a consistent problem,...
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    Hey Kim, I will be praying for the best for you...

    Hey Kim, I will be praying for the best for you and your family.
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    Question about SLE and kidneys

    Hey my last Rheumy told me that with SLE, if it doesn't start with kidney issues then they won't develope later. I haven't had any problems in the past but now I am starting to feel some pains in...
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    Sticky: Love this idea.... My new dr in Louisville Ky her...

    Love this idea.... My new dr in Louisville Ky her name is Rachel Chase she's knows her stuff, is very thorough not a big talker gets to the point
  25. Thread: Any advice

    by Leaniebean
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    Hey so sorry for the late replies. I did not find...

    Hey so sorry for the late replies. I did not find out the dr doesn't want to run a test and I am certain it was a lesion but I won't stress it I just try to promote a healthy immune system for her....
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