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  1. Thread: Benlysta

    by Phoenix2369
    Replies
    5
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    555

    Hi! I was actually logging on today to ask a...

    Hi! I was actually logging on today to ask a similar question of the group. My doctor just mentioned Benlysta to me today at my appointment.

    I've had a lot of success with the methotrexate and...
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    I unfortunately also don't have any personal...

    I unfortunately also don't have any personal experience either. However, I recently asked my doctors about the plaquenil and pregnancy and he said it wasn't a huge risk. I'm assuming if he was so...
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    Pregnancy and medications.

    Hi everyone.

    I was wondering if anyone had gone through a pregnancy still taking their daily medications and what if any complications they saw from that.

    l suspect that I may be pregnant. I...
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    I do link fatigue and tiredness to the same...

    I do link fatigue and tiredness to the same source although I know I should not as they are different.

    I can deal with the sleepiness. I cannot however deal with the body aches and pain. The...
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    Silly iPhone. Sorry for the double post. :)

    Silly iPhone. Sorry for the double post. :)
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    Fatigue, how do you manage?

    Hello Everyone!

    I recently had a flare from my SLE and ofcourse went to a few doctors. Apparently I now have fibromyalgia too. Yippie. So I haven't been sleeping well. Real fit full. I go from...
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    I dunno. But if my doctor ever looked at me and...

    I dunno. But if my doctor ever looked at me and told me I could only take a certain medication that I didn't particarly like after he diagnosed me with something so huge I'd shop around.

    I've...
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    Cellcept? So they plan on giving you a...

    Cellcept? So they plan on giving you a transplant? Or are they using it to see if it will stop your immune system from fighting the good parts?

    You must let us know how it turns out.

    I wish...
  9. Mica, I'm pretty sure we've all felt like this...

    Mica,

    I'm pretty sure we've all felt like this at one point in time. I know I myself throw frequent pity parties and have a good shower cry. (where I cry in the shower so no one can hear me)
    ...
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    I've been having similar questions about the pain...

    I've been having similar questions about the pain medication.

    Sadly, the plaquenil isnt always enough by itself. I was taking the NSAIDs that mostly everyone mentions. I was then prescribed the...
  11. Thread: Bumps

    by Phoenix2369
    Replies
    3
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    506

    I get these. ALL OVER. Before I was...

    I get these.

    ALL OVER.

    Before I was diagnosed, I was seeing a dermatologist and she actually cut some out to biopsy. Nothing. She said it was mainly scar tissue

    I get them in strange areas....
  12. To pain pill or not to pain pill...that is the question.

    I've noticed recently that in my daily morning grab for all my medications I automatically grab the tramadol and pop one along with everything else.

    I'm scared that if I miss a dose the aches I...
  13. Lol. This made me giggle. I feel the same as...

    Lol. This made me giggle.

    I feel the same as the others. I take as many things at once as I can swallow. The morning is a legit bottle opening frenzy.
  14. Amen to that. I felt like that so frequently....

    Amen to that. I felt like that so frequently. Even now with the diagnosis, I still get moments where I cry in the shower because I don't care how its done, I just want to feel better.
    I think thats...
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    Whoa. I've need some of that stuff. I didn't know...

    Whoa. I've need some of that stuff. I didn't know there was a such a thing. Good call Steve!

    On the other hand. I too now have to avoid the sun. If you're on metformin as well as the plaquenil the...
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    Steve- I never even thought to try water...

    Steve- I never even thought to try water aerobics. I've been trying to just walk but sometimes even that gets my ankle and knees hurting. I think my local YMCA has them, I'll look into it.

    I have...
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    N-mac, LOL. Trudging around the house is one of...

    N-mac, LOL. Trudging around the house is one of my only ways to past the time. You know, I did recently notice that I felt more stiff after sitting for awhile. Which is funny because I was told when...
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    Roger- Sometimes it is the simplest method. I...

    Roger- Sometimes it is the simplest method. I used to take the 800 miligram ibuprofen, and even have a full bottle floating around here somewhere. It did work, however, I think I got used to it. I...
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    Hi Everyone!

    New to the site, but not to the disease.

    Ive been offically diagnosed with SLE for the past year. I'd tell you how glorious and horrifiying that was, but I'm sure a lot of you had the same...
  20. Aw guys. I'm having a mild panic attack. I...

    Aw guys. I'm having a mild panic attack. I literally signed up for this and 2 other lupus online support groups tonight to ask everyone about the neurontin ( i took my first 300 tonight and im...
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