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  1. Replies
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    yeah, me too, but 5 is like super super low. The...

    yeah, me too, but 5 is like super super low. The really good news is that it is easy to correct and you will probably notice a big difference once you get that corrected. I did.
  2. Thread: Prednisone

    by karenboss
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    1,637

    I have to agree with you TGal - I'm extreamly...

    I have to agree with you TGal - I'm extreamly grateful that predisone is an option - so far it is the only treatment that has consistently worked for me.

    Predisone is a last option, but it is...
  3. believe me I am usually the biggest skeptic and...

    believe me I am usually the biggest skeptic and not a believer in "alternative treatment". But since my dr prescribed it I have done a bit of research.

    The link above from 'skeptic' addresses...
  4. After trying Imuran and Cellcept my dr...

    After trying Imuran and Cellcept my dr recommended DHEA, he gave me the name of a compounder with instructions to only go there, he also wrote an Rx so it will be covered by insurance. Not that he...
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    I was on it for 2 months - no adverse reaction -...

    I was on it for 2 months - no adverse reaction - unfortunatly no positive reaction either -

    good luck to you
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    Don't be shy about talking to your dr about your...

    Don't be shy about talking to your dr about your feelings also - you may benefit from anti depressants, especially as you learn other coping skills. A lupus dx isn't at all an easy pill to swallow...
  7. Thread: hello all...

    by karenboss
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    3
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    910

    it seems autoimune diseases travel in groups. :)...

    it seems autoimune diseases travel in groups. :) dang it anyway
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    I'm not a doctor - but for me the sun flares me...

    I'm not a doctor - but for me the sun flares me out badly, I get very confused, disorented, loss of balance, since you live in a pretty sunny climate if I were you I would stick to indoor workouts...
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    I think they are really hard to see. I sometimes...

    I think they are really hard to see. I sometimes get them in my hair line so I can feel them but they aren't red and don't make much to look at. What I get arn't really sore, they itch a bit then...
  10. Hi Ricke - I'm going to be honest, your logic...

    Hi Ricke - I'm going to be honest, your logic path is a bit hard for me to follow - so bear with me. I think if you're kidney tests are normal, that is a good thing. I also think porphyrics is a...
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    When is your appointment at stanford? You're...

    When is your appointment at stanford? You're lucky that you live in an area with such high quality care available. In my oppinion you shoulnd't take aspirin unless a dr tells you too. With Lupus...
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    sunscreen brands?

    This is coming up to my second season. Last year it took me forever to connect that it was the sun making me feel so bad. I don't get a rash or skin problems (except very little) but the sun makes...
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    Yeah, I think it's a pretty well done,...

    Yeah, I think it's a pretty well done, informative and practical book. Some of the information on nutrition is interesting and new - but now that I've read it I don't think I need to buy it (he he...
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    I work aas a product manager at a large...

    I work aas a product manager at a large distribution company - the smartest move I've made was to not disclose my condition. If I'm sick, I call in sick. When I'm having thinking problems I try to...
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    lupus reading -

    I read an exert from this book and am wondering if anyone has read it & has any oppinion on it - if it's worthwhile?

    http://lupus-book.com/sales.htm
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    if he isn't going to work out get another one. A...

    if he isn't going to work out get another one. A dr shouldn't make you feel like that. Is it a rhumatologist that you are seeing? Are you being treated with any meds right now?
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    I get these, but no hair loss. they itch then...

    I get these, but no hair loss. they itch then scab over, I guess it's from scratching. I hate them but they really arn't more than a nuscance for me. I use tar shampoo, someone here recommended...
  18. Thread: B-12

    by karenboss
    Replies
    4
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    1,035

    Hi Micromedic - sorry I don't know anything...

    Hi Micromedic -
    sorry I don't know anything about this - but I hope they can get your levels corrected soon and you can get to the bottom of the MS mystery.

    Do you think Lupus and MS are common...
  19. I have only had the ANA panal - my co-pay is...

    I have only had the ANA panal - my co-pay is arond $200.00 for those. HOpefully your tests come out favorably - keep us posted & good luck.
  20. Thread: Duromine!

    by karenboss
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    786

    sounds like a miracle drug! weight loss AND...

    sounds like a miracle drug! weight loss AND lupus control! congradulations - glad you are feeling so good, you deserve it.
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    I suspect that those who have weened off the meds...

    I suspect that those who have weened off the meds don't spend thier time on web forums talking about it - so you may not get the response you're hopeing for to this post but it's the demographic of...
  22. Thread: Update

    by karenboss
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    882

    Congratulations! Hope you stay rested and...

    Congratulations! Hope you stay rested and healthy for the rest of your term!

    have you got a name for her yet?
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    Hi Meagen, My dr says if PN is caused by lupus...

    Hi Meagen,
    My dr says if PN is caused by lupus it will reverse when treatmet starts to work, becasue it is caused by nerve inflamation and not permanent nerve damage like diabetes.
    I have it only...
  24. Thread: Swollen Eyes

    by karenboss
    Replies
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    838

    not sure of course and I'm not a dr or anything -...

    not sure of course and I'm not a dr or anything - but my sister got a bad infection that cased her face to swell. She has RA and is on immunosupresents which can make us suseptable to these kinds of...
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    it makes perfect sense. I can't thank you enough...

    it makes perfect sense. I can't thank you enough for putting it succently and in laymen's language. thank you thank you thank you.

    Rhumy did say the spinal fluid test might be in order too, so...
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