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Type: Posts; User: Chesterwin

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    Sounds like it would be worthwhile to see a...

    Sounds like it would be worthwhile to see a rheumatologist. They may run more specific autoimmune bloodwork. I'm not sure about some of your symptoms and how they relate, but I would make a list...
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    I don't have any specific advice as I have just...

    I don't have any specific advice as I have just recently started cellcept myself. I think steveb has the right idea!

    Just wondering if your son's name is KC? My little brother's name is KC. Is...
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    Wow, that is one amazing story! Thanks for...

    Wow, that is one amazing story! Thanks for sharing! It sounds like your daughter is one tough cookie....with a great Mom!
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    Hi Lea, I know nothing about blogs, but I...

    Hi Lea,

    I know nothing about blogs, but I started to read yours and it sounds like you have been through a lot! I admire your strength and hope the blogging helps to air things out and that your...
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    Facebook Groups

    Does anyone belong to a helpful Facebook group focused on lupus? I am wary of joining one with dubious posters claiming to have "the cure". Wondering if anyone can suggest a group. Have you heard...
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    Still having the neck pressure? My referral...

    Still having the neck pressure? My referral appointment was next to useless. I didn't get to ask any of my questions about pericarditis and never got to the neck pressure. However, I wanted to let...
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    Congrats! She sounds amazing, and to pull it all...

    Congrats! She sounds amazing, and to pull it all together at the last minute, under pressure is a life skill only a few posess. Nice to hear good news!
  8. Wow, first I must say congratulations! I can't...

    Wow, first I must say congratulations! I can't speak specifically about having Lupus while pregnant (I was just recently diagnosed, but I may have been symptomatic through both of my pregnancys...
  9. I have 2 hepatic hemangiomas as well. They were...

    I have 2 hepatic hemangiomas as well. They were found when I had an ultrasound for gallstones and they were confirmed with a CT. I was having surgery for the gallbladder anyway and asked if they...
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    Hi Lisa, I agree with the others, it could be...

    Hi Lisa,

    I agree with the others, it could be so many things including thyroid. I have a very similar sensation that is worse when lying down, but I also have pericarditits. I had a barium...
  11. Starting cellcept while on vacation...eek!

    I am currently fighting a bout of resistant pericarditis. After trying a host of meds including plaquenil, colchicine, steroids and non-steroidals with no avail, my rheumy has decided to try me on...
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    Thanks! I will let you know what happens...it...

    Thanks! I will let you know what happens...it probably won't be for a few months...and maybe I will be getting better by then and not need to go ;)

    BTW, I am Heather, too!
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    Hospital for Special Surgery in NYC

    I'm wondering if anyone has experience at the Hospital for Special Surgery in Manhattan. I am in upstate NY and my rheumatologist mentioned that he might refer me there if we can't get my...
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    Thank you for your post. I am a newbie and have...

    Thank you for your post. I am a newbie and have never taken any meds in my life except for a multivitamin. At first I was worried about taking a medication for life (plaquenil). Now, I realize...
  15. Wow, that sounds like an awesome program, and a...

    Wow, that sounds like an awesome program, and a difficult decision. I am new here, so hopefully those with more experience dealing with this can help. You have to listen to your body and its...
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    Pericarditis question

    I just joined this site today. I am a 35 year old married female with 2 little kids (2 and 4). I had always been relatively healthy except for gallbladder and fibroid surgeries. I ended up at my...
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    I love your tag line!

    I love your tag line!
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    Whirlwind diagnosis

    Thankfully, I didn't have to suffer like so many of you for years with symptoms and no diagnosis. I had a sudden onset of symptoms and very elevated anti ds DNA discovered by my ob/gyn after an...
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