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  1. Thread: cold toes?

    by thepaynes
    Replies
    6
    Views
    805

    could be raynauds or periphial neuropathy. hope...

    could be raynauds or periphial neuropathy. hope its neither tho. ive got both.
  2. Thread: Skinny

    by thepaynes
    Replies
    23
    Views
    1,838

    o my i used to be skinny n athletic in school....

    o my i used to be skinny n athletic in school. but after getting diagnosed with sle n being on pred n developing fibromyalgia raynauds sjogrens and now horrible perphial neuropathy my pred has been...
  3. Replies
    14
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    1,562

    i have a number for 2 companies that were willing...

    i have a number for 2 companies that were willing to help me if ur interested.
  4. Replies
    14
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    1,562

    do u know who or on which blog specifically? i...

    do u know who or on which blog specifically? i will look around tho.
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    1,562

    i have a number for anyone who needs help paying...

    i have a number for anyone who needs help paying for benlysta. they were going to help me but i decided i wanted to let it get more seasoned before i try it. i heal slow n would need a central line...
  6. Thread: Lupus rashes

    by thepaynes
    Replies
    25
    Views
    20,717

    Sticky: hi im berniece, i m new here. about 2 years ago i...

    hi im berniece, i m new here. about 2 years ago i had about 100 open body ulcers covering all sides of my body. from my armpits, palm of my hands butt cheeks etc. it was horrible. it was at first...
  7. Thread: hi im new

    by thepaynes
    Replies
    2
    Views
    285

    hi im new

    im new here. im 32 and have had sle since i was 16. anyone want to chat about experiences?
  8. Replies
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    1,562

    new here but was considering Benlysta

    hi everyone. im new here. i have had sle since 16 and im now 32. i would say the lupus is moderately under control.i seems to be attacking my skin not vital organs. praise God. i have been on...
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