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Type: Posts; User: lilmisssunshine

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    hi! my 7 yr old daughter and i have lupus. ...

    hi! my 7 yr old daughter and i have lupus. she's had a presumptive lupus diagnosis for 10 months before meeting her 4th ACR criteria in january of this yr. she was started on prednisone and...
  2. HI and welcome!!!!!!! i have lupus, too. ...

    HI and welcome!!!!!!! i have lupus, too. yippeeeeeee! ok, i know not really, but i find humor helps me cope!
    i only have one daughter, who is 7, and is definitely the sunshine that keeps me...
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    HI Lily! Welcome....I am sorry you have not been...

    HI Lily! Welcome....I am sorry you have not been feeling well.
    From what I understand, you have had flu-like symptoms, a high sed rate (westgrain), and a postive ANA. Of course, you should...
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    hello and welcome!!! my daughter also has SLE. ...

    hello and welcome!!! my daughter also has SLE. i know and feel your pain, desperation, frustration, fear, fatigue, anger, and sadness. there is hope, though!
    i also have lupus. there are days...
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    oh! I big-puffy-heart cupcakes, too! they're my...

    oh! I big-puffy-heart cupcakes, too! they're my new guilty pleasure. i found a great bakery that makes teeny-tiny-petite sized one's so i don't even feel guilty eating them.
    my daughter has...
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    thanks cherokee! just wanted to be sure i was on...

    thanks cherokee! just wanted to be sure i was on the same page!
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    I also wanted to ditto saysusie's earlier...

    I also wanted to ditto saysusie's earlier response - INSIST on symptom management until a diagnosis is obtained. often, doctors are focused on the process of obtaining the answer (diagnosis) and...
  8. another vote for call your doctor! but also want...

    another vote for call your doctor! but also want to add that this was my 7 yr old daughter's initial presenting symptom.....turns out it's severe raynaud's for her. she would only complain (cry or...
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    I'm not sure I'm understanding the phrase...

    I'm not sure I'm understanding the phrase "designer" disease. Can someone please clarify? Thx so much!
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    HI guys! thx for responding. My daughter has 1...

    HI guys! thx for responding. My daughter has 1 of the 2 required varicella vaccines. She can not receive the 2nd now as she is on methotrexate and prednisone. She should be "covered" in terms of...
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    Hi, and thx for sharing. I think most days I...

    Hi, and thx for sharing. I think most days I have a decent grasp on whether or not to send her to school. It's those fuzzy gray days that drive me nuts! Like when she has a 99.8 temp, is...
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    I can totally relate! I am a nurse, who has...

    I can totally relate! I am a nurse, who has lupus. I don't look sick. Usually. People are constantly questioning the validity of my illness, emotions, complaints. And it's always the same...
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    Sticky: i am so happy to read this....my daughter's...

    i am so happy to read this....my daughter's latest issue is major light sensitivity. she's wearing her sunglasses in her 2nd grade class at school! thank goodness for wonderful teachers. we've...
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    thanks so much for the welcome! i was diagnosed...

    thanks so much for the welcome! i was diagnosed 4 yrs ago after recurrent pericarditis and arthritis; started plaquenil at that time. i continue to flare every 4-6 wks, but it's so much better than...
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    mother - daughter SLE

    Hi! My 7 yr old daughter and I both have SLE. She just recently met her 4th criteria for diagnosis.....it's been 15 months of battling with various docs to get her treatment. So, needless to say,...
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