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  1. I need support before I drive my family nuts :)

    I everyone....I would like to update you all on what is going on..I am having a hard time lately..but doing the best I can...

    I went for years with UCTD diagnosis...unable to get the Lupus...
  2. Thread: Vasculitis

    by poetgal
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    Vasculitis

    Has anyone else here been diagnosed with Vasculitis related to their lupus?? This is why I have not been here for a while. I got the vasculitis diagnosis. It requires a 40 to 60 mg treatment of...
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    I have this in my right leg and foot from...

    I have this in my right leg and foot from neuropathy..that is quite bad...and I also get the same symptoms in both hands from ryhnoids(sp) syndrome and hands and feet from topomax. - which is used...
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    thanks very much for all that information...very...

    thanks very much for all that information...very helpful!! so it looks from here as if vasculitis can happen independent of lupus as well. My neurologist seems to be guessing because with Lupus...
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    feedback..

    wow..lots of helpful feedback here. It was interesting to hear there is someone else who also hasn't seen much by way of the bloodwork..but has gotten the .dx and treatment. I sort of agree with much...
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    Sticky: can you check into revised criteria

    I was reading a book-but have lost name and author! This book stated something about the criteria being revised sometime after 1998. I believe it had something to due with a change in the blood work...
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    how about Eastern PA??

    I live in the lehigh Valley area..anyone from there?? Or Northwest NJ? Also, I have heard there is a support group at Lehigh Valley Hospital..wondering if anyone knew of it..or was from the area and...
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    Follow up-my doctors visits

    Hello everyone! I want to thank all of you who helped me feel validated. This has been a tough flare for me. It has been the first time I have had to change for now at least..my lifestyle..my work...
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    Thank you..all the feedback has been so...

    Thank you..all the feedback has been so helpful..(even the frightening one!) na..not really frightening....I am sorry about your mother. It is true, many things can happen with this illness..and...
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    thanks for this response. I understand what you...

    thanks for this response. I understand what you are saying about stress. And stress absolutely contributes. My doctor has been treating my symtptoms and that is why I get confused. She speaks of the...
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    I just wanted to mention ALL my symptoms began...

    I just wanted to mention ALL my symptoms began for me...my first really obvious flare..about 4 months after I had a total hysterectomy for endometriosis which had to be followed by a few stays in the...
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    frustrating visit with my Rheumy

    Hello everyone..I introduced myself in the "introduce yourself forum" last week. I have been mostly in my bed for the past month-with some ventures when I have a burst of energy-out with friends to...
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    hello

    Hi.. I wish you luck with everything! Boy can I relate to you. I have struggled with similar symptoms and situations for years (I have recently posted something here..introducing myself)... I hope...
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    me too

    and I just posted this somewhere else. I always thought it was me!! I hardly ever get up to 97!! A fever is 98.7 or so! so count me in too...sometimes I do actually get fevers from my illness..then...
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    Is this common

    This is an interesting thread! Is the low blood pressure and low body temp a common part of lupus? I thought it was just me!! :o I always run very low in both temp and blood pressure... 80/49 is...
  16. addiction Question

    Thanks again for the feedback. Yes, my doctors are aware with the history of alcoholism and that I am in recovery- I never have really been prescribed narcotics. Ultram has a very mild narcotic...
  17. thank you

    I want to thank you all for welcoming me here to this forum and for sharing some of your own experiences with me. The validation that I belong really helps. The more I read from the...
  18. I relate

    I don't know where to point you! But I know I relate..I get so angry about the issue of jobs and healthcare... !!!! :mad: :mad:
    wishing you luck and the best!!!! Christine
  19. This is long...sorry needed support for years :)

    Hi Everyone! My name is Christine. I believe I have been here before, at the start of my journey, about 5 years ago. I am 41 years old and am officially diagnosed with Unspecified Connective Tissue...
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