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Type: Posts; User: Codi98

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    Thanks! Ya ive been doing really well with the...

    Thanks! Ya ive been doing really well with the taper the only bad thing is ive broke out with a case of shingles which has been one of the worse things ever!!!
  2. Thread: Hi All! *New*

    by Codi98
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    Welcome to the family! Glad we can be here to...

    Welcome to the family! Glad we can be here to help you through things that your going through!
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    prednisone taper

    So today wentt to my rheumy after about month and half since we increased my meds to being on 80mg of prednisone and 1500 mg of cellcept twice a day he feels im strong enough to taper the...
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    Sticky: Mines dr sean mcmillian murray utah he has been...

    Mines dr sean mcmillian murray utah he has been caring in depth knowledgable and just amazing! Sad i have to be switching due to stupid insurance so now looking for new one in utah
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    Im so sorry to hear that. Lets hope answers are...

    Im so sorry to hear that. Lets hope answers are found soon. Thoughts and prayers with your family!
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    I was having similar issues as well, my b12 was...

    I was having similar issues as well, my b12 was extremely low if you havent had leevels checked do cause its something that can affect a lot of nerve stuff and its something thats easy to test for...
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    I believe that none of us want to be sick its...

    I believe that none of us want to be sick its that we want the support, exposure, and funding cancer gets! The more awareness our disease has the better off we are! Lets focus on raising awareness!...
  8. I work at a compounding pharmacy that makes the...

    I work at a compounding pharmacy that makes the ldn. We have had several patients that swear by it for things like ms and lupus. I discussed it withmy doctor but they wanted me to try plaquneil and...
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    Sorry to hear it got so bad but very proud of you...

    Sorry to hear it got so bad but very proud of you for sticking your ground!! Also glad to hear had nice time with grandson and other family! Hope it settles down for ya!
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    Thanks for raising awareness!!

    Thanks for raising awareness!!
  11. Thread: Freaking out!

    by Codi98
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    Thanks for all your concerns helps that im not...

    Thanks for all your concerns helps that im not alone! Luckily we have figured it out so i will still o have coverage but have to switch docs which is a headache in its self but dealing with it....
  12. Thread: Freaking out!

    by Codi98
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    Freaking out!

    So just got letter telling me that next month my ins will stop covering my rheumy! So frustrated feel like we finally had good progress and plan of treatment and now going to be starting over i cant...
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    I was on oral bc for long time but recently i...

    I was on oral bc for long time but recently i experienced a clot so i had to stop it im now looking into getting a none hormonal iud and n my doctors are highly concerned because im on cellcept and...
  14. Thread: rough day

    by Codi98
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    242

    rough day

    For the first time in about a month lupus decided to remind me that its still there. Hit me like a train! The pain is horrible nausea the whole full blow flare sucks i was doing so good was feeling...
  15. Thread: big day

    by Codi98
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    They have me on sleeping pills but some nights...

    They have me on sleeping pills but some nights they just dont cut it. And ya netflix is my best friend when im trying to sleep. Luckily sunday aloud for some grreat nap time.
  16. Thread: big day

    by Codi98
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    big day

    Ugh so yesterday was such a big day i had to do more than ive done in a really long time. I worked four hours then right after that my boyfriend family had a bbq which was fun but went on a little to...
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    Im sorry your having such a hard time. I know...

    Im sorry your having such a hard time. I know what you mean by not being able to afford to miss work its such a hard position to be in. As far as getting your doctor to listen i know thats the...
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    Sticky: Know your in brain fog when get up to take out...

    Know your in brain fog when get up to take out your contacts, go into bathroom take off your glasses and countinue to try and find your contact in your eye even though didnt even put them in that day
  19. Thread: School

    by Codi98
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    I was in school full time as well as working full...

    I was in school full time as well as working full time when first started having problems im only 21 . I had to make a choice weather to move back home and keep tryin to do school or put school on...
  20. Thread: Good news!!!!

    by Codi98
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    Yay! So glad to hear it! Good news is truely the...

    Yay! So glad to hear it! Good news is truely the best medicine for everyone involved hope things just keep getting better!
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    I cant even begin to imagine what that feels like...

    I cant even begin to imagine what that feels like as a mom! I give all the moms on here a huge round of applause! ! Mom life is hard enough with out a disease. Now im close to your daughters age im...
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    skin sensitive products

    So im hoping to be able to get some good advice on a few beauty products for people with lupus i have been trying couple things but hate spending the money when they may or may not work for me. The...
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    Ya it happens to me a lot to i dont even have to...

    Ya it happens to me a lot to i dont even have to be doing much and my upper body sweats like ive done a whole workout at the gym. I hate it and get worried that my deodrant doesnt work good enough...
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    All of us have been there the not knowing stage...

    All of us have been there the not knowing stage is so hard. I hope you can get some answers soon and start feeling better just know that we are here !
  25. Thread: ER visit

    by Codi98
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    They have me on lovenox and warfarin. I had my...

    They have me on lovenox and warfarin. I had my inr checked today still not where they want me. I havent been able to get a hold of my rheumy cause he ben out of town but i feel like im going in the...
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