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  1. Replies
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    Hi, I kind of got stuck in this same...

    Hi,

    I kind of got stuck in this same situation when I was first diagnosed with my brother and his girlfriend. I was home sick, put on disability at 19 and they had my nephew that basically...
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    1,758

    Okay well here goes....still going strong 17...

    Okay well here goes....still going strong 17 years and counting. Diagnosed at 17, still here kicking at 34(35 next month). I have been "medically controlled" for many years, working full time leading...
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    1,634

    I've been doing something that has helped me SO...

    I've been doing something that has helped me SO much in the sinus department... I've been using a netti pot! I saw it on Oprah(with Dr. Phil) didn't get it at first but found some poeple that swore...
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    We have been watching every night. I'm a huge...

    We have been watching every night. I'm a huge hockey fan, so it's great to see all the different countries playing. Plus, my team The Anaheim Ducks has nine players representing their various...
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    Something to make you laugh

    I found this on another website I visit, it made me giggle I figured you all could use one too. :laugh:
    2234

    You might not understand so much if you don't watch House, but basically the Lupus...
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    I was diagnosed at the age of 17 my senior year...

    I was diagnosed at the age of 17 my senior year of high school. I felt like I sprained my wrist one day and the pain just grew and grew from there until I could not move most days because of the...
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    I started plaq early on in my illness, then had...

    I started plaq early on in my illness, then had to come off of it because I developed rashes and the doctors weren't sure if it was from the medication or not. I was put back on it a few years later...
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    I got a ton a of stretch marks on my belly and...

    I got a ton a of stretch marks on my belly and arms when I was put on very high steriods and gained a ton of weight very fast. I then was put on methotrexate and lost a ton a weight very fast. I have...
  9. Thread: Kidneys

    by kducks
    Replies
    9
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    1,158

    Sorry to hear, I've had a few scares in that...

    Sorry to hear, I've had a few scares in that department and I still get to see a nephrologist every few months or so. I hope things turn out okay for you!

    Hugs,
    Kim
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    THERE IS HOPE. I was diagnosed at 17 and I felt...

    THERE IS HOPE. I was diagnosed at 17 and I felt the same way you do right now. I felt like I would never find a way to feel "normal". I found a way! It took a few years and many tears, but I found it...
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    Mine is a pic I took of me and my guy at the...

    Mine is a pic I took of me and my guy at the Ducks playoff game last year. I have a Ducks temporary tattoo on my face. I just liked the pic and use it as my avatar. My guy and I are HUGE hockey...
  12. Thread: Lupaversery!

    by kducks
    Replies
    18
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    1,846

    Aww thanks Rob. I was dx at the age of 17 and...

    Aww thanks Rob. I was dx at the age of 17 and really thought my life was over. I've since learned it is anything but. I wasn't able to go to school and stuff right away like my classmates but I got...
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    Rained like crazy down here in SoCal too. We...

    Rained like crazy down here in SoCal too. We should be okay where we are at but I really feel for those who are in the burn areas, they are going to have problems. The sun is actually out right now...
  14. Thread: Lupaversery!

    by kducks
    Replies
    18
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    1,846

    I celebrate my lupieversary kind of too. I'm...

    I celebrate my lupieversary kind of too. I'm hitting 17 years of living with the wolf next month and can't believe it's been so long already. I'm proud of the fact that I have exceeded expectations...
  15. Nope...if I want snow I'll drive up to the...

    Nope...if I want snow I'll drive up to the mountains. Was a nice sunny warm day, I went for a walk with my honey down by the beach. I'm a weather wimp, I was born and raised in SoCal lol.
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    Just to get more exercise. It never works to say...

    Just to get more exercise. It never works to say I'm going to lose this many pounds by....so I'm just promising to get off my butt more and move, lol. Working out good so far..fingers crossed!
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    I guess I'm one of minority here. I chose not to...

    I guess I'm one of minority here. I chose not to have children and I am actually looking into the option of having my tubes tied at the age of 34. I was married and did not want children with my now...
  18. Sorry to hear you can't get any relief from the...

    Sorry to hear you can't get any relief from the fires. Believe me, I understand. Not so much this year, but last year at this time was miserable for me from the fires out here. We have been keeping...
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    Keep your head up Leann! Like everyone said, they...

    Keep your head up Leann! Like everyone said, they deny you the first time around just to deny you. I doubt they even read any of the paperwork. They just want people to give up and go away. Some...
  20. Thread: Plaquenil

    by kducks
    Replies
    1
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    453

    Not really sure what is going on with you and the...

    Not really sure what is going on with you and the plaq. Do you take it on a empty stomach? I always take my pills at night with a glass of milk to kind of "coat" my stomach. I've been doing it for...
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    Wow, sorry to hear Rob but at least you know...

    Wow, sorry to hear Rob but at least you know what's happening now. Brain surgery is scary but at least there is possible cure to help give you some relief. I hope you don't have any more episodes or...
  22. Thread: A Down Day

    by kducks
    Replies
    6
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    780

    The thing I used to do when I was really...

    The thing I used to do when I was really sick...and actually still do is lose myself in a good book. It doesn't take the pain away, but it distracts you from all that is going on and lets you lose...
  23. Thread: Off to hospital

    by kducks
    Replies
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    2,520

    Sorry to hear you had to go to "jail" Monique!...

    Sorry to hear you had to go to "jail" Monique! The majority of my major problems with my Lupus, besides the pain of course were with blood too. I totally understand were you are coming from, just...
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    Driving through LA...haha oxymoron there. He is...

    Driving through LA...haha oxymoron there. He is inching trying to make his way through traffic, lol. I'll wave but he probably isn't coming my way. He's driving all the way through to Arizona? I did...
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    You guys are all too funny. Can't you just see it...

    You guys are all too funny. Can't you just see it now...a bunch of Lupies spending too much time in the sun and red faced and hardly able to walk to the next day? :laugh: The beach sounds wonderful...
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