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Type: Posts; User: Maggie79

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    Wow, long time since my followup, but I wanted to...

    Wow, long time since my followup, but I wanted to incase anyone else might need this info. The neurologist put me on Topamax to deal with the migraines and it's helping a lot. But since then I have...
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    Thanks Nonna, what do you mean by ans?

    Thanks Nonna, what do you mean by ans?
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    Thanks, I spoke with my doctor today and she said...

    Thanks, I spoke with my doctor today and she said it's likely not the plaquinel. I'm going to the neurologist in a few weeks. thanks!
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    Ugh, headaches

    Hi there, wondering if anyone has the simlar issue and what their solution was? When I was on methotrexate for about 1.5 years and starting getting these crippling headaches that would get so bad I...
  5. Thread: Need Help

    by Maggie79
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    so sorry to hear you are in so much pain! I hope...

    so sorry to hear you are in so much pain! I hope you feel better soon!
  6. Thread: Getting Sick

    by Maggie79
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    Ok so in the last few weeks I have been violently...

    Ok so in the last few weeks I have been violently ill on the weekends, and last week I got very sick at work and had to go to the urgent care clinic. The on-call doctor thinks its a reaction to mtx,...
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    I went ahead and got the MRI of my knee and...

    I went ahead and got the MRI of my knee and besides the cyst it turns out that I've damaged the cartlidge (probably from a fall I took a few years back). Interesting thought to think that some things...
  8. Thread: Getting Sick

    by Maggie79
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    thanks everyone! i told my doctor about the...

    thanks everyone! i told my doctor about the vomiting and she said it could be related to something else (something about a condition that causes miscarriages?), but that we'll hold off on testing...
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    I have an issue with my knee too, when I walk to...

    I have an issue with my knee too, when I walk to far or during a hike my knew inside it feels very large and swollen, althought it looks fine. I have a cyst inside under the knee cap but the doctor...
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    My first symptom was raynauds when I was in high...

    My first symptom was raynauds when I was in high school, but didn't think it had anything to do with Lupus. then about 10 years later had surgery due to hip joint pain, then finally I had a blind...
  11. Thread: Getting Sick

    by Maggie79
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    Thanks, I'm taking 25 mg of mtx every saturday....

    Thanks, I'm taking 25 mg of mtx every saturday. Let me know what you find out from your doctorm
  12. Thread: Getting Sick

    by Maggie79
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    Getting Sick

    Hi there, I was wondering if anybody else felt like this and if its due to the medicine or something else.

    I have been getting sick on the weekends sometimes before I take my methotrexate, but...
  13. Thread: Hip Pain

    by Maggie79
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    Wow thanks so much, sorry to hear that others are...

    Wow thanks so much, sorry to hear that others are having so many hip problems too. I got an MRI and ultrasound and he found more tearing of my labrum (sp?) and an inpingment, unfortunately on both...
  14. Thread: Hip Pain

    by Maggie79
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    Thanks all so much for your comments! This is the...

    Thanks all so much for your comments! This is the second round to find out what the pain is, so I'll keep you posted after the MRI and will try and ice.
  15. Thread: Hip Pain

    by Maggie79
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    2,467

    Hip Pain

    Hi there, wondering if anyone else has this? I've been struggling with hip pain for years (I'm 29) and had surgery a few years ago for a labrel tear...now the pain has been back for awhile now so my...
  16. I have always had the "shooting star" effect,...

    I have always had the "shooting star" effect, even way before I was diagnosed. I also had retinal vasculitis (sp) and had a fuzzy grey spot in the center of my vision (boy THAT was annoying ans...
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    I have reynauds (sp?) since I was a teenager so...

    I have reynauds (sp?) since I was a teenager so can totally understand the cold hands and feet. I had to actaully buy a heat blanket and fleece blankets for my bed because the cold used to literally...
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    thanks all!

    thanks all!
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    Burning in Chest

    Hi there, wanted to reach out and see if anyone else has the same. Last night I went for a short jog on the treadmill. I warmed up (stretched, walked), but then after running a short distance my...
  20. Thread: Wondering...

    by Maggie79
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    Thanks so much! I do go to the gym about 3x a...

    Thanks so much! I do go to the gym about 3x a week, couldn't hurt to go more though :D
  21. Thread: Wondering...

    by Maggie79
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    Thanks so much for the response! I haven't been...

    Thanks so much for the response! I haven't been doing anything different, just a little more stress at work, so maybe that is it? I'll make sure to talk to my doctor about it.

    :)
  22. Thread: Wondering...

    by Maggie79
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    Wondering...

    Hi all, this community is refreshing and so informative, thank you! I have a question, I have been diagnosed with Lupus about 6 months ago and have been on methotrexate, plaquinel, folic acid and...
  23. Thread: New at this

    by Maggie79
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    New at this

    Hi there, I'm new at this, mainly trying to come to the terms that I have lupus and opening up about it. It's comforting to find this community and support system to learn from, thank you! I was...
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