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  1. Thread: Arrrrrrggggg

    by aveca
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    I know how you feel

    I walked aound for a full year beleiving I had Lyme disease. The words were , This looks like Lymes. Well at the time I thought. I finnaly have a name for this monster after being sick for so long. I...
  2. Thread: new to the board

    by aveca
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    1,537

    also

    also. strangly , I do not have the face rash , an occasional spot here or there, but ear tips get red and splotchy, if my hair is up, my neck and shoulders will break out.scalp on occasion,arms are a...
  3. Thread: new to the board

    by aveca
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    1,537

    Oh my lord thank you!!!

    I cannot thank you enough for that answer!! The doctor said the rash looked to familiar to him. thought it was lupus, and quite severe,but I never asked him about the itching He really was a saint,...
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    Thank you

    I left the job of my own free will. After 5 years of trying to find out what was going wrong, the new doctor was great he got right to what was wrong quickly , but I just felt like it was dragging...
  5. Thread: new to the board

    by aveca
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    1,537

    the reason I asked about the itchy rash

    I asked about the itchy rash because Someone told me that lupus rash's do not itch. does anyone else experience the itch. It will dissappear within hours , but the welts and itching are hive like,...
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    same boat

    Thanks for the ADA info Suzi. I am in the same boat . But I left the job due to going throu 5 years of wrong diagnosis and was getting progressivly worse even though my job was fairly accomdating. I...
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    when mine first started, I had hyper nerves

    It brought back memories of when Mine first started , My nerves were on hyper drive, and had mini seizures too. I have to wonder if it affects th whole nervous system. I had always been quite calm...
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    experiencing severe weakness in the extermities

    I have been sick since 1990, but it came and went for a couple years , I thought it was a long acting virus , mono? and being a tough outdoorsy type with a high threashold for pain , tried to ignore...
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    I may have renauds too

    I never finished up with doctor due to loss of insurance. But my fingers turn quite blue sometimes. They were working on a diagnois (a new doctor) after 5 years being misdaignosed with tests for...
  10. Thread: Sun sensitivity

    by aveca
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    2,390

    sun sensitive

    I have exactly the same problem--does your rash itch???? Mine burns , hurts and for a while it itches. I used to give dressage (horse lessons) but within 5 minutes in the sun , i felt vey very sick....
  11. Thread: new to the board

    by aveca
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    1,537

    new to the board

    I would sure appreciate some help. I have been reading a lot of the posts and it seems good to me to find others who are going through the same things I am. I have a high RA factor -220. I was tested...
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    glad I found this site

    I was wondering if anyone has had experience with the summer rash , I was diagnosed 2 years ago, they still ahve not firmly decided if I have RA along with the lupus. I had an RA factor of 220, nomal...
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