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Type: Posts; User: Kjell

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  1. I take Adderal its basically the same as Ritalin....

    I take Adderal its basically the same as Ritalin. I have for years and its very helpful with brain fog.
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    Sayssusie, Thank you. I really needed to hear...

    Sayssusie, Thank you. I really needed to hear that. It's been hard to keep my chin up, and not cry at the drop of a hat. My emotions are on overdrive. I think I need to include, in my daily...
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    Thank you Saysusie. I have gone through hair loss...

    Thank you Saysusie. I have gone through hair loss periods before and they were awful, but this time around it's really taking a toll on my emotionally. As I mentioned, I look pretty bad, with ugly...
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    Increase Imuran hair loss?

    Hi there. I'm trying not to get to upset about this but, my hair is coming out. I increased the Imuran about a month a go to 100. Not sure if that's what caused this to start but I could cry. I...
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    Test was not fun. I just did the grit your teeth...

    Test was not fun. I just did the grit your teeth thing. Glad it's over. The Dr said there was some issues. I think damage of my muscles actually. Nerves were ok though. I guess they will now send...
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    Thank you for the info. That's exactly what I was...

    Thank you for the info. That's exactly what I was hoping to hear. So ready to just be on my way to getting better.. Hope this test helps.
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    EMG tomorrow. What to expect?

    Hi there. Well, I decided to get a second opinion after all. I really like this team of doctors and felt very comfortable with them. They of course are running more test, and now a EMG tomorrow. ...
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    I feel exactly the same way. Sunburnt and hot. My...

    I feel exactly the same way. Sunburnt and hot. My husband says I have a broken thermostat. Im trying and see if there is connection to the burning sensation and doing to much, pushing myself to hard...
  9. Thread: Hello

    by Kjell
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    I looked scleroderma up.. It shares a lot of the...

    I looked scleroderma up.. It shares a lot of the same symptoms with Lupus. Since both diseases are also treated with the same medications, maybe you could ask the Rheumatologist to start you on...
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    Thank you Sam. My Dr suggested I see a counselor...

    Thank you Sam. My Dr suggested I see a counselor that specializes in chronic illnesses. To help me adjust. She mentioned that with my personality this might be a hard adjustment.. To let go of the...
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    Thanks Sammy. I have a rash, and the butterfly...

    Thanks Sammy. I have a rash, and the butterfly rash on my face. This rash has been all over my body, and at times very itchy. I actually had blister bumps all over my arms and legs at one point. ...
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    Bonus Mom, So is the Plaquenil controlling all...

    Bonus Mom, So is the Plaquenil controlling all your symptoms? I'm wondering how I'm going to know what is helping what since all these medications take so long to get into your system? I really do...
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    Sammy, Have you tried other medications? Or just...

    Sammy,
    Have you tried other medications? Or just the MTX? Thanks for the information. It's so helpful to get other peoples experiences. Take Care.
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    Opinions best med for fatigue pain?

    Hello. Just wanting some input on people's experience with the immunosuppressant medications. I've been on Imuran for 2 months now, an honestly feel no different. Wondering if the mtx injectable...
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    Do you think the injection just work better over...

    Do you think the injection just work better over all? I'm on Imuran ( 2 months) feeling no improvement and was thinking of asking about the mtx? Since most meds upset my stomach, was thinking about...
  16. Thread: Hairloss, again.

    by Kjell
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    Actually spirnolactone is to lower blood pressure...

    Actually spirnolactone is to lower blood pressure but had an off label use for skin and hair problems.
  17. Thread: Hairloss, again.

    by Kjell
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    Hi Debbie. I'm so sorry. I too went through hair...

    Hi Debbie. I'm so sorry. I too went through hair loss about 15 years ago. I was 27, an was told it was stress. It wasn't, it was lupus and I cried all the time. It really took a toll on my self...
  18. Thread: New to Group

    by Kjell
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    Hi Maddie. Welcome. I was told that my lupus...

    Hi Maddie. Welcome. I was told that my lupus was easier to diagnose because they were able to do a biopsy on my rash. It was actually the dermatologist that discovered it and sent me to a...
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    Sleepy in Seattle: did you take 60 mg of...

    Sleepy in Seattle: did you take 60 mg of prednisone while you were waiting for your meds to kick in? You mentioned it took 6 months for them to work? Maybe I need an increase for a while. I've been...
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    It's lupus.. I'm so sorry to hear you say that. 6...

    It's lupus.. I'm so sorry to hear you say that. 6 years? I'm going crazy after 5 months. I cry and get depressed and feel like something has been taken from me.. Nice days are the worse! I kept...
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    Seriously.. I need that magic pill. Waiting for...

    Seriously.. I need that magic pill. Waiting for these other meds to kick in is just so frustrating. Like I said my husband can take a Vicodin and keep going. He doesn't like to, because of the...
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    Thank you for replying. May be a silly question...

    Thank you for replying. May be a silly question but can you use like a higher dose some days to get stuff done? To get that euphoria for living life again? Or going on vacation and want to enjoy...
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    Prednisone flare dose question

    Just wondering what dose of prednisone people in a flare started on. I'm on the plaquinil, Imuran and 5 mg of prednisone. The plaquinil and Imuran I've only been on for just under 3 months. I think...
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    Ive had experience with all those medss, besides...

    Ive had experience with all those medss, besides tramadol. I was put on cymbalta for anxiety. I had a real problem with memory on it. I suffer from lupus brain fog, so I know that can be an issue as...
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    Krysta, Wow, I was right there with you only a ...

    Krysta, Wow, I was right there with you only a month ago. I was just diagnosed 4 months ago.. Felt like the rug was pulled out from under me. I wasn't sick for years looking for answers, just got...
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