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Type: Posts; User: oopsydoopsygirl

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  1. I'm new to this disease, so I don't know why my...

    I'm new to this disease, so I don't know why my good days are rare. I'm thinking it's because I'm in a flare-up and it's not in remission. I'm assuming that after the flare calms and hopefully the...
  2. I take advantage of every day of normalcy I have....

    I take advantage of every day of normalcy I have. Not sure if that's the right thing or not, but I make sure I'm active that day. :)
  3. My name comes very naturally...hehehe. I've...

    My name comes very naturally...hehehe.

    I've been blessed with two good days in a row! I'm going for a third. I'm hopeful that the Prednisone is working and I will continue to feel better and...
  4. Thanks ... Sits I should have mentioned that...

    Thanks ... Sits

    I should have mentioned that this rash is not from the Prednisone. I've had it since I first became sick with Lupus. The Prednisone was making it feel better though, now it's...
  5. Confused

    I started on Prednisone a couple weeks ago. I will begin Plaquenil on Monday (waiting for some tests to get back first)... I was feeling pretty good the past few days, so thought the Prednisone is...
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    Thanks Oluwa! I've decided not to try to get...

    Thanks Oluwa!

    I've decided not to try to get disability. Instead I'm going to try to work from home or find a job that isn't taxing on my body. If I rack up too many sick days then I'll see...
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    Hi all. The results today showed no MS! Victory...

    Hi all. The results today showed no MS! Victory for me! However, (seems there is always a however or a but...)

    The MRI of my spine showed spondylitis. The MRI of my brain was 'abnormal'. I...
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    Thanks for the welcome and the abundance of info!...

    Thanks for the welcome and the abundance of info! I have an appt tomorrow with my specialist. I'm going to discuss these drugs, pros and cons, with her tomorrow.

    Thanks again!
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    Oh boy... I thought that once in remission, I...

    Oh boy... I thought that once in remission, I would be 'like before lupus'.

    I didn't know I'd still have bad days-good days.

    :(
  10. I think it lasts until it goes in remission. I...

    I think it lasts until it goes in remission. I was told by my rheumy to expect it to last about a year. However, once the drugs kick in, the symptoms will begin to be minimized. YAY!

    I've been...
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    Ok, I'm somewhat of a ditz brain. My doctor...

    Ok, I'm somewhat of a ditz brain.

    My doctor gave me some info to look over between last weeks appt and the first.

    On this, was three additional medications that she wanted me to research and...
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    Thanks Kathy! You're a wealth of information. I...

    Thanks Kathy! You're a wealth of information. I really want to try Plaquenil. Anything has to be better than Prednisone!

    :)

    Thanks again!
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    ok, then what

    Once the Lupus is in remission, can I go about my life normally without compression socks, without knee braces? I'm so confused by this disease. I was under the impression that once the Lupus goes...
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    Thanks

    thanks for the welcome. I feel I know you two already as I've read numerous posts by you! :)

    My doctor said she was putting me on Prednisone to put the Lupus in remission. I see her again on...
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    ringading

    I have had a persistant ringing in my left ear for over three months. I was recently diagnosed with Lupus (like 2 weeks ago) so I know for me it isn't a side effect of Prednisone, but I read that...
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    Oh Christmas Tree

    I put my tree up and thought I had about committed unintentional suicide. My knees were balloons, my ankles, cankles...my entire body was covered in a rash.

    This sucks
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    swallowing

    I also suffer from intense swallowing difficulties. I haven't been diagnosed with Sjogrens, in fact I'm pretty sure my rheumatologist said i didn't have that.

    I had an upper GI, drank the barium...
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    SSI Question

    I was just labeled 'disabled' but have only been off work since October 2oth. Although with the holidays rapidly approaching and five children, you can imagine my stress level.

    How soon can a...
  19. My First Flare

    Major rash head-to-toe, like hives on top of hives, then it morphs into massive welts everywhere. Goes from the insane urge to scratch my skin off, to burning pain.

    Joint inflammation. My ankles...
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    Introduction from Lanette

    Hi Everyone. I'm new here...guess that would be why I'm on the introduce yourself page. :)

    The stats:
    39
    Female
    married
    5 boys ages 10-19
    Live in SE Florida, recently relocated from...
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