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Type: Posts; User: heather123

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  1. (LindaJ: I put a message in your inbox... I just...

    (LindaJ: I put a message in your inbox... I just had a couple of questions for you!! (smiles))

    I have MAJOR heating/cooling issues. It is brutal here in southwestern Ontario... horrible humid and...
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    I really hope you find your diagnosis soon. It...

    I really hope you find your diagnosis soon. It really sounds so much like lupus... I can relate so well to all the things you have been through!!!! I am also a teacher and have been off just since...
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    Do you know if your disease is active right now? ...

    Do you know if your disease is active right now? I had the neurological testing done... the disease was attacking the brain. I had all kinds of cognitive symptoms... really bad brain fog, severe...
  4. Oh do I understand and empathize!!!! ...all too...

    Oh do I understand and empathize!!!! ...all too well. I call it my narcoleptic period, which when the disease is active is soooooo bad!!! Do you have an understanding family? That can make a big...
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    Hi Ashley, I have had the biopsy. The anti ds...

    Hi Ashley,
    I have had the biopsy. The anti ds DNA antibody just means the disease is active right now. Hence, they are going to try to get that level down through corticosteroids, immunosuppressive...
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    Sorry, rockycky, I don't know .... Perhaps...

    Sorry, rockycky, I don't know .... Perhaps someone else will...
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    Haha!!!!! As I was opening the link, that song...

    Haha!!!!! As I was opening the link, that song popped in my head.... And sure enough!!!

    Thanks for making me feel better!
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    Thank you so much for all your support (smiley...

    Thank you so much for all your support (smiley face).

    This was such a hit to me but in hindsight it all made sense. I have seen him for 15 years and as I look back, not once did he agree with me...
  9. Thread: Lynda

    by heather123
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    Hi lynda! Can I ask you what meds you are on?...

    Hi lynda!

    Can I ask you what meds you are on? I have had lupus for 20 years and I was semi well for 15 after having chemo and it came back in my brain!? I was also flummoxed!!!!! I am now unable...
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    Lupus fatigue is mostly psychological

    .... Is what my family doctor said to me 2 days ago. I am still recovering from that statement and needless to say, I am looking for a new doctor who is not in the ignorant age of medicine!!!

    I've...
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    Doreen, My heart goes out to you.... I...

    Doreen,

    My heart goes out to you.... I remember being that daughter. I was always thankful though, that it was me going through all that stuff rather than my loved ones... I didn't want them to...
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    Hi jean, When I get joint pain it is so...

    Hi jean,

    When I get joint pain it is so weird.... It rotates around....

    I will be crippled in one joint (perhaps my right wrist) for about 24ish hours... To the point that I can't wash my...
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    Oh how I empathize. Been there done that. I was...

    Oh how I empathize. Been there done that. I was in a horrible cycle for 5 yrs of flaring every spring which led to prednisone (among other meds) but the prednisone is such a horrible fantastic drug....
  14. I am followed by a nephrologist and have only...

    I am followed by a nephrologist and have only seen rheumys a couple of times. Nephros are the kidney people. All those things are what happened to me. I got lucky in emerg when there was an intern...
  15. Hi! I have had glomerulo nephritis for 20 years....

    Hi! I have had glomerulo nephritis for 20 years. I have stage 3 kidney disease. I think I have more info on my biography on here, but yes, when I was hospitalized it was because of the swelling. It...
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    Oh!!!!!!! Ha!!!!!!! ....I soooooo hear ya!!!!! ...

    Oh!!!!!!! Ha!!!!!!! ....I soooooo hear ya!!!!!

    I wait till I finally feel like it as I'm sure you do too! Can be scary the amount of time that goes by for that to happen though!!! I am so...
  17. I am so sad for you and hear your pain!!! Too bad...

    I am so sad for you and hear your pain!!! Too bad that all the cliche quotes just don't help in times like this (this too shall pass). I feel like I have been there several times in my life too and...
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    I just wanted to say I'm not a big fan of the...

    I just wanted to say I'm not a big fan of the spoon theory either, but talk about rechargeable batteries and I'm all over it. After 20 years with this illness, my rechargeable batteries have just...
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    I have hoarding tendencies and my house used to...

    I have hoarding tendencies and my house used to be a nightmare... ESP with a hoarding husband!!! I had to become master organizer so I now have a very neat home and everything has its place. I help...
  20. Hi leaniebean! If it were me, I would...

    Hi leaniebean!

    If it were me, I would attribute it to not taking my meds... It's pretty crazy the effect that that has on our bodies. I used to yoyo with my meds... Sometimes on purpose,...
  21. On disability? What do your days look like?

    Well, my body has pooped out and I am about to embark on my "new normal". Ltd I'm sure will come through soon and besides allowing my body do what it needs to do (sleep, sleep, sleep, run to the...
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    Hi Tiffany, I met my (ex) husband when I...

    Hi Tiffany,

    I met my (ex) husband when I already knew I had lupus. I was new in dealing with it and I dealt with it by denying it I think. When I didn't feel well it came out in a mood rather...
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    Disability and pride.... Please help!

    Well, I am on the cusp of deciding whether to fight for getting disability (which I know my body needs), or to go back to work as a teacher (which I know my head wants).

    I don't think there's a...
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    Wow! Thank you so much for the last 2...

    Wow!

    Thank you so much for the last 2 posts!!! They have really helped me!!

    I'm just having a really hard time with my pride....

    Anyone commiserate?
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    Hi Ashley, Just wanted to share with you that...

    Hi Ashley,

    Just wanted to share with you that some of my major symptoms that kidneys were being attacked was the swelling... So my legs pitted... My shins were filled with fluid, as we're ankles....
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