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  1. Thread: Hi everyone

    by Monique89
    Replies
    3
    Views
    405

    Hi everyone

    Hey guys,

    Don't know if you remember me! I haven't been around for a while now, i think because i have been doing really well, and sort of 'forgetting' that i have lupus, which is a welcome relief...
  2. Replies
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    34,138

    Well, my uncle wants me to babysit for him this...

    Well, my uncle wants me to babysit for him this week!
    Ok so not so exciting for some, but my uncle has never left his 10 month old baby with anyone except my aunty's mother before, so i am happy...
  3. Thread: Inevitable?

    by Monique89
    Replies
    8
    Views
    1,053

    I honestly feel like i am fightiing a losing...

    I honestly feel like i am fightiing a losing battle sometimes, but i have to have faith in my doctors and medicine and hope to god that i will be ok.
    My nana has lupus, and she is 74 years...
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    694

    Exam tomorrow...busy busy

    I have an exam tomorrow morning at 9am!
    Ughh it goes for 3 hours, wayyyyy too long
    I have had a huge weekend, my brothers 18th bday friday night, family thing all day saturday, then a bathhurst...
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    1,049

    Ohh how pretty!! Its just coming into spring...

    Ohh how pretty!!
    Its just coming into spring here, so everything is just starting to get its green back!!!
  6. Replies
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    5,340

    Well i say everyone just come to melbourne!!...

    Well i say everyone just come to melbourne!!
    Come in like March so there wont be bushfires and 45 degree weather though lol
    I work at a hotel so you all will have somewhere to stay lol
  7. Replies
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    5,340

    Nawww i want to come!!! How about everyone comes...

    Nawww i want to come!!! How about everyone comes here to me? Good idea lol...
    I think its a great idea...i wish there were some more Aussies here so we could do one! I probably cant rustle up the...
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    760

    Rheumy & Opthamologist yesterday

    Well i saw my rheumy and an opthamologist yesterday, thought i might as well kill 2 birds with one stone so to speak lol.

    First i saw the opthamologist...the optometrist who saw me beforehand gave...
  9. Thread: Plaquenil

    by Monique89
    Replies
    5
    Views
    1,076

    Im on 400mg of plaquenil per day...yesterday i...

    Im on 400mg of plaquenil per day...yesterday i had a check at the opthamologist, and he was saying that if you are under about 60kg, then you have a slightly higher risk of developing an eye problem,...
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    569

    Everytime i either go up or down a dose on...

    Everytime i either go up or down a dose on prednisolone, the headaches start....it takes a few weeks to settle down for me...
    Sorry, im not sure if there is anything you can really do??
  11. Thread: Imuran

    by Monique89
    Replies
    20
    Views
    3,655

    I started on Imuran today... So far no side...

    I started on Imuran today...
    So far no side effects, but its been like 4 hours since i took my first tablet (25mg).
    My doctor has started me on 25mg, with the intent to put it up to max 150mg so...
  12. Thread: Romiplostim

    by Monique89
    Replies
    3
    Views
    456

    Hello :) No its ok, i have done a bit of...

    Hello :)
    No its ok, i have done a bit of research on it myself, i was just wondering if anyone else had had any experience with it...i guess they havent LOL
    Thank you for the offer though!!!
  13. Thread: Romiplostim

    by Monique89
    Replies
    3
    Views
    456

    Romiplostim

    Anyone ever had romiplostim?
    My platelets have dropped again, after my last hospital visit, and my doctor wants to see me this week and start me on this medication...
    I have to inject it into...
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    2,532

    Thanks so much for your support everyone. I am...

    Thanks so much for your support everyone.
    I am home tonight.
    My platelet count went up to 28,000 as of this morning, so i was released from 'jail' lol. That was after the 8 X 200ml bottled of...
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    1,185

    HAHAHA We arent addicted because we would do...

    HAHAHA
    We arent addicted because we would do anything NOT to have to take drugs at all LOL!
    Hehehe
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    2,532

    Ohh im not home yet! I meant the room i have...

    Ohh im not home yet!
    I meant the room i have here LOL
    Im waiting for the blood ladies to come around, then when the results get in hopefully i can go home!!
    Oh and yeah they have tried the paper...
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    Hahaha nooo no massage worse luck LOL!! Dinner...

    Hahaha nooo no massage worse luck LOL!!
    Dinner was yummy yummy though!! I had lemon tart for dessert too.
    The last hospital i was in, ugh it was gross, but i am in a private hospital now, Epworth...
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    2,610

    Hope your feeling better soon Heidi!!! Sucks to...

    Hope your feeling better soon Heidi!!!
    Sucks to be sick.
  19. Replies
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    2,382

    Aww thats awesome Danica!! I know how much you...

    Aww thats awesome Danica!!
    I know how much you have been missing him! Heres to a fantastic Wednesday for you!!!
  20. Replies
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    1,415

    I want rituxan!!!!! Im not sure about the other...

    I want rituxan!!!!!
    Im not sure about the other drug, i havent heard of it :)
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    2,532

    Thanks guys. Im in hospital now, and they have...

    Thanks guys.
    Im in hospital now, and they have free WiFi, and im quite bored so i decided to make the most of it.
    Its not too bad here, the menu is gourmet LOL, i had scrambled eggs, tomatoes and...
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    2,532

    Off to hospital

    Well my doctor just called me, and my platelet count was down to 1000.
    Soooo i have to go into hospital tonight, and be hooked up onto immunoglobulin tomorrow. Hopoefully i will be home on...
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    7,275

    Mines boring. Monique is my name. I was born in...

    Mines boring.
    Monique is my name. I was born in 1989. Exciting huh?
  24. Thread: Not fair :(

    by Monique89
    Replies
    7
    Views
    1,169

    Hey Yeah i know its not that bad, i will get...

    Hey
    Yeah i know its not that bad, i will get used to it.
    The doctor just got my hopes up with the rotuxin, i really thought i was going to get it :(
    But apparently only people who ONLY have ITP...
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    Yeah i dont have the malar rash either. I have...

    Yeah i dont have the malar rash either.
    I have excema, and i do get reaction rashes from certain products, but never the butterfly rash.
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