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  1. I have fibromyalgia too(just diagnosed last...

    I have fibromyalgia too(just diagnosed last year), and I've noticed lately that my arms and legs hurt terribly if I or anyone else touches them. My shoulders don't bother me though if someone...
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    Hi everyone. This is weird...today I am back for...

    Hi everyone. This is weird...today I am back for the first time in 2 years, and this is the first discussion I read. And the reason I was gone for so long is...cancer.

    I have SLE, "Advanced"...
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    Hi Merrilyn, I haven't posted in a while...

    Hi Merrilyn,

    I haven't posted in a while either. I'm really sorry to hear about your diagnosis - lupus is hard enough without cancer too. That said, I have thyroid cancer and I'm getting ready...
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    Hi Maverick, What I have found the most...

    Hi Maverick,

    What I have found the most helpful is to keep a food diary for three weeks. Write down everything you eat - everything AND how you feel after you eat each meal/snack. It should show...
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    I have friends who are trained in Reiki and have...

    I have friends who are trained in Reiki and have done Reiki for years. Occasionally, I ask them to work on me. It is not a cure, but in my case, it does help. There is a warmth that flows through...
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    I don't drink wine or coffee, but I NEED my mug...

    I don't drink wine or coffee, but I NEED my mug full of Pepsi One when I get home from work. I don't know if it's psychological or not, but I kick off my shoes, turn on my salt lamp, have a big mug...
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    I'm like Marla - I HATE the feel of sunscreen,...

    I'm like Marla - I HATE the feel of sunscreen, especially on my face!! I can't stand the scent of coconut, and I don't like anything greasy on me anywhere. That said, I found out the hard way that...
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    It could be really different for everyone. What...

    It could be really different for everyone. What I've found is that it takes anywhere from 3 days to a week for me to adjust to a different dose, depending on how severe the flare has been for me. ...
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    Hi and welcome! I was diagnosed with SLE,...

    Hi and welcome! I was diagnosed with SLE, Sjogren's, and Reynaud's starting in 2006, but I believe I had them for about 8 years before that. I'm really sorry you are going through all of this, it's...
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    Hi Sarah, I'm sorry I missed your post the...

    Hi Sarah,

    I'm sorry I missed your post the first time, because I can totally relate to your situation! I struggle with depression periodically, especially when I am in or just getting out of a...
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    What are the colors? I heard from one person...

    What are the colors? I heard from one person with lupus it was purple and from someone else it was orange. Either way, I forgot about that yesterday. I did order some cool purple glasses though! ...
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    I'm so sorry you're in a flare, wrightrs. I hope...

    I'm so sorry you're in a flare, wrightrs. I hope it passes quickly for you!

    I had forgotten today is World Lupus Day!! I think I'll celebrate by eating a healthy dinner (for once, lately, lol!),...
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    There is a DSW somewhere around here, I think on...

    There is a DSW somewhere around here, I think on the other side of town, but I found out there's a New Balance store just two miles from work, so I'll stop there on the way home today. I guess they...
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    Red, I think I chickened out and didn't go for a...

    Red, I think I chickened out and didn't go for a follow up on the ovarian cyst at the time. :embarrassed: And as it turns out, I found out yesterday that the ovarian cyst is still there, but it...
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    Congratulations! I'm so happy for you - he...

    Congratulations! I'm so happy for you - he sounds like a fabulous guy!

    As far as the life expectancy, that's one of the things I worried about most when I was first diagnosed in 2006. In fact, I...
  16. Thread: My Apologies

    by brandichi
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    Saysusie, I'm so sorry to hear about the loss in...

    Saysusie, I'm so sorry to hear about the loss in your family. Know that my thoughts and prayers are with you, hoping you are being gentle with yourself at this time. You are always here for us, I...
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    And Sandy, how did your appointment go today?????

    And Sandy, how did your appointment go today?????
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    Well, I guess the good news of all this is that I...

    Well, I guess the good news of all this is that I have appointments for all three of them scheduled! The rheumy is tomorrow afternoon, the endo is June 22, and the gynecologist is June 29 for my...
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    Oh my gosh - seriously?! This is thyroid too?!?!...

    Oh my gosh - seriously?! This is thyroid too?!?! I had no idea it could be related - Arghhhhhhhh!!! (And I'm very glad you told me, Sandy - thank you!) I made an appointment with the endo for...
  20. Thread: Exercise

    by brandichi
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    What beautiful pictures, Ritzbit!! You look...

    What beautiful pictures, Ritzbit!! You look gorgeous, and the dress is amazing! You and your boyfriend make such a nice couple - he looks like a nice guy. I'm so glad it went well and you had...
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    I don't like when it gets super hot here, then I...

    I don't like when it gets super hot here, then I feel like I'm wilting and just flop on the couch until it cools down. But right now is fabulous!!! Temps in the 60's most of the time, there's sun...
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    Congratulations, Marla!!! I'm so happy for you,...

    Congratulations, Marla!!! I'm so happy for you, and I know you'll do a fabulous job on the committee. Good for you!! It sounds like a wonderful couple of months - enjoy all of it, have a wonderful...
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    Hip problem or ovarian cyst???

    I'm going to see the rheumy on Thursday, but it is starting to feel like forever. For the last month or so, I've had bad pain in what seems to be my right hip. Not a sharp pain, but it does get...
  24. Thread: sad

    by brandichi
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    Hi Erin, and welcome! I had hair loss when I was...

    Hi Erin, and welcome! I had hair loss when I was first diagnosed too, and periodically again when I'm in a major flare. The good news is that it always grows back, and in fact my hair is very thick...
  25. Thread: Thyroid

    by brandichi
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    Sandy, Please do share what you find out - I...

    Sandy,

    Please do share what you find out - I didn't know any of this information that you posted, and I'm very interested! 60% - WOW!!! It never made a whole lot of sense to me how I could have...
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