Search:

Type: Posts; User: cramer

Search: Search took 0.01 seconds.

  1. Hi there, Thanks for the reply. Its so nice to...

    Hi there,

    Thanks for the reply. Its so nice to log on and find a message.
    I trained as a gastroenerologist, but only worked in that field for 6months. I worked in internal medicine, part time,...
  2. Thread: Negative ANA

    by cramer
    Replies
    8
    Views
    1,565

    negative ANA

    You most definitely can have lupus with a negative ANA. Mine was borderline positive many years ago, but has been nagative for at least the last 10 years. At one point my Anti-Smith antibody was...
  3. Replies
    1
    Views
    764

    How to get insurance to pay for treatment

    I have a friend who is a medical director at a big insurance company. I asked him how to get insurance to pay for treatments that they don't want to cover. He told me two things. First, be...
  4. Replies
    4
    Views
    867

    Hi Popcorn, Some doctors are so afraid to do...

    Hi Popcorn,

    Some doctors are so afraid to do anything and others are too aggressive. Definitely find someone who will help you. Ask anyone in the medical profession or a fellow patient for a name....
  5. reply

    Hi Oluwa and all,

    I relate to walking around in mud. I am on Plaquenil too. I am also on Cellcept, Prednisone, and Rituxin in addition to 6 or 7 other meds. I know if I bump up the steroids I'll...
  6. Replies
    4
    Views
    1,937

    Oxycontin and Provigil

    Has anyone been on oxycontin? How much do you take? Does it stop working after a while? Do you get withdrawal symptoms when your next dose is due? Do you see a pain specialist? Does it make you...
  7. Thread: rituxan

    by cramer
    Replies
    16
    Views
    4,502

    Rituxin

    Hi,

    I have had a few doses of rituxin. The first time they were scared to give me a big dose. They gave me around 350mg four times (every week or two). It didn't work. Six months later we tried...
  8. meaning

    Dear Oluwa and all of you wonderful Lupies out there who took the time to answer my post,

    To answer your question, I am married (to a great man). He helps a ton. I also am lucky enough to have...
  9. Replies
    19
    Views
    7,935

    New Jersey

    I live in the Philly area--is anyone near there. I go to the dentist in Voorhes, and am there every few weeks lately. Is there a way for us to contact one another without posting personal info...
  10. Replies
    14
    Views
    1,959

    Mom's get help, and lots of it.

    I have 3 beautiful kids. After my first child, my lupus got a lot worse so I had a surragate mother for the twins that followed. I had a live in nanny and a night nurse. This might sound expensive...
  11. Replies
    1
    Views
    1,522

    Anyone in the Philadelphia area?

    I'd like to meet others who are grappling with lupus. Anyone in the Philly area?
  12. Replies
    9
    Views
    1,277

    Dear Kotybear, I had a boyfriend once that...

    Dear Kotybear,

    I had a boyfriend once that stressed me like you describe. It made my lupus worse, only I didn't know it until I left him. I am now married to the most understanding and supportive...
  13. How to find meaning in your life when you're always tired

    I am a new member. I am a 43 year old mom of 3 and former professional. Though I've had lupus since age 14, I've never really known anyone else with it. I'm having a hard time handling the energy...
  14. Thread: Gluten Issues

    by cramer
    Replies
    10
    Views
    1,781

    gluten and dairy

    When my son had to go on a gluten and dairy free diet, I figured I'd go on it too, to see if it helped. First I eliminiated dairy. I noticed that after years of daily low grade fevers, my fevers were...
Results 1 to 14 of 14