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    I'm in the appeal process right now. So it's not...

    I'm in the appeal process right now. So it's not been fun. I have a lawyer handling it for me.

    Thanks for the advice.

    Really appreciate it.

    Lisa
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    I've been in the process of getting approved for...

    I've been in the process of getting approved for SSI since this January. That's a long time. But like they say, it could take 2 yrs. Oh well. That's so long. I got turned down the first time, and I...
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    Just to share

    Here's the crazy news

    No pneumonia. My chest xray is negative. So someone tell me why , oh why do I have lung pain on one side? WHy oh why do I have sob? and why oh why do I have this weird pain...
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    I wanted to add

    To jojo at the bux

    I too have the same pain, with the shoulder pain, uncomfortableness in the neck, pain in lung...what the heck.l

    Docs have no clue.

    I'm going for a chest xray today. I'm on...
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    Hi all

    I just wanted to add, that I too have been in a sort of flare for quite some time with something going on with my chest also.

    I have no clue what's going on with me but it started out with some...
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    I had the flu, and ended up with Pneumonia from...

    I had the flu, and ended up with Pneumonia from it and was hospitalized. It was no fun :(.

    It's been a rotten year so far...........From my stroke in 2007 of Nov....to this darn pneumonia...it's...
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    Did you hear the news last night about singulair?...

    Did you hear the news last night about singulair?

    My son is on that for his allergies and asthma and so is his son.

    It causes mood swings and they can be quite severe to the point that they...
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    That's the main thing I lost Oluwa, was my...

    That's the main thing I lost Oluwa, was my vision. I thought I was only having a migraine.

    No numbness, no tingling no paralyisis. None of that. I was walking, talking and all of that fine. So I...
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    That is the name of one of the tests Saysuzie,...

    That is the name of one of the tests Saysuzie, and it's one' of the ones my new rheumy is ordering for me. My old one never ordered it for me after my stroke.

    Kinda makes me a bit upset. Ya know?
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    Oluwa, Those electric zingers, I get them in...

    Oluwa,

    Those electric zingers, I get them in my head :(

    Iv'e had a stroke too...yikes, they say a migraine may have triggered it. who knows for sure, I lost eye sight, thankfully not all of it....
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    Saysuzie, thanks so much for your reply I...

    Saysuzie,

    thanks so much for your reply

    I really appreciate it. I love reading your replies on here you have so much knowledge.

    How is it that i can be so sick and have nothing showing up in...
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    Hi I don't think my last post made it. So I'm...

    Hi

    I don't think my last post made it. So I'm going to try again.

    I suffer from migraines and have since I was 12 years old. In november of this year I had a stroke. My neuro said it was...
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    What is a lupus headache?

    I get migraines, have sufferered with them since I've been about 12 or so, and know what they are like. I get the classic migraines, with the visual aura that comes before the one sided head pain :( ...
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    Hi Mrs Murdena Thanks for the reply. I think...

    Hi Mrs Murdena

    Thanks for the reply. I think that is exactly what I'm going to do today. Inform the doctors office of what advice she gave out. It's sad, because she's really a friendly person,...
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    Interesting advice from a nurse

    Hi everyone

    I was at the doctors office last week, because on top of everything else I'm going through I had a flare of my bronchitis. Lucky me huh? Anyway, while I was waiting for the doctor to...
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    Hi Saysuzie, I wanted to ask you, what is a...

    Hi Saysuzie,

    I wanted to ask you, what is a lupus headache?

    I suffer from migraines. Classical migraine headaches. Dont' take anything for them though as I only get them really bad once a month...
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    I take it she's not on the steroids right now...

    I take it she's not on the steroids right now then. Maybe she could use a low dose for her pain?

    Right now I'm on 10 mg and trying to ween down. I'd rather be pain free than dealing with pain on...
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    I used to be an EMT, not a doctor by any means,...

    I used to be an EMT, not a doctor by any means, but a fast heart rate, (tachycardia) isn't usually normal for two days. I'd go get looked at asap, and if you haven't already gone to a doctor, I'd...
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    Claritin for pleurisy? Isn't claritin an allergy...

    Claritin for pleurisy? Isn't claritin an allergy medication? I'm confused. Well...I am. I'm always confused anyways.
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    I get those red spots too, but I only get a...

    I get those red spots too, but I only get a couple of them. Right now I have two on my one breast and one on my arm. If they are still there Monday then I'll show them to my rheumatologist. Or...
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    Yes! I have had similar problems too. I've had...

    Yes! I have had similar problems too. I've had all types of testing done. A test where they make you inhale this radioactive crap and they take pictures of your lungs, countless ct scans of my chest....
  22. Thread: cellcept

    by misslisa1017
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    cellcept

    Well, I've been on the cellcept now a little over two weeks. I feel like I'm in a fog sometimes from it, and get sick to my stomach. Also light headed/dizzy at times. Not sure if this is a side...
  23. I've been on plaquenil for over three yrs now and...

    I've been on plaquenil for over three yrs now and it really helped me alot, but recently I've had some flares over this summer. So I don't know where things are going to go with the plaquenil now....
  24. Thread: plaquenil

    by misslisa1017
    Replies
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    It's a walk in the park compared to cellcept. I...

    It's a walk in the park compared to cellcept. I am scared to death of new meds. plaquenil has the least side effects.

    Plaquenil didn't bother me at all...and mostly the only time it did was the...
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    It sucks and it's scary too, I don't know what to...

    It sucks and it's scary too, I don't know what to do when it gets so bad I can't even get out of bed. I feel like the pain gets so bad my heart is going to stop.

    I suppose i'll still go to the...
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