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  1. Replies
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    Im not very tolerant of MTX so I am going on a...

    Im not very tolerant of MTX so I am going on a low dose and reducing the Cellcept to 1000mg a day. I had all these questions to ask the specialist but I forgot. I go back in March so my husband...
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    Well the results of the mole removal came in,...

    Well the results of the mole removal came in, initially I was advised by the doctors wife that 'all was good' but just as I was enjoying some pizza and wine last night (as you say Steve, we just have...
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    Consultant called me and said everything has gone...

    Consultant called me and said everything has gone back to normal ranges - he doesnt know why it went up, said it is not the Cellcept. He thought maybe dehydration as our temps have been in the 40's...
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    Well no call from the doctor as yet - it is...

    Well no call from the doctor as yet - it is 10.40am, I am assuming all must be back to normal and think if it was that urgent, I would have been called by now surely?

    Feeling confident it was just...
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    Yep, I think they did all the kidney tests on...

    Yep, I think they did all the kidney tests on Wednesday plus I had to fill two urine pots - I get all results tomorrow - I am wondering if dehydration stuffed up my results, or am I just wishful...
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    I have had breathlessness, which I put down to...

    I have had breathlessness, which I put down to the Sjogrens but my weight loss has been quite noticeable and the nausea makes it very hard for me to eat.

    I wonder how someone can just develop...
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    Its a strange feeling when you feel 'wrong'. ...

    Its a strange feeling when you feel 'wrong'. Some days I dont have any or little nausea - this morning whilst I dont feel sick, I have zero appetite either and I am a bit itchy.

    I can tell when...
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    Thanks Steve for the chat earlier, you have no...

    Thanks Steve for the chat earlier, you have no idea how much it meant.

    Looking forward to catching up at the end of the month xx
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    Thanks guys. I think it is funny how it has all...

    Thanks guys. I think it is funny how it has all turned out. Do you remember when I first joined in 2011 and I had mild symptoms to what I have now and the first specialist didnt believe me, the...
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    My consultant telephoned me today to see how...

    My consultant telephoned me today to see how things were and said not to start the MTX and he will call me with the blood results and take it from there. I am peeing such a lot and feel nauseous...
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    Oh dear, MTX has been delayed as for the past...

    Oh dear, MTX has been delayed as for the past couple of weeks my nausea has been awful, feeling dizzy and headachey as well and it isnt gastro.

    Specialist said hold off MTX for the moment and...
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    Saw the specialist and he does not believe it is...

    Saw the specialist and he does not believe it is medication related. He confirmed that the results are not normal but has said not to be concerned, he has run more tests and urine today and will...
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    Kidney function - deterioration

    I had a phone call the other day in the evening, from my GP telling me that my kidney function has reduced (significantly for my age) so I have to have more tests done. I am at the hospital next...
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    Might take you up on that - Ive decided to try...

    Might take you up on that - Ive decided to try and not think/worry till I see the Rheumy but its going to be hard.

    If my risk of cancer is increased with taking these, I would rather take my...
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    Cellcept and skin cancer

    HI everyone

    My specialist stopped the MTX and started me on Cellcept and I have been taking 1,500mg for a while (1 tab am and 2 tabs pm). It has been a miracle treatment although I walk a fine...
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    I reduced from 5mg to 4mg and for two weeks was...

    I reduced from 5mg to 4mg and for two weeks was not too bad and then the pain became so bad that it was increased back to 5mg.

    Rheumy is going to try again on the next visit in January and if...
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    I have been on Cellcept for a few months, started...

    I have been on Cellcept for a few months, started on 500mg twice daily alongside MTX injections, now I am on 500mg three times daily and have weaned off MTX. Sadly the two worked well together but I...
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    You know I have been incredibly lucky with my...

    You know I have been incredibly lucky with my employers who have bent over backwards for me, even moving me to an office and removing the flouro lights, allowing me time off for appointments and I...
  19. I had a good read of the printout that the...

    I had a good read of the printout that the hospital gave me about Cellcept, on the section on 'how to take your Cellcept', it states 'Cellcept can be taken with or without food'.

    So I am going to...
  20. Im so confused over this, I checked my label and...

    Im so confused over this, I checked my label and it just has a warning about the dairy consumption but nothing about food. I double checked with the hospital pharmacist and then the consultant and...
  21. Im getting a bit worried, I double checked at the...

    Im getting a bit worried, I double checked at the hospital that gave them to me and they said just not to have dairy 2 hours after taking the cellcept. All I know is that I have had no stomach ache...
  22. Just checked with another chemist and they said I...

    Just checked with another chemist and they said I can deffo take with food and that often helps with the stomach ache.

    Just found this link as well:
    ...
  23. I was told to take the cellcept at the same time...

    I was told to take the cellcept at the same time as food but not with dairy products for two hours within taking it. I have had 3 doses, I take morning dose with my breakfast and my evening dose...
  24. Another drug to add to the mix - feeling pretty toxic

    Hi everyone, hope you are all OK - havent posted in ages.

    My Immunologist already has me on steroids, plaquenil, MTX injection and more recently - Endone for pain (taking .5mg every 2 to 3 days...
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    Sore feet - like really really sore!

    Prior to starting the plaquenil, MTX and steroids, I had sore feet as though someone had hit them with a hammer, the sides of my heels hurt, my toes hurt and it is agony to walk. The steroids, MTX...
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