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    Thanks guys

    Question for Saysusie.......Do you think all this was caused by the lupus?
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    Can anybody make any sense of this???

    Confused!! :?

    Have been very sick lately with firstly a month ago something that seemed like kidney infection with pain and then they called it sterile pyuria as no pathogens were isolated so it...
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    i feel for you

    All those symptoms!!!!!

    Yes when I went to a neuro with my list of symptoms and mri came back clear he fobbed it off as "anxiety." I was devastated because I was sick and looking for help! Of...
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    upper Airway Dysfunction

    I went through the whole range of pft investigations and they found I had upper airway dysfunction which at times severely restricts my breathing. It always feels like it's coming from my chest...
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    Itchiness and kidney involvement

    Hi Cheryl,

    Kidney involvement I believe can be responsible for a generalised itchiness which I have but this other thing is so much more intense than that and temporarily affects certain areas and...
  6. Thread: Confused

    by mumma7
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    Thanks gorgeous girls!

    8) I can always rely on you people to give me more answers than the doctors do. I sometimes wonder why they often seem to give as little info as possible, maybe its because they don't want to scare...
  7. Thread: Confused

    by mumma7
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    Confused

    Hi everyone,

    Missed you all haven't been around much lately as I temporarily forgot my password! lol Been having a bit of a flare funny isn't it after getting good blood results only a month or so...
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    Same Problem

    I have been having the same problem intermittently for about 12 months.

    I posted too about it.......... Raced to the doctor a couple of days ago because I wanted him to see me having one of these...
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    Multiple Sclerosis/ Lupoid Sclerosis

    Hi guys,

    Haven't posted in a while as my life has been hectic! Been moving house, working, etc, etc, etc

    Just wanted to ask a little question as I only got diagnosed end of last year and don't...
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    Thanks Cheryl

    I will try those things and see if we can both get some normality happening! :lol:
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    Still very low in iron

    Hi everybody,

    Hope everyone is well and happy..... oh well at least happy! When was the last time any of us were well :(

    Just got some blood work back from docs and still extremely low in...
  12. Insane Itching all over from head to toe!!!!! HELP!!!

    :!: Has anybody had this it is absolutely driving me crazy. It's not all over all of the time but seems to migrate all day and all night all over!!!

    I wonder if this is lupus related or something...
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    Foamy urine

    I'm a little concerned as I have noticed this for quite a while, mostly in the mornings it actually looks like someone has put bubble bath in the toilet!!!! Does this mean there is extra protein in...
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    Upper Airway Dysfunction

    I was diagnosed with a condition called upper airway dysfunction long before I was diagnosed with lupus. I also get mild asthma so when it first started happening they just upped my asthma meds but...
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    How long until meds start kicking in?

    Been on Plaquenil for about 5 days I think. just wonderin how long before they start to help?

    Ta,

    Kaz
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    Thanks for the replies and warm welcome.

    Just got home from 4 hrs work and I literally feel like I'm gonna die or pass out:splat: :splat: :splat: :splat: !!!!!!!!!!!!!!

    Got script this morn 4 meds so I'm going to get them now.

    I...
  17. Thread: undiagnosed

    by mumma7
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    From one newbie to another Hi! :)

    :D You sound like a very strong and capable lady but it's hard to stay on top all the time so be kind to yourself, don't be afraid to ask for help and take time out (the mess will still be there...
  18. Thread: Hi Everybody!

    by mumma7
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    Hi Everybody!

    Posted on newly diagnosed section so if you wanna find out ALL ABOUT ME then visit there! I only say that because I'm too tired and too lazy to type it all again! :P :oops:
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    New here - diagnosed 3 days ago

    Hi everybody,

    So glad I found this forum filled with lots of info and encouragement.

    I have been having symptoms many yrs with possible diagnosis from lupus, anxiety, to ms, anxiety to lupus,...
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